What does a Lyme flare-up feel like? Ask the Lyme Doc.

What does a Lyme flare-up feel like

Lyme disease is a tick-borne illness that can lead to unpredictable disease flare-ups and remissions. The best know flare-up is called a Herxheimer reaction. A Herxheimer reaction was first identified in patients with syphilis and occurs when the body reacts to endotoxin-like products released by the death of bacteria in the body after starting an antibiotic. A flare-up may occur following a trigger or as part of the illness.

When a Lyme disease flare occurs, patients will notice a return of the symptoms they have experienced before or a worsening of existing symptoms. Some patients may also develop new symptoms. A flare-up can come and go and vary in intensity.  What does a Lyme flare-up feel like? The symptoms of a flare-up can include:

  • an increase in fatigue
  • problems with memory and concentration, sometimes referred to as ‘brain fog’
  • extreme sensitivity to bright lights, heat, cold, and noise
  • muscle stiffness
  • mood changes (including irritability)
  • poor quality sleep
  • dizziness
  • numbness or tingling in hands and feet
  • widespread muscle pain
  • blurred vision
  • general body pain

What triggers a flare-up?

One of the best ways to prevent a flare is to determine what might be causing it in the first place. These causes are called triggers. Triggers for Lyme disease vary by person, but they can include:

  • emotional stress (such as a divorce, death in the family, or accidents)
  • physical stress to the body (i.e., surgery, physical harm, concussion)
  • life stress or stressful events
  • infections, colds or viral illnesses
  • exhaustion
  • diets including processed sugars and alcohol
  • menstrual period
  • lack of sleep
  • traveling and/or changes in schedule
  • changes in treatment

How do you prevent a flare-up?

There are ways to help prevent a flare-up but most importantly, patients need to listen to their bodies and identify triggers that set off a flare in symptoms. Following are several ways to prevent a flare-up:

  • Treat your Lyme disease
  • Reduce your stress
  • Get enough rest and sleep
  • Stay away from foods that make you feel worse, including alcohol and processed sugars
  • Learn to pace yourself to avoid doing too much when you are feeling well
  • Keep up your health
  • Stay hydrated
  • Work with your doctor to get your symptoms under control
  • Some people find ‘positive thinking’ helpful
  • Try focusing on the things you can do, rather than those you can’t
  • You might find a mental health provider helpful

Editor’s note. What does a Lyme flare-up feel like?  Ask the Lyme doc sponsored by Dr. Cameron

 

233 Replies to "What does a Lyme flare-up feel like? Ask the Lyme Doc."

  • Suzanne Kettley
    08/14/2024 (8:30 am)
    Reply

    I had a tick bite that caused a bull’s eye rash about 13 years ago, but shortly after I developed breast cancer, then frozen shoulder, then Guillain Barre. I was tested for Lyme but it came back negative, but it was only after I had developed GB, so a few years had gone by. I now have problems with my upper spine and joints. Just wondering whether the bull’s eye rash is proof positive of Lyme and whether at this point I should have it retested and treated.

    • Dr. Daniel Cameron
      08/14/2024 (8:53 am)
      Reply

      A Bull’s eye helps establish my patient had Lyme disease but not whether they still have it. I have patients who have been diagnosed with cancer as they are being worked up for Lyme disease that uncovered during the workup. They are treated for Lyme disease and cancer.

  • Kim
    08/14/2024 (5:05 am)
    Reply

    First, thank you from the bottom of my heart for all the work you’ve done to help people suffering from tick-borne illnesses!! I’m wondering if you’re familiar with the new the AcuDart Tick-Borne Disease Test Panel. There’s no need for a doctor’s order and they send it to Igenex for the actual testing. And it’s quite a bit less expensive than Igenex’s immunoblot test panel (even at its current special pricing). In your opinion how do the two compare?

    • Dr. Daniel Cameron
      08/14/2024 (8:51 am)
      Reply

      Thanks for your encouragement. I am sorry to say I have no experience with test.

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