Involuntary Body Movements Due to Lyme Disease Dismissed as Psychosomatic
Lyme disease involuntary movements can occur when the infection affects the nervous system. In some cases, these neurologic symptoms are mistakenly dismissed as psychosomatic or functional disorders.
Several case reports have described patients with abnormal involuntary movements that were later linked to Lyme disease. These movements may include tremors, jerking motions, muscle twitching, or other uncontrolled movements involving the face, arms, or legs.
When Neurologic Lyme Disease Is Misdiagnosed
Because involuntary movements are often associated with psychiatric or functional disorders, clinicians may initially attribute these symptoms to stress, anxiety, or psychosomatic illness.
However, infections affecting the nervous system can produce similar symptoms. Lyme disease is known to cause a wide range of neurologic manifestations, including:
- Tremors
- Muscle twitching
- Myoclonus (sudden muscle jerks)
- Balance problems
- Coordination difficulties
These symptoms may occur when the infection involves the central nervous system, a condition known as neurologic Lyme disease.
Diagnostic Challenges
Patients with unusual neurologic symptoms may undergo extensive testing before Lyme disease is considered. In some cases, normal imaging studies or inconclusive laboratory results can lead physicians to dismiss symptoms as psychosomatic.
This delay in diagnosis may allow the infection to progress and cause additional neurologic complications.
Recognizing Lyme disease as a possible cause of involuntary movements is important, particularly in patients with potential tick exposure or other symptoms consistent with tick-borne infection.
Clinical Perspective
Lyme disease can affect many parts of the nervous system and produce symptoms that resemble other neurologic or psychiatric conditions. Involuntary body movements are an uncommon but documented manifestation.
When Lyme disease is identified as the underlying cause, appropriate antibiotic treatment may lead to improvement or resolution of symptoms.
Clinical Takeaway
Involuntary movements caused by Lyme disease can be mistaken for psychosomatic illness. Considering infectious causes in patients with unexplained neurologic symptoms may help avoid delays in diagnosis and treatment.
My son had involuntary limb movements but not the pain. He also had nightmares and severe acute anxiety. 5 neurologists saw him and no one did an MRI or spinal tap. His neuro exams were all considered normal and we were told it was anxiety even though the attending ER psychiatrist at CHOP told us it was not anxiety causing the movements.He was eventually diagnosis with Lyme, Babesia, Bartonella and mycoplasma. It was 5 years to fully diagnosis and treat him. He missed a significant part of his childhood. Thank you for these podcasts and I hope physicians subscribe and educate themselves on the multiple presentations of tick borne disease.
It is a shame it took so long for your child to get an answer. Thank you for your support of the podcast.
Is your son well after treatment for lyme? He stil has involuntary limb movement? Please I’m desperate my son does does to and he has lyme, mycoplsma and bartonela. Please update, please
Hi Sharri ! Is your son ok? My son has involuntary limb movement from lyme disease. Please tel me what treatment is he taken. Thanks
I have had involuntary movement in my left hand for about 4 years also in my legs I did get tested for lyme in canada but it came back neg. I can not use my left hand at all the doctor gave me pills for parkinson which I do not think i have it all started when i was clearing brush from the side of my driveway when i was done I had a small hole in the top of my hand and it took 6 months for it to heal every time i try to the doctors what happened they do not listen to me I have tried telling 4 doctors what happened but because the lyme test came back neg. they are treating me for every thing else. This has been going on for 4 years. Some times they send back to the same doctor who said their is nothing he can do for me. I have seen a hand doctor and he sent me back to the same doctor who said their is nothing he can do for me” I do not know what else to do.
I wrote the blog to remind doctors to add Lyme disease to a movement disorder in the absence of another cause even if it unlikely.
My 6 year old son presented with myclonous movement disorder 10 days after an absess infection in his tooth that spread all the way up to his eyes. The tooth was pulled but he was put on only 5 days of antibiotics. His hands and feet jerk at nigh now. He grinds his teeth all night and has numbness and prickling in is hands and feet. The spasms don’t stop. Full body and facial tic. This is the second time this has happened after a dental treatment but the last time he responded to antibiotics given to him for an unrelated ear infection after which all is movements, teeth grinding and arching of his back, twitching disapeared. This time no Dr or two neuros I have done vitural appointments with will prescribe antibiotics because his lyme panel came back negiteve. They have no answers. No treatment. Even ER visit. Bloodwork and two eegs normal. I pulled a tick off his head years ago but they won’t believe it is lyme. I have no treatment for my son and his health is declining rapidly with this infection. Please, how can I help my son?
I have suggested patients in my practice to consider an evaluation for PANS and PANDAs. https://danielcameronmd.com/lyme-disease-pandas/
After the Lyme treatment, did the jerking stop? Quite an important omission!
Hi Sharri ! Is your son ok? My son has involuntary limb movement from lyme disease. Please tel me what treatment is he taken. Thanks
I’ll share this with my specialists–the neurologist and the physiatrist who prescribes the medication I must take to (mostly) quell the jerking. It started around 2004. I have no memory of a tick bite, but of course the bullseye rash is often absent.
Without hard-to-obtain medication, jerking starts in my legs and soon spreads to the rest of my body, which jerks 60 times a minute. It’s like a slow-motion seizure that never stops.
My diagnoses to date have been RLS and myoclonus. but they don’t quite fit.
Lynn,
What mediation did you find helpful? I was on IV antibiotics, which cleared my symptoms, but I stated twitching again within a week of going off the IV.
I have had involuntary movements of parts of my body and sometimes my entire body. Looking at me you would think I was having a seizure. I got a tick bite in August 2015, went to my primary doctor and he recognized that I had a bullseye rash and diagnosed Lyme disease. The jerking started about 3 months later. Neurologist diagnosed as myoclonus seizure and another neurologist diagnosed I had PTSD because of some trauma. He basically wouldn’t let me out of his office until I got an appointment with a psychologist. I never went.
I found a Lyme literate medical professional about six months later that has been treating my Lyme and about 6 or so confections. The thing that helps my jerking is something called CalmCP by Neuro Science. I now have had Covid 3 times and the jerking has returned. It’s not all the time, but periodically. I hadn’t taken the CalmCP lately but am back on it and haven’t had anymore jerking. I took a video of me jerking back in 2016 and I think that is what convinced my insurance company to at least cover part of my Lyme specialist’s fees … until I went on Medicare.
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I had a tick bite on my neck but it just made a hard spot. I have been jerking since Wednesday. I think I was bitten Monday in the evening. I am going for a Lime Disease test tomorrow.
The bump may be a reaction to the tick but not Lyme. Nevertheless, I encourage my patients to be most vigilant after a tick bite for 6 weeks even the rash is atypical.