What does a Lyme flare-up feel like? Ask the Lyme Doc.
Lyme disease is a tick-borne illness that can lead to unpredictable disease flare-ups and remissions. The best know flare-up is called a Herxheimer reaction. A Herxheimer reaction was first identified in patients with syphilis and occurs when the body reacts to endotoxin-like products released by the death of bacteria in the body after starting an antibiotic. A flare-up may occur following a trigger or as part of the illness.
When a Lyme disease flare occurs, patients will notice a return of the symptoms they have experienced before or a worsening of existing symptoms. Some patients may also develop new symptoms. A flare-up can come and go and vary in intensity. What does a Lyme flare-up feel like? The symptoms of a flare-up can include:
- an increase in fatigue
- problems with memory and concentration, sometimes referred to as ‘brain fog’
- extreme sensitivity to bright lights, heat, cold, and noise
- muscle stiffness
- mood changes (including irritability)
- poor quality sleep
- dizziness
- numbness or tingling in hands and feet
- widespread muscle pain
- blurred vision
- general body pain
What triggers a flare-up?
One of the best ways to prevent a flare is to determine what might be causing it in the first place. These causes are called triggers. Triggers for Lyme disease vary by person, but they can include:
- emotional stress (such as a divorce, death in the family, or accidents)
- physical stress to the body (i.e., surgery, physical harm, concussion)
- life stress or stressful events
- infections, colds or viral illnesses
- exhaustion
- diets including processed sugars and alcohol
- menstrual period
- lack of sleep
- traveling and/or changes in schedule
- changes in treatment
How do you prevent a flare-up?
There are ways to help prevent a flare-up but most importantly, patients need to listen to their bodies and identify triggers that set off a flare in symptoms. Following are several ways to prevent a flare-up:
- Treat your Lyme disease
- Reduce your stress
- Get enough rest and sleep
- Stay away from foods that make you feel worse, including alcohol and processed sugars
- Learn to pace yourself to avoid doing too much when you are feeling well
- Keep up your health
- Stay hydrated
- Work with your doctor to get your symptoms under control
- Some people find ‘positive thinking’ helpful
- Try focusing on the things you can do, rather than those you can’t
- You might find a mental health provider helpful
Editor’s note. What does a Lyme flare-up feel like? Ask the Lyme doc sponsored by Dr. Cameron
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Suzanne Kettley
08/14/2024 (8:30 am)
I had a tick bite that caused a bull’s eye rash about 13 years ago, but shortly after I developed breast cancer, then frozen shoulder, then Guillain Barre. I was tested for Lyme but it came back negative, but it was only after I had developed GB, so a few years had gone by. I now have problems with my upper spine and joints. Just wondering whether the bull’s eye rash is proof positive of Lyme and whether at this point I should have it retested and treated.
Dr. Daniel Cameron
08/14/2024 (8:53 am)
A Bull’s eye helps establish my patient had Lyme disease but not whether they still have it. I have patients who have been diagnosed with cancer as they are being worked up for Lyme disease that uncovered during the workup. They are treated for Lyme disease and cancer.
Kim
08/14/2024 (5:05 am)
First, thank you from the bottom of my heart for all the work you’ve done to help people suffering from tick-borne illnesses!! I’m wondering if you’re familiar with the new the AcuDart Tick-Borne Disease Test Panel. There’s no need for a doctor’s order and they send it to Igenex for the actual testing. And it’s quite a bit less expensive than Igenex’s immunoblot test panel (even at its current special pricing). In your opinion how do the two compare?
Dr. Daniel Cameron
08/14/2024 (8:51 am)
Thanks for your encouragement. I am sorry to say I have no experience with test.