I’m sorry but if they get benefits or disability, that’s gonna be another smack in our face.
What if doctor's hate the word lyme because it could be the root cause to alot of things like people misdiagnosed they probably make more money off you by saying you have a disorder rather then being blunt about it alot more money involved and then they can put you on a few pills which will make it easier for you to get ssi cause then you have to always come back keeps jobs and businesse
It is very disheartening to know the government is considering giving disability to Covid long haulers who have been sick for less than 12 months now while those of us with Lyme have been disabled for DECADES now and no one cares. I was CDC positive for Lyme, misdiagnosed for years and treated for years by LLMDs and have not been able to recover so I can work. I lost my career and livelihood due to a disease yet the government doesn't care to help people like us. People who contract Covid are more fortunate than us. If you get Covid, at least you'll have a chance to get disability should you not recover. Lymies are, sadly, out of luck.
All this Covid attention and again we Lymies get put on the back burner. It's really frustrating that science has pretty much given up on us. 😢 We get told it's all in your head, multiple wrong diagnoses, insurance funded drs don't listen, hospitals have literally given me fluids and sent me home because I said I was diagnosed with lyme disease - no tests, no images, no nothing. We need to treat diseases with equal studies, equal treatment plans, and equal benefits. This Covid gets this and Lyme gets nada is so wrong in so many ways. Who will fight for us, Dr. Cameron??? Who?
Yes, we've definitely been pushing for answers, benefits, etc for decades. Still they look the other way.
Is PTLDS essentially like covid long haulers? Sequela, or complications from damage left behind after you get really sick?
Yes I have! It's terrible and frightening. I do see a bright light with the Covid-19 long hauler attention. If Covid-19 long haulers are recognized in so many patients without clear diagnostic markers it may be more difficult for the medical community and other stake holders to dismiss chronic Lyme. The community would need strong advocates in addition but more data on Covid-19 long haulers could have some benefits. Thank you for your hard work for all chronic Lyme patients Dr. Cameron
Lyme is not recognised in Australia yet it’s here where I contracted it 11 years ago, a long haul for sure 😖