Lyme Disease Science Conversations:
Facebook Conversations
Conversations on Facebook with a leading Lyme disease expert, Dr. Daniel Cameron, about the latest discoveries and advancements in Lyme disease and associated illnesses.
The evidence for persistent Lyme and promising new treatments
The evidence for persistent Lyme and promising new treatments
www.lymedisease.org
Monica Embers, PhD, of Tulane University, summarizes evidence that suggests that Lyme bacteria can survive long after standard treatment protocols.Ticks seem to gravitate towards me. I have had Lyme twice find ticks on me every summer. I had spotted fever in 2011. It took 2 years to get rid of all my symptoms
Happy Holidays Dr. Cameron I hope all is well with you an your family.🎄🎉
MitoSynergy bioavailable copper is antibacterial, antifungal and antiviral. It kills all pathogens but doesnt harm your beneficial bacteria. After 50 years of lyme symptoms I was finally diagnosed at age 69. MitoSynergy is the only treatment I used. I was symptom free in 4 months. Im 76 now and still symptom free. MitoSynergy is the only patented treatment for lyme. I dont sell it. Im the admin for the Bioavailable Copper group. Please join and read the Featured section for dosing info before you order.
Dr. Cameron and Dr. Horowitz discuss the initial findings from the COVID-19 and Lyme disease survey.
In addition, Dr. Horowitz discusses (39:45) his thoughts on the Omicron variant, the impact COVID has on the immune system and offers treatment options for minimizing side effects.
God bless these two Lyme doctors. Not all heroes wear capes!
Saw the webinar last night- it was great- Dr Cameron shared the results of his survey of about 1000 Lyme patients and their symptoms and experience with COVID and the vaccines or not. Dr Horowitz offered his thoughts and revised protocol for Covid.
I got the moderna vaccine and felt very weak for 2 months and still feel weak🤔 Too scared to get a second shot, as my legs were not only weak I am still tired
Alison Trowbridge very much Worth watching! Hope you are doing well! 🌹 please take survey.
Getting a black screen on YouTube when trying to view the playback 😞
Thank you for sharing. Happy holidays and see you next year.
It would be great if we could use this database to continue to study other Lyme related issues ( e.g., successful drugs, supplements, herbs modalities, etc) If this task is too big for Dr Cameron, it should be assumed by one of the Lyme support groups! It’s such a wonderful resource.
Nichole Weatherby
What are the perceptions and experiences of Lyme disease patients with nonspecific symptoms or no objective manifestations of the disease? This small survey takes a look.
#LDScience
Points of view: Lyme disease patients and physicians - Daniel Cameron, MD, MPH
danielcameronmd.com
This small study explores the frustrations and experiences of patients with Lyme disease as they navigate the health care system.Bad Doctors + Lyme Rage + adrenilyn = security then cops .
Have you ever had to fight to have your pain from Lyme disease acknowledged?
Clinicians often fail to acknowledge the pain caused by long Covid
www.statnews.com
Pain is increasingly being recognized as a key feature of long Covid. The medical establishment has been sluggish in acknowledging it.Generally, pain no matter what the source of them seems to be irrelevant to most doctors me and my wife have seen so far. If you can walk out of their practice on your own feet, then you're fine.
Yes. I had both. Lyme and Covid.
Yes….trying to keep positive through it and using my mushroom tinctures along with NAC, colloidal silver , molecular hydrogen, tumeric , garlic, Japanese knotweed , yoga, salt baths with essential oils, and doing band work to help push the pain. Finding relief in any type of natural anti inflammatory and blood cleaners. Sadly learned through being alone and suffering through many years. Now I’m that nurse that gives hope to my patients and really “listen” to them 💗
I have TBRF and my body feels bruised all over all the time even my scalp when I wash my hair. I have not had covid.
I see many similarities!
Yes for decades from Lyme and coinfections
I have both. Come to find out they are both from central sensitization syndrome.
Amai, yes!! that was an impossible task..
Yes, yes and yes
Yes
Yes.
Try adding morgellons to the mix and see how quickly your physician hands you a psych referral..
Yes and was given the good fibro diagnosis. Teaching myself the natural way to reduce inflammation and but until I can work on it and tweak it, ibuprofen is my bff
Uh, yep.
Absolutely not. They’ll tag you as a drug seeker. Mentioned it once and he jumped down my throat. You won’t be prescribed anything so no point. Only to LLMDs since. I’ve not had Covid.
