Several studies indicate that Lyme disease can result in a persistent infection, causing chronic symptoms that may require treatment with extended courses of antibiotics. #LDScience... See MoreSee Less
I have read that some immunocompromised individuals have needed a second vaccine to bump up their immunity. I don't know if that is the case for Lyme disease.
The Survey asks for a more in-depth explanation for a few questions.
What do you recommend for teenage boys as far as the vaccine?
My first Moderna, I felt better than I had in years. Lasted a few days.
Second shot…well, it was a different reaction. 😂🤷🏼♀️
Please do more live fb! 💚
I plan on taking the survey, and hope that there will be a section for a more in-depth explanation as to why I am not getting, or contemplating getting, any further vaccines of any nature, per my LLMD/Immunologist's recommendation.
I took the survey. The Flu vaccine activated the Lyme that I didn't know I had 13 years ago. In 10 days I was in a wheelchair and it took me 4 months to be able to walk again. I'm concerned the Covid vaccine will have the same effect so I have not gotten it. So many unknown factors.
I had my second Pfizer shot and my Lyme has gotten better. 🥰💚
I had Covid in March 2020. Landed in the hospital for 3 days. The Covid reactivated my Bartonella that had been in remission for almost 5 years. I went down hill terribly over the rest of the year. After my second Moderna shot I began rapidly improving. Within about 5 days I felt better than I have in years. Almost 3 months later and still doing well. In my case, I think it revved up my immune system enough to beat Bart back down.
Had AZ in jan, no reaction at all, 2nd one in April made me ill for about 8 weeks, but now fine again. Wasn't a typical relapse though, mainly daily headache & no energy, on the worst day could hardly stand up. Still went to work most of the time, and all the well people were off for several days after it anyway. Rather would risk that than suffocating or long Covid any day
2nd moderna shot and my Lyme got worse. I have muscle aches before but almost better and then shot and my Lyme aches got worse
Shared in my lyme groups....
Dr. Cameron,, you are the greatest doctor I have ever met... Your dedication to Lyme disease and the Research you do is Outstanding..... YOU ARE A BLESSING !!!! I miss you ....
I tested with antibodies for COVID and I had no idea I was even exposed
Any diff between J&J and the others since J&J is traditional ? And the others are not? In terms of causing Lyme flare to be worse ? Or symptoms?
Survey stopped working. I was finished with first part, and would not take it on summit. ??? Dont think I can finish..Won't even load now, can't get in..
Dr. C consider asking how many with lyme who got the vaccine actually got a boost and felt better afterwards. This is happening in some cases!
I'm Slovakian woman living in Greece here in one hospital do Therapy with T Lymfocyt from people whose had Covid sounds very good because they said those T Lemfocites are responsible for figh the vírus (sorry for English) not so antibodies
Hey Dr C! Submitted the survey last week.
My husband has persistent Lyme and had the J&J. It did cause a really bad Lyme flare, but after about 3 days, he felt ok.
What about those of us that already had the covid but have Lyme ?? Do you still recommend it ?? I have high antibodies
I have had vision changes- a few listed above, but also extremely dry eyes
I have explained my vision issues to many Opthamologists and Neurologists. Due to the CDC’s criteria of Lyme they do not understand or can comprehend what some of us experience and often times completely dismiss these symptoms.
Thank you! I have a eye exam on Aug 3rd I will bring this to Dr Kong.
Yes. And I also agree with Doreen Crusoe. I found only one ophthalmologist who "got it" before this study came out and she unfortunately retired. A sad state of affairs.
I lost sight in one Eye for 8 months! The neurologist s from stony brook were calling me to tell me I had MS, but when I started to lose my sight, I was. Taking antibiotics for something else , a d my eye cleared up !
I seriously need help i don't know whats going on with me but I have so many symptoms of chronic lymes disease 😔 i tested positive for lymes in 2013 and was treated for 2 weeks with doxycycline and January of this year so many things hit me... so many people are telling me 2 weeks isn't enough to be treated.... I'm so lost and need to get back to myself
I'm so sorry for this man and his family. I was diagnosed at the same time I was diagnosed with Lyme carditis and hospitalized. My doctor (in NH) said the same antibiotic treating the Lyme (Ceftriaxone) would work on babesia. It didn't and I went untreated for a full year. It was horrible, unnecessary and maddening. Thank you for raising awareness.
The last neurologist told me there was no such thing as chronic Lyme or co-infections, and if I thought I had Lyme, he would prescribe ABX. According to him, it was all in my head, I was obese and diabetic. Take more insulin and I would be fine. All this without even putting me up on the exam table, yet, he billed the insurance for a "full exam". I walked out as I was telling him what he could do with himself and his lack of medical knowledge.
