Lyme Disease Social Wall: Facebook

I got a staph infection after knee replacement. Three yrs later I still have severe pain in the joint. The surgeon wouldn’t discuss a connection to Lyme nor would he test the synovial fluid. This article didn’t say which IV and oral ABX’s were used to improve the infection. Any suggestions?

Have to disagree based on my personal experience. Even treated with oral abx just puts it on hold ie the resolution is temporary. My left knee was replaced 3 times and still swells. I am on long term abx that seems to keep it under control and the other lyme associated issues system wide. No enough bone to do another one, so oral antibiotics are probably on my menu for life. Dr Cameron I respect what you do to help folks alot, but I really wish you would have the gumption to come out against shots that destroy immune systems. I can't believe that you don't know better, you're too smart and on top of latest information to not know.

Just got a knee replaced (3rd prosthetic joint); recovery is not going well (4 months post op, still crutching, but at least no infection).

Amazing....I will share this with my Rheumatologist.

Penicillin cures the spirochete known as syphilis, a neurological disease. Why have they stopped using this for Lyme, spirochete, they used to? Fever and rash are normal, it's the die off reaction, not always an "allergy"

Wait, let me guess. Treatment is not covered under insurance, is it? If the majority of people can't afford treatment, what's the point?

Jesse Gojkovich

I had Lyme Disease with extremely high inflammatory markers,. Developed Lymphoma and had cancer treatments. I asked to be checked and my CRP and SED rate was normal! I know chemo reduced the inflammation!!!!

With such a warm winter.....this will happen. I talk about it all the time to others to educate them. I will send you my medical records- so you can learn from what Sjogrens Syndrome from the lyme Disease did to my eyes. 2 Cancer Dr apts coming up. 🙏🙏

Great. Makes me just want to concrete my whole yard. 😄😄

So do the shots...

Seriously as the article reports, prior to 2022 everything was underreported and now folks are much more vigilant.

Ticks really like us? 😏

What are the chances they’re properly treating those bites? Probably handing out one dose of doxy and sending those poor people on their way. 😞

These articles are so frustrating to read because the main component of testing is completely false as many of us know the numbers of reported cases are so far off if you only have 2/5 not Lyme Positive yet you have the majority of symptoms and can barely walk, and had a faint rash, your not considered LD positive. Yet you can be tested 5 times with the same symptoms and finally that 5th test shows a positive test, so now you can receive treatment after Lyme has turned chronic say 5 months prior but now that the test shows 5/5 finally doctors can treat you. What happened to Igenex testing in NY that was voted on in 2019, to be allowed yet many doctors do not know of the testing or what lab to use. Then many in the Medical community say do not research and look on the internet and use alternate therapies they do not work. But funny many show great improvement with those alternative therapies not covered by insurance.

You mean they actually keep track of lyme cases? Why when 28 days of doxycycline is so great at preventing dissemination?! We have a long way to go before lyme and its co-infections are controlled...

💚 sharing

I wonder how she will fare with food allergies in the future though she was treated. Alpha-Gal is so missed understood and doesn’t seem to appear immediately.

Wow and the medical system will fail her until changes are made...

Have they mated with leeches??

I am so sick and tired of feeling sick and tired. The only medical care I now can get for my tick borne illnesses are "opinions" & gas lighting. After decades of appointments with obtuse IDSA affiliated infectious disease specialists spewing boilerplate dogma cooked up at the '93 Dearborn Conference, I now have abnormal Motor Neuropathy GQ1b Guillain Barre' Syndrome antibodies and GD1b Gate Ataxia antibodies with low Protein C Functional & D-dimer. So what do you think will be next in my "Rollodex of Health Issues"? Stroke, Heart Attack, Seizure, Blindness, Immobility...? When I present with these symptoms, will I be treated...THEN? Will I verbally be able to string together a coherent sentence at that point? Will I be able to write one?

Crazy!

Yep. Two types for me. First, I got stuck to walls. Couldn't move unless someone moved me. Second type was when a flash would go off from a camera or on tv, I would go into a sleep/trance for 18 hours. Very weird.

I have mini-blackouts that show as seizures on EEG. MRI shows small white lesions that are progressing. Seizure med is helping but causes severe fatigue. I hope it doesn’t progress to ALZ.

Yes. I had a seizure I always felt it coming on - loss of hearing first. Then tunnel vision

Bartonella cause seizures

Prayers for her,....I have never been the same since the Summer of 1989.

36 years with Lyme. Hey, at least you got a good diagnosis and you know what you’re dealing with.

When will there be accountability?

Lyme, Bart and Babesia robs our loved one of so much.

56 years and over 40 latch ones. The worst was from a dine n dash.

Lyme changes everything ….

The problem is with testing. Spirochetes have the ability to use host protein and host bacteria to create spirochete round bodies. They have used your body to look like YOU but the body knows somethings pretending. We call these viruses or "auto immune" to attack them the body essentially has to attack "itself" That's why reliable testing while symptomatic is so important. They used to use penicillin as treatment, spirochetes are spirochetes, now they just "manage" instead of cure. A dose of silver to break the biofilm along with extended iv penicillin should cure.

So many quack doctors out there don’t even know what to look for. It’s terrible. Meanwhile, the patient is floundering.