This may sound harsh but addicts ruined it for everyone else. Lyme patients and people with other chronic pain conditions can’t get the medications we need as a consequence. Narcotics *work* when used appropriately.
REMINDER: Tonight at 8pm EST - I will be speaking with Dr. Horowitz about some of the initial findings of the Lyme and COVID survey!
Join us on Zoom or here, on my Facebook page!
Zoom link: us02web.zoom.us/j/89991137506
I unfortunately was unable to make it. Will there be a recording released of this?
In the bar graph where it shows p w vac doing better than p w lyme, could the more severe patients be raising the lyme bar and not included in the vac group?
Dr. Horowitz will discuss with Dr. Cameron the first findings from the Lyme and COVID-19 survey. Please join them for a scheduled Zoom meeting this Wednesday, December 1, 2021, at 8:00 EST.
Zoom link: us02web.zoom.us/j/89991137506
Is there a recording
AM or PM?
Dr. Horowitz will discuss with Dr. Cameron the first finding from his Lyme and COVID-19 Survey. Please join them for a scheduled Zoom meeting this Wednesday, December 1, 2021, at 8:00 PM EST.
Join Zoom Meeting
us02web.zoom.us/j/89991137506 or try Facebook live.
This looks cool AF.
In this video podcast, Dr. Cameron discusses the case of a 66-year-old man with Bannwarth syndrome with urinary retention in early Lyme disease. #LDScience
Typically, Bannwarth syndrome affects a person’s limbs. In this case, Lyme disease induced sacral radiculitis leading to neurogenic urinary dysfunction.
Authors' Conclude: “Early recognition of this rare presentation associated with Lyme disease and treatment with antibiotics can prevent disease progression and detrimental neurological sequelae.”
Bannwarth syndrome in early disseminated Lyme disease - Daniel Cameron, MD, MPH
danielcameronmd.com
This is a unique case of a 66-year-old man diagnosed with Bannwarth syndrome with urinary retention in early disseminated Lyme disease.Just the symptoms my daughter showed just before she was diagnosed. And yes she travel to Europe a few months earlier. However after treatment she still shows tenderness over the spine and developed small fiber neuropathy.
Wow very interesting doc!
I had European strain of Lyme infection, I went undiagnosed for a year in Canada. Experience all of these symptoms but the pain was unbearable 24/7 no pain killers to help. I tried Everything… just to get some relief…Even after antibiotics treatment I received in Augsburg Germany no help with pain , they suggested spinal cord stimulator…. That did not help me ether. I was living in agony for 5 years…. I preyed for some miracle and believed that there are something or someone to HELP. At the end I talked to Lyme doctor from British Columbia who recommended meth for pain.That was only option left for me..I was talking it since 2013 until recently… I have no more pains at all. I am living my life now again.
Dr. Horowitz will discuss with Dr. Cameron the first finding from his Lyme and COVID-19 Survey. Please join them for a scheduled Zoom meeting this Wednesday, December 1, 2021, at 8:00 PM EST. Link to survey us02web.zoom.us/j/89991137506
So good to see you. I look forward to the info regarding the survey. I’m getting my booster today. Nervous.
Hi Dr.!
Had COVID-19 starting Feb 25, 2020. 17 years post acute tick borne illness. Had all three Moderna vaccines because I never want to feel like I am suffocating for ten months again. Been dealing with Long Haulers symptoms. Improved after vaccines each time. Happy to report that after the vaccines I am testing negatively for Babesiosis for the first time since 2004. If the testing was accurate I really feel it was the mRNA vaccines that got it. Of course I wasn't being studied so I guess I will never know.
Oh....I have a Dr Tina Horowitz in Lowell, MA- Rheumatology. Thank you for all you do. I'm waiting for a realty deal to go through so I can book an appointment next year !!!
Thank you Dr. C
Happy Thanksgiving to you and yours and all the lives you’ve touched in a positive way. You are a good man Dr. C.
Happy Thanksgiving send my love to Joan and the kids
Happy Thanksgiving! I am thankful for your page!
Happy Thanksgiving to you Dr. Cameron, and your lovely Bride Joan!
Happy Thanksgiving to you and your family Dr. Cameron! I am so grateful to you for your care of my family.
Happy Thanksgiving to you, your staff and your families!
