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MS and Lyme disease patients call for more participation in clinical trials
Patient advocates have long been involved in lobbying for patient rights and providing outreach and educational awareness of their disease. In the past, “Trials were conducted on their behalf, often without incorporating the needs and views of the participants, and rarely were the results of the trials shared with the study participants,” states Smith in an article published in the Multiple Sclerosis Journal. [1] But times are changing and patients' voices have grown louder as they demand more involvement in research and clinical trials.
