‘Near-universal’ negative experiences with healthcare providers reported by Lyme disease patients

Lyme patient expressing frustration with doctor.
Lyme disease can be a challenging illness for both physicians and their patients. In an article entitled “Knowing the entire story - a focus group study on patient experiences with chronic Lyme-associated symptoms (chronic Lyme disease),” Baarsma et al. share various perspectives of self-identified chronic Lyme disease patients from the Dutch Lyme community.

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Lyme meningitis leading to hyponatremia

Woman rubbing painful shoulder due to Lyme meningitis.
In their article “A Tick-borne Cause of Hyponatremia: SIADH Due to Lyme Meningitis,” Windpessl and colleagues describe a patient who was initially treated for sudden onset of shoulder pain associated with hyponatremia but later diagnosed with Lyme meningitis. [1]

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Lyme arthritis with rheumatoid arthritis leads to poor quality of life

Man with lyme arthritis rubbing his wrist.
Lyme Arthritis and Rheumatoid Arthritis can greatly impair a person’s quality of life. A recent study examines survey results from 90 patients to assess the levels of impairment for patients with both these conditions.

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Erythema migrans rash doesn’t always have bull’s eye appearance

Woman with bull's eye rash being examined at the hospital.
An erythema migrans (EM) rash, sometimes referred to as a bull's eye rash, has been considered the signature rash for Lyme disease, leading to a definitive diagnosis. Yet only 1 in 4 erythema migrans rashes present with a bull’s eye appearance.

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Single dose doxycycline for treatment of tick bite only prevents Lyme disease rash

Man taking doxycycline which will only prevent Lyme disease rash.
In a review entitled “Lyme Disease: Emergency Department Considerations,” Applegren et al. recommend using a one-time, single dose of doxycycline for the prophylactic treatment of a tick bite, [1] despite the fact that there has been only one study exploring the effectiveness of such a limited dosage. The article also neglects to mention that there are doctors who take a different approach and advise against a one-time, single dose. [3]

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When babesiosis turns deadly

babesiosis-turns-deadly
In their case report “Fatal Babesiosis in an Immunocompetent Patient,” Selig and colleagues describe a 48-year-old man who died within days of being admitted to the hospital from babesiosis and yet, he didn’t have any significant risk factors for severe presentation of the illness. [1]

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Meningoencephalitis due to Borrelia miyamotoi

Meningoencephalitis-Borrelia-miyamotoi
In their case report, Gandhi and colleagues, describe an immunocompetent patient who developed acute-onset, progressive encephalopathy due to an infection with Borrelia miyamotoi.

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Tick bite induces red meat allergy

tick-bite-red-meat-allergy
In their case report, Wuerdeman and Harrison described a 33-year-old service member who presented with “recurring episodes of urticaria, palpitations, flushing, and itching after ingestion of red meat.”[1]

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COVID-19: When Lyme disease and tick-borne illnesses may not be considered

COVID-Lyme-disease
In their article “Case 9-2022: A 56-Year-Old Woman with Fever, Myalgias, Diarrhea, and Cough,” Vyas and colleagues present the case of a 56-year-old woman who was admitted to the hospital with what doctors believed to be atypical symptoms of COVID-19. [1]

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Lyme disease causes mix of symptoms, including autonomic dysfunction

lyme-disease-mix-symptoms
In the case report “A Patient with SIADH, Urinary Retention, Constipation, and Bell's Palsy following a Tick Bite,” Leone and colleagues describe a patient who developed an unusual combination of Lyme disease symptoms, all of which resolved following treatment. [1]

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