Happy Thanksgiving, Dr. Cameron, staff, family. Will always be thankful for you.
Happy Thanksgiving
Happy Thanksgiving to you and yours!🦃🦃🦃
Happy Thanksgiving!
I miss you Dr. Cameron .... HAPPY THANKSGIVING !!
Happy Thanksgiving, Dr Cameron.
Happy Thanksgiving to Youuuuu and Yours Dr. Cameron
dan/family, hope you all had a special one together reminiscing about the years of memories and past loved ones. dan, thanks for all your articles and TREATING/supporting your tick-borne patients from ames, iowa.
Same to you and yours.
You too Dr Cameron.
U2 Thank you!
You too Dr. Daniel Cameron
Happy Thanksgiving to you and your family!
Happy Thanksgiving to you and your loved ones❤️
Happy Thanksgiving to you and your family!
And happy thanksgiving to you and yours as well Dr. C
Happy Thanksgiving to you too!!!
Can Lyme disease and other tick-borne infections effect bone and bone marrow? This review article explores the topic.
"Mechanisms underlying bone pathology in many of these diseases have been under-investigated and further study of this topic is warranted."
The Impact of Tick-Borne Diseases on the Bone
www.mdpi.com
Tick-borne infectious diseases can affect many tissues and organs including bone, one of the most multifunctional structures in the human body. There is a scarcity of data regarding the impact of tick...Thank you, Dr. Cameron, for this article. It is so true. The only way the pain abates is through the Mercy of God. Nothing else works, Lyrica, Plaquenil, Motrin, Aleve, even stronger. The only thing you can do is pray while suffering. It gets so bad that I offer my pain up for someone standing before the Throne of God in judgment at that time. Impossible abyss.
I have osteoarthritis- so it sure does.
Martha !!!
SURE! Probably thrives in there too! 💀
Have a beautiful Thanksgiving Dr. C!💚💚💚
Does surgery improve the clinical outcomes for children with Lyme arthritis? This #insidelyme blog takes a look at findings from a recent study.
High cost of treating Lyme arthritis in children with surgery - Daniel Cameron, MD, MPH
danielcameronmd.com
A study by Tout et al. finds that treating Lyme arthritis in children with surgery does not improve their outcome but does come with a high cost.In this Inside Lyme video podcast, I discuss the case of a 63-year-old woman with STARI and the similarities between this illness and Lyme disease.
STARI was first identified following the bite of a lone star tick.
Dr. Daniel Cameron Could Australia have a similar cousin borrelia species to Stari that does not belong to the Lyme family making Australians sick and why we are not finding it in tests (and why Lyme is denied here by governments) Or could positive “Lyme” tests here in patients from both Australian labs at times snd overseas labs overlap another relapsing fever of other borrelia and why it is positive but they saying it’s false positive to Lyme. Love your thoughts and perhaps do a video on your thoughts on the Australian situation. Cheers
But that’s a lone star tick
The identification of two novel tick-borne viruses — the Heartland virus, first diagnosed in two Missouri farmers in 2012, and Bourbon virus, discovered in 2014 in Kansas — is likely just the “tip of the iceberg."
“There’s no way that those are the only two tick-borne pathogenic viruses out there,” said Wang, a collaborator on the project. “It’s just that people haven’t been looking.”
illinoisnewsroom.org
ST. LOUIS — A pair of hunters drove along a rutted gravel road in the forests west of St. Louis in June, a plume of dust trailing behind them. They hopped out of their SUV, knee-high gaiters cinched...Ça craint ! Sales bestioles.
In this video, I discuss a study which tested clinicians knowledge about various tick species and their ability to identify each correctly.
They have no clue as is the case with the many diseases ticks carry.
Looking forward to my visit next year ~~~
A 62-year-old man with a history of Lyme disease presents to the hospital with: fevers, headaches, fatigue, and a history of night sweats. Within 2 days, the patient's mental status deteriorates rapidly and he tests positive for the #Powassan virus.
Case report: Powassan virus meningoencephalitis - Daniel Cameron, MD, MPH
danielcameronmd.com
As this case report highlights, an infection with the Powassan virus can lead to rapid clinical deterioration and long-term neurologic deficits.🙏 Prayers I was there too!
