LYME DISEASE AND COVID-19 SURVEY
We need to understand the Burden Of Lyme Disease and other tick-borne illnesses (BOLD) on individuals who have been ill with COVID-19, have taken the COVID-19 vaccine, or have been hesitant to take the COVID-19 vaccine. Below is a short video explaining the BOLD survey.
You are invited to share your experience with Lyme disease if you are at least 12 years of age and if:
- You have had COVID-19
- You have had the COVID-19 vaccine
- You have had neither COVID-19 nor the COVID-19 vaccine
Your experience will help others living with Lyme disease in a COVID-19 Pandemic.
Note: The survey closed as of April 10, 2023. I am grateful for the outpouring of support and to those participants who completed the survey. Here is a link for the first published paper. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10044022/
Please contact Dr. Daniel Cameron with any questions or concerns at: dcameron@danielcameronmd.com
I was worried about getting the vaccine, but work in healthcare and my spouse is high risk for severe illness if he gets COVID. I got my first injection in January and second in February and have had ZERO adverse reactions since 2 days after each. The day after both I was tired and my arm was sore, that was it. I was so relieved to not have terrible side effects and it’s interesting to me that other Lyme surveys show patients with Lyme are having FEWER side effects than the general population! Maybe we’re just so used to pain that the mild discomfort after injection isn’t a big deal. 🙂 My anxiety and mood are much better since getting vaccinated, a result of less worry about contracting COVID, I’m sure. We are still extremely careful, no crowds, masking in public spaces, etc.
I am happy the vaccine worked out. Don’t forget to share you experience on my Lyme disease and COVID-19 Survey if you have not already. Here is the link https://danielcameronmd.com/lyme-disease-covid-survey/
I have already completed the survey. Thanks for the information you share!
Dear Dr Cameron
I filled in the survey and shared my experience about the GI side effect of the pfiezer shot I had, it escalated MCAS to the point I reverted back to only being able to only eat about 4 foods without symptoms. But I wanted to tell you, if you are able to do a study to help any long haulers or post vaccine symptomatic inflammation patients that Flagyl worked for me almost immediately. I am now able to eat again normally. I am a physician Assistant and it felt like the shot was causing a chronic psuedoileus which caused nausea and multiple other symptoms and I just gave it a try and was so happy to get off a liquid diet!! It was a miracle. Hope this information helps and a study can be done at some point if others have similar experiences.
Thanks-michelle
thanks for sharing
Flagyl helped me as well, as Hydroxychloroquine and ESPECIALLY Ivermectin.
And I did completely fill out your survey sometime ago.
I am curious about Covid break through cases. This survey does not seem to address that issue. Our whole family (4 individuals) have all been diagnosed with Lyme over the last 15 years, several times. We have all been vaccinated against Covid-19 with Pfizer. Recently, our 18 year old daughter had a break through Covid case. Was she at higher risk for Covid because of her Lyme disease, which was diagnosed when she was 3 years old?
I am planning on following individuals who have completed the survey at time with the hope I can understand the incidence of a second COVID-19 infection and if so the severity. I am still urging individuals with a history of Lyme disease to enroll in the study. https://danielcameronmd.com/lyme-disease-covid-survey/
I have been mostly symptom free for about 8 yrs. and quite healthy. since summer began some symptoms have recurred, and the big question is will a COVID shot make me feel worse?
I am extremely terrified to take the vaccine. I have 4 different kinds of lyme and I also have a blood clotting issue. Our school district is mandating that staff get vaccinated or we will have to be tested 3 times a week but I truly don’t think it would be a good idea to get the vaccine. What do you think?
The only reason we are having this discussion is the severe complications of COVID-19. This Lyme disease and COVID-19 survey will allow individuals with Lyme disease to share their experience with COVID-19 or the COVID-19 vaccine to help with your decision. I would appreciate it if you and anyone you know, even children over age 12 to complete the survey. The survey requires a consent to protect your privacy and to allow the results to be published. https://danielcameronmd.com/lyme-disease-covid-survey/
3 docs said no to vaccine for me. Besides dxed Lyme/co-infections/ lyme dysautonomia/syncope/mass cell.++++
My gut says no. But in elevators a lot.
Try to keep distance unable to wear mask for any length of time. Air hunger. Should people like myself with mass cell not take hope we have natural immunity? Just not sure yet!!
You are not alone. The severity of COVID-19 for some people makes the decision more difficult.