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The debate over chronic Lyme vs PTLDS isn’t just about words—it’s about whether patients feel validated or dismissed. Many patients use chronic Lyme disease to describe ongoing fatigue, pain, and brain fog. Some clinicians prefer post-treatment Lyme disease syndrome (PTLDS), a term that sounds more neutral but often feels minimizing. Did You Know? Most patients […]
Chronic Lyme vs PTLDS: The Debate Read More »
Many patients with Lyme disease experience persistent symptoms that are increasingly understood to involve immune dysregulation, even long after the initial infection has been treated. These symptoms are often misunderstood or minimized. Increasingly, they are recognized as reflecting immune dysregulation and neuroinflammation—a state in which immune signaling fails to return fully to baseline and continues
Immune Dysregulation in Lyme Disease Read More »
When Vision Doesn’t Let Go Some patients notice that an image disappears, but their vision does not fully reset. Lights may trail, words linger on the page, or objects seem to echo briefly in space. These experiences can be confusing and unsettling, particularly when they occur without warning. This phenomenon is known as palinopsia. Although
Palinopsia: Why Afterimages Won’t Go Away | Daniel Cameron MD Read More »
When symptoms persist beyond what medicine can easily explain Author’s note: I wrote this because I often meet patients who have been told there is nothing more to do, even though their symptoms persist. This post explains why that phrase usually reflects the limits of a medical framework—not the limits of a patient’s illness or
When Medicine Says There’s Nothing More to Do Read More »
When Symptoms Are Blamed on Aging Symptoms blamed on aging are often accepted without question. A patient noticed a gradual decline in stamina as routine activities became exhausting, sleep no longer felt restorative, and shortness of breath appeared with simple tasks. He assumed it was just getting older. Aging explains some changes, but it should
When Symptoms Are Blamed on Aging, Look Deeper Read More »
She came to see me after months of feeling dismissed. She was experiencing Lyme bladder pain — pressure, burning, and urgency that felt exactly like a UTI, yet every test came back normal. She is not the only one. Many women quietly live with bladder pain due to Lyme disease. They are often told it’s stress,
Can Lyme cause bladder pain or urgency? Read More »
He wasn’t losing his mind—he was losing time. Each week blurred into the next as fatigue and fog deepened. When he finally came to my office, he’d already accepted a diagnosis that wasn’t quite right. A patient came to me months after recovering from COVID-19. He still felt drained—exhausted, foggy, and plagued by a burning
Long COVID or Lyme Disease? When Symptoms Don’t Add Up Read More »
The Question Patients Ask in a Whisper: How Do I Parent or Work With Lyme Disease? For many people wondering how to parent or work with Lyme disease, simply getting through the day already feels like a full-time job. Patients rarely ask this question directly at first. Instead, they describe the fear underneath it. They
How Do I Parent or Work With Lyme Disease? When Survival Becomes the Job Read More »
The Fear Is Real — But So Is the Cost of Waiting Fear of a Herxheimer reaction is one of the most common reasons patients delay Lyme treatment. The worry can feel bigger than the disease itself. I remember one patient sitting across from me, struggling to find the words before finally admitting: “I’m scared
Afraid of a Herxheimer? Why Delaying Lyme Treatment Can Backfire Read More »
Why Does Lyme Disease Mimic MS or Fibromyalgia? Patients often ask this after years of neurologic symptoms, pain, and fatigue that never fully fit one diagnosis. This pattern often leads many patients to receive labels suggesting progressive neurologic or pain disorders, even when infection-related and immune-driven mechanisms may be contributing to their symptoms. Sarah was
Why Does Lyme Disease Mimic MS or Fibromyalgia? Read More »