In this blog/video discussion, I review a study which looked at clinicians ability at correctly identify various tick species. What did the authors find? #LDScience Click here for a 22 minute video discuss with Dr. Cameron on how to identify a tick. www.youtube.com/watch?v=Z6qSYrTo7Zw
Clinicians have difficulty identifying ticks - Daniel Cameron, MD, MPH
danielcameronmd.com
Dr. Cameron discusses findings from a study which examined the proficiency of clinicians at identifying ticks from the Northeastern U.S.Education is your empowerment.
In this woman's case, her symptoms were due to Grave's disease, not Lyme disease. This story highlights the importance of exploring all possible causes for a patient's symptoms. I still followup even if the thyroid issue has resolved to be sure a tick borne issues underlies the illness
Medical mystery: Unexplained jitteriness and weight loss were telling clues
www.inquirer.com
Sherrill Franklin regrets the wasted years and regards her experience as an unfortunate combination of flawed assumptions, missed opportunities, and red herrings.I strongly believe my Hashimoto’s came from having undiagnosed Lyme for so long. That is what thyroid disease is an underlaying ongoing inflammation or rarely a true thyroid condition. I commented on it and you should have seen the people attacking my thoughts, “you’re stupid she has thyroid issues.” This women had Lyme not once but twice where did we think the thyroid issue came from. I have known so many diagnosed with MS, Lupus, thyroid, Sjogren’s and CANCER(that women’s doctor totally believed it was due to her Lyme) then finally got a true Lyme test and ping, Lyme Disease. I truly believe if you catch it right off the bat and treat it properly you do have a fighting chance, I think any autoimmune issue Lyme should be looked at as a possible culprit. I once was healthy before I got bit. Now like many I long to be normal again and doubt that will ever be. Oh and the Hashimoto’s, I don’t know which is worse thyroid or Lyme it’s pure hell.
Thankfully, my Gastroenterologist diagnosed my Grave’s Disease as I was ready to drop between the weight loss and a fib. I was very lucky only to have to wait 2 months to get an appointment with an Endocrinologist who was thorough and conservative in her treatment. She has since retired, but she believed in LD and the co-infections hence the conservative treatment she has monitored me every 3 months which brought great peace of mind. Undoubtedly, though LD is the great imitator . Symptoms to both are similar. Good thyroid health helps fight Lyme. What I learned from these two doctors was invaluable and they have helped me on this long road, but very thankful for their treatment, great bedside manor, concern and knowledge. When treating patients doctors have to be more thorough and run a full thyroid panel with antibodies. The lack of knowledge or should I say lack of continued education in Physcians is very concerning. Dr. Cameron thank you for constantly being on the forefront to educate and help.
Graves’ disease along with Thyrotoxic periodic paralysis and thyroid cancer were only a few of a slew of diagnoses during the decades of my undiagnosed/untreated LD.
Theres always a cause.
Investigators examined frontline and primary care doctors' knowledge and treatment practices for individuals with tick-borne diseases. The results also revealed frustration among doctors treating Lyme disease patients. What factors specifically disturbed doctors?
More in tonight's #LDScience blog.
Physician frustration with Lyme disease patients - Daniel Cameron, MD, MPH
danielcameronmd.com
Frontline and primary care providers express frustration and lack of knowledge in identifying and treating patients with tick-borne diseases.Patients are treated very disrespectfully by many allopathic doctors if we mention Lyme. It is frustrating that physicians are so open to “long haul COVID” immediately yet ostracize patients with Lyme who have persistent symptoms; refusing to treat them at all and implying the symptoms are in their heads.
The worst treatment I’ve had was from 3 ID docs. So disrespectful. Enough already!
Lyme patients have plenty of horror stories to confirm this.
Even in hospitals. They don't have the specialist's.
I got a positive Lyme test along time ago and took it to my pain doctor. He got so mad at me. He said I don't care what your test says you do not have lyme disease... The test was proof..
As frustrated as they are with our knowledge we are equally as frustrated with their lack of knowledge. If I had a penny for every doctor that said hold on let me go consult the CDC guidelines versus clinical judgment I would be one wealthy woman
the ignorant cause medical PTSD
A new study looks at how the COVID-19 pandemic might influence the risk of tick bites and affect patients seeking medical care and the reporting of Lyme disease cases. #LDScience
Increase in tick bites during COVID-19 pandemic - Daniel Cameron, MD, MPH
danielcameronmd.com
Despite an increase in tick exposures, fewer people sought medical care for tick bites and fewer Lyme disease tests were ordered during COVID-19 pandemic.