Lyme Disease Science Conversations:
Instagram Conversations

Conversations on Instagram with a leading Lyme disease expert, Dr. Daniel Cameron, about the latest discoveries and advancements in Lyme disease and associated illnesses.

Click on photos or videos below to view comments.

Some individuals with Lyme disease who could benefit from treatment are not getting it. Do you know any of these individuals?
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
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Once upon a time, acute illness mattered to Lyme disease patient.
Nowadays, chronic illness matters to Lyme disease patients. They are looking to avoid these chronic illnesses:

1. 1. Lyme encephalopathy1
2. 2. Lyme neuropathy1
3. 3. Neuropsychiatric Lyme disease2
4. 4. Lyme carditis.3
5. 5. Autonomic dysfunction - POTS4
6. 6. PANS5
7. 7. Post Lyme disease6
8. 8. Neuropathic pain7
9. 9. Persistent symptoms after Lyme disease 8
10. 10. “Post Treatment Lyme Disease Syndrome” or “PTLDS”3

Have you ever suffered one of these chronic illnesses?
1. Logigian EL, Kaplan RF, Steere AC. Chronic neurologic manifestations of Lyme disease. N Engl J Med. 1990;323(21):1438-1444.
2. Fallon BA, Nields JA. Lyme disease: a neuropsychiatric illness. Am J Psychiatry. 1994;151(11):1571-1583.
3. Muehlenbachs A, Bollweg BC, Schulz TJ, et al. Cardiac Tropism of Borrelia burgdorferi: An Autopsy Study of Sudden Cardiac Death Associated with Lyme Carditis. Am J Pathol. 2016.
4. Kanjwal K, Karabin B, Kanjwal Y, Grubb BP. Postural orthostatic tachycardia syndrome following Lyme disease. Cardiol J. 2011;18(1):63-66.
5. Sigra S, Hesselmark E, Bejerot S. Treatment of PANDAS and PANS: a systematic review. Neurosci Biobehav Rev. 2018;86:51-65.
6. Krupp LB, Hyman LG, Grimson R, et al. Study and treatment of post Lyme disease (STOP-LD): a randomized double masked clinical trial. Neurology. 2003;60(12):1923-1930.
7. Simons LE. Fear of pain in children and adolescents with neuropathic pain and complex regional pain syndrome. Pain. 2016;157 Suppl 1:S90-97.
8. Klempner MS, Hu LT, Evans J, et al. Two controlled trials of antibiotic treatment in patients with persistent symptoms and a history of Lyme disease. N Engl J Med. 2001;345(2):85-92.
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Have you felt anxious and overwhelmed about COVID-19? How has this affected your Lyme disease?
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
...

Have you been putting off care for Lyme disease during this epidemic?
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
...

Lyme disease was first described in 1977, the year I started medical school.

I treated my first cases of Lyme disease in 1987.

I have learned a lot from the literature and my colleagues.

I am humbled at what we don’t know about Lyme disease.

Will medicine solve Lyme disease in my lifetime?

Do you think medicine can solve Lyme disease in your lifetime?
#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
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Let us pray that actions taken now will stop the spread of COVID-19. .
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This transmission electron microscope image shows SARS-CoV-2, the virus that causes COVID-19, isolated from a patient in the U.S., emerging from the surface of cells cultured in the lab. courtesy NIAID

#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
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There are a growing number of acute and chronic manifestations of Lyme disease and co-infections.

A single-three week course of doxycycline recommendation for Lyme disease appears outdated.

Have you heard any recommendations for Lyme disease that appear outdated? .
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
...

I have Lyme disease patients who have become pregnant without recognizing they suffered from Lyme disease.
A medical exam before pregnancy should include a Lyme disease assessment.
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
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Friends and family may be annoyed with their illness.

A worker can get angry with their coworker.

Teachers can get frustrated with their students.
Spouses can seem distant.

I have Lyme disease patients who feel the stigma of Lyme disease.

Have you felt the stigma of Lyme disease? .
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
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Lyme disease affects all segments of our society—all ages, from children to older adults, and all races and ethnicities.
Lyme disease affects virtually every specialty.

I have patients who have difficulty finding a specialist familiar with Lyme disease.

Have you found it difficult finding a specialist familiar with Lyme disease? .
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
...

In this weeks Inside Lyme Podcast, I discussed the risk for children with COVID-19 I'd like to hear your thoughts. Link in bio. .
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
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Could compassion for Lyme disease patients improve the outcome for Lyme disease patients?

A NPR interview with Dr. Trzecia suggested yes. Check out this segment on NPR. https://n.pr/2WfP06h

Has your doctor been compassionate.
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
...

Do you know anyone who has dismissed Lyme disease if they had another illness or condition?
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
...

Lyme disease can be scary for a child, but with treatment, it can go away.
Was your child scared?
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
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In this weeks Inside Lyme Podcast, I discussed a 24-year-old army officer who was forced out of the military due to Lyme disease. I'd like to hear your thoughts. Link in bio. .
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
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No one is hit harder by Lyme disease than our children.
Do you agree?
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
...

In this weeks Inside Lyme Podcast, I discussed a 6-week old boy with Lyme disease. I'd like to hear your thoughts. Link in bio.
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
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Coping with Lyme disease can be heartbreaking and lonely for a child. It can also be difficult to find other children who truly get it and know what to say or how to listen.

Has your child found it difficult to cope with Lyme disease?
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
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I am an advocate for personalized care for Lyme disease the first time. Did you get the exact care you needed for Lyme disease the first time?
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#lymedisease #chroniclyme
#babesia #tick #Lyme
#fibromyalgia
#children #globallymealliance
#lymediseaseawareness
#lymeconversations
#ILADS #chronicillness
#lymeawarenessmonth
#panspandas #chronicfatigue
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