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When Patients Know More Than Doctors
I recently read an article in The New York Times that really spoke to me and would apply to so many of my own patients. “When the Diagnosis Is Rare, Parents May Know More Than Professionals,” by David Wheeler, highlights a family who struggles to find answers to their young child’s medical condition. For two years, the parents researched her symptoms, pursued different physicians and became her strongest advocate. Eventually, their child was diagnosed with a rare disease, Infantile Neuroaxonal Dystrophy (INAD).
