Lyme disease patients struggle with depression

It was a great loss to hear that depression and suicide has robbed us of our beloved Robin Williams. The actor and comedian’s death has brought depression and mental illness into the spotlight, once again. It also gives us an opportunity to discuss the role depression plays in the lives of far too many Lyme disease patients.

robin williamsThere is growing evidence that Lyme disease can lead to psychiatric symptoms, including anxiety disorders and depression.  There have been cases where chronically ill Lyme disease patients were suicidal. But, whether psychiatric manifestations, including suicidal ideation, are due to an infection or the result of struggling with a debilitating condition is unknown.

One study found that more than 1/3 of patients with chronic neurologic Lyme disease suffered from depression, in addition to fatigue, headaches, poor concentration, lightheadedness, and joint pain.

While depression is not uncommon in patients with chronic illness, it does seem to be more prevalent among patients with Lyme disease, according to Dr. Robert Bransfield, a New Jersey-based psychiatrist, who specializes in treating tick-borne disease infections.

“In my database, depression is the most common psychiatric syndrome associated with late stage Lyme dis­ease,” states Dr. Bransfield in his paper “Lyme Disease, Depression and Suicide.”

Individuals with Lyme disease may also find themselves subject to the same stigma described for depression. The reluctance of some clinicians to acknowledge the existence and severity of any thing more than an acute disease only fuels the stigma.

The national conversation on depression reminds us of the need to remove barriers for Lyme disease patients who are already feeling overwhelmed and stigmatized.

6 Replies to "Lyme disease patients struggle with depression"

  • Dale Ann
    08/18/2015 (11:25 pm)

    I was diagnosed with Lyme disease about 3 weeks ago. I was prescibed amoxil for 10 days and I’m now taking doxycycline since I’m still symptomatic. As the days go on I am feeling better physically with fewer headaches, body aches and neck pain but I am noticing more and more depression, trouble concentrating and focusing. I was diagnosed at the ER since I don’t have a primary care Dr. Should I return to the ER for a follow up? Or can I anticipated these newer symptoms to subside as well?

    • Dr. Daniel Cameron
      08/31/2015 (1:17 am)

      As many as a third of individuals with Lyme disease are ill at one year followup. It is always important to followup with a doctor. You may even suffer from a coinfection. You should also be evaluated to rule out other conditions.

  • Nancy
    03/14/2017 (3:13 am)

    Can depression in patients with Lyme disease be diagnosed with ICD10 code F06.31 for mental health counseling?

    • Dr. Daniel Cameron
      03/14/2017 (6:17 am)

      The 2017 ICD-10-CM Diagnosis Code F06.31 has been introduced for “Mood disorder due to known physiological condition with depressive features.” Our office does not have any experience using the code, yet.

  • Sandra
    03/15/2017 (11:33 pm)

    Can someone please help me? My precious daughter age 20 has late stage Lyme disease. She has been through IV antibiotics and seems to be better physically but mentally she deals with great depression, rage, and concentration. She is taking Abilify and Zoloft. She wants to end her life. She asks if she can please end her life. She spent all of her teen years ill. She can’t drive, go to school or work and is seeking street drugs to manage her depression. I just don’t know how to help her.

    • Dr. Daniel Cameron
      03/16/2017 (11:34 pm)

      It can be difficult to get better. Keep working with her to find a solution.

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