I Never Learned About Lyme Disease in Medical School
During my medical school, graduate school, and residency, Lyme disease simply wasn’t part of the medical school curriculum. At the time, Lyme disease had not yet fully entered the medical lexicon. The condition was still considered rare and geographically limited, far from the major public health concern it has become today.
Today, Lyme disease is recognized as the most common vector-borne illness in the United States. Yet many clinicians still report receiving little formal training about the condition during medical school or residency.
When I was in training in the late 1970s and early 1980s, the curriculum understandably focused on the major established diseases—heart disease, diabetes, and infections like tuberculosis. There was little room for a condition that was still emerging and poorly understood.
Why Lyme Disease Was Often Missing From Medical Training
Several factors contributed to why Lyme disease received little attention in medical training at the time:
- Lyme disease was initially considered geographically limited.
- Early research and diagnostic tools were still developing.
- Medical curricula focused on long-established diseases.
- Recognition of persistent or complex symptoms came later.
A Rare and Localized Disease—Until It Wasn’t
At the time, Lyme disease was considered a rare and localized condition, affecting only a small number of people in the Northeastern United States. It had not yet become the widespread illness it is today.
The first clusters of Lyme disease cases were described in Connecticut during the 1970s. Recognition of the illness gradually expanded, but it took years before Lyme disease became widely recognized by the broader medical community.
By the time I began practicing medicine, Lyme disease was beginning to gain attention, but it was still often viewed as a regional curiosity rather than a growing public health concern.
A Turning Point: Recognizing the Pattern
It was not until 1987 that I encountered three patients with a constellation of symptoms—fatigue, joint pain, and neurological complaints—that did not fit neatly into any familiar diagnostic category.
These patients had already seen multiple physicians and undergone numerous tests. Yet they still lacked a clear diagnosis.
Seeing these cases together helped me recognize a pattern consistent with Lyme disease. Those patients became an early lesson in how emerging diseases can outpace the medical training physicians initially receive.
Over the years, I have seen many patients who spent months or even years searching for answers before Lyme disease was considered.
Medicine Evolves, and So Must We
As I learned more about Lyme disease, I came to appreciate how much the medical landscape had shifted since my training years.
Diagnosing Lyme disease can be challenging. Symptoms vary widely, and standard testing does not always detect infection in every stage of the illness. These complexities continue to fuel ongoing discussion within the medical community.
Lyme disease also illustrates how medicine constantly evolves. New diseases emerge, new research reshapes our understanding, and clinicians must adapt to changing knowledge.
Medicine is often described as a science, but it also requires judgment, experience, and a willingness to revisit earlier assumptions as new information becomes available.
A Lesson in the Ever-Changing Landscape of Medicine
Looking back, the absence of Lyme disease from my early training serves as a reminder that medicine is never static.
Conditions that once seemed rare can become central to clinical practice. Diseases we barely discussed during training may later emerge as major public health challenges.
Lyme disease—along with its wide range of symptoms and potential long-term complications—illustrates why physicians must remain curious and committed to lifelong learning.
The Importance of Listening and Learning
Lyme disease has also reinforced another important lesson in medicine: the value of listening carefully to patients.
Patients often describe symptoms that do not fit neatly into textbook categories. Taking those experiences seriously can be the key to recognizing conditions that might otherwise be overlooked.
Today, challenges surrounding diagnosis extend across many areas of care, including pediatric Lyme disease, where symptoms may present differently than in adults.
Ultimately, Lyme disease reminds us that what we do not yet know can be just as important as what we already understand.
I have lived in Australia all my life.
Got bit by a tick at the age of 18.
2015 found a naturopath and sent blood to Germany.
Come back positive for Lyme disease.
The suffering from Lyme disease i might have well been dead.
As not one doctor or infectious disease specialist believed me.
I finally found a doctor that knew how to read the Germany test results.
I never gave up and so lucky I found her and now I also have a Specialist which both help me with my illness.
And I have 5 chronic illnesses
I am now 54 this year and just get through each day as I can.
I fight for every day as I have one beautiful son that will be 25 this year.
I live for him every day.
Until I can’t go anymore.
I bless and pray everyday for any other that has Lyme disease.
Thanks for the blessing. I hope you get better someday
Im the same age as you Kim and in Tasmania , 4 years ago i got insanely sick very quickly from a tick bite on the back of my neck . Encephalitis, a 14 month migraine , crushing chest pains , lost my memory, i was a full zombie and said good bye to my wife and boys a few times I was sure i would die .i went to hospital in ambulances , cardiology , CT scan’s , infectious diseases clinic , numerous blood tests but they would never test for what I asked , got treated like rubbish , like i made it up which shocked and upset me . I realised I had to treat myself so read everything i could about tick illnesses and had more supplements than a witches larder . I got covid about 20 months later and hit it hard with ivermectin and after It disappeared I started getting better quickly , now 2 years later im 90percent better on average , i still get mild head aches and occasional chest pains . I take sativa cannabis oil cbd, thc at night and ivermectin once every 4 months and life is good . Not saying the same thing will work for you but dont give up hope , if i could get better you could too , you just need to kill the bacteria, virus and parasites, if you have not tried ivermectin id give it a go
I am glad you are 90% better.
Your lastest articles are absolutely wonderful! I wish there were more Lyme literate doctors in the world. I have been struggling with PTLDS for years. In the past I was a patient of yours, during that I actually felt ok. Unfortunately because of the distance I couldn’t continue my treatment at your practice. I would be eternally great full if you could refer me to a Lyme Dr. in CT.
Thank you.
I am glad you felt better for awhile. I hope you get better again. I am not familiar withe the professionals in Connecticut. You may find it helpful to check with GlobalLymeAlliance or ILADS for names if your primary can’t arrange someone for you.
Bless you for managing your horrid disease without the assistance of all those ignorant. pompous so called” Dr.s”. There are so many of us that we have lost to death, assisted suicide and just plain suicide! My brain roars when I hear stories like yours…Take care..Sometimes, it’s too much to take just one day at a time…for the sake of our sanity, we must take it one minute at a time.