Yes, me. When I told my PCP that I had been bitten she ordered a full tick panel. I was treated immediately. I had gone to Urgent Care first and the "doctor" there said that unless the tick was attached for at least 24 hours there was no possibility that I had been infected. I told him that he should not have a license to practice medicine and left. Basically my doctor saved my life. He said, "You live in CT, ground zero for tick borne disease. Test and treat".
Also I wonder if this man still had his spleen. I was told by my doctor if you have your spleen it isn't as dangerous.
Yes, treated with two Months of Mepron. Made a world of difference.
I just dont understand why so many Dr will not acknowledge Lyme or co infections and have no clue as to treatment..why should this disease be different from others
Gosh I wonder if the docs ever looked for anaplasmosis? The liver involvement is more likely with that bacterium.
Yup, my mom had it. Thankfully she was treated in time
Yes i have babesia since my childhood
Japanese knotweed plant is effective against babesia
I was sick for 22 years. Forced antidepressants...created insecurities about my sanity. It took 21 years for my family doctor I had my whole life to test me...his findings I only had 3 reactors and did not have Lyme. Never spoke of it again. Found out a year later I was supposed to be tested again. Guess what old and new reactors.
Had 3 rounds of Doxy...and now a year from the doxy and I am almost an invalent...These doctors that insurance covers don't give a flying turd and the best specialist out there cost $400 out of pocket. I guess you could say my outlook on life is basically waiting for it to end.
I was diagnosed with PTSD. The overwhelming fear and anxiety of ultimate suffering and begging for help, yet being denied, disbelieved, and told you have depression and nothing more...every time I go to a doctor, I need anxiety medications now and go in prepared to fight a battle. 🥲
Absolutely. Major PTSD.
Right on, Dr Cameron!
Or anything else
so funny, coming in behind covid patients now.
Thank you, Dr. Cameron!
the tick was in my leg 18 months at least till I was even aware it was a tick
can you fix me?
I cant take it anymore, I would rather die
I suffer from cronic lyme disease, I think I have ptsd too, so many other problems, heart surgery at age 2 a stroke my ears ring constantlt, my leg is half numb, 2 fucked up vertebrae, l1 and l2
It is pretty sad how the CDC has completely dismissed Lyme, in doing so the majority of doctors are uneducated and not doing their due diligence in helping their patients.
This man was lucky, he received help by the right doctor at the right time.
The Medical community needs to be re-educated on Lyme. I am Amazed at all we hear about Covid, yet Lyme is treated like it is non existent and how could you dare think you have it, though you have 10 or so symptoms describing your illness.
"A recently published 12-year study of babesiosis among U.S. Medicare beneficiaries reported “substantially increasing babesiosis diagnosis trends” particularly in endemic states and “expansion of babesiosis infections in other states.” ... See MoreSee Less
After getting my lyme diagnosis and making the big mistake of seeing a IDSA doc: the ISDA dr absolutely refused to test me for this or look into it. Kept trying to blame my symptoms on PTLDS or something else RA related because I was given 10 days of doxy for lyme that I had 25 years or longer. All these coinfections are ignored and shoved under the table just like lyme. I have it.
Babesia duncani, worse than B microti and harder to treat, ignored as usual.
Now Wormser is pushing the long transmission time BS for Babesia too. No data backs that up.
this is such irresponsible reporting leaving out the other strains of babesiosis and how if it doesn’t kill you you might wish you were dead from the debilitating life changing symptoms. 10 years after cdc guidelines treatment i am still disabled from babesiosis duncani. come interview me, Washington Post. i’ll tell the much more common living dead story.
Diagnosed with this on top on Lymes. It was a hell
Of a fight and one I’m not sure ( some days) is over. Anyways, I remember my Lymes doctor told me if you have this, and give blood…you can kill the person. He also said the Red Cross is going to ( or is already, I can’t remember) test every donors blood for Babesiosis.
My question is if this is true, can you donate blood after you’re cured? Thank you.
Read this a few weeks ago... Burns me.. Not usually reported because doctors are busy. Hmm Friday night when I fail to give you the correct amount of money that is in your payment ... dont assume it will be the right amount because I was busy. I mean really... And what really burns me is... he was diagnosed for a kidney infection... why wasnt he tested for a tick disease right away? As if it was the patients fault he didnt get treated correctly right away... As long as this disease has been around... doctors should be away of the symtoms by now... especially in the most prevalent areas... Also, deer ticks are NOT the only ticks to carry Babesiosis... but everyone still says it... Surreal
#Oregon is rich in Babesiosis...
come n get it...
Adult-onset Still’s disease (AOSD) is an autoimmune condition which can cause symptoms similar to those seen with Lyme disease. In fact, several case reports have shown that Lyme disease can mimic A...
In a new study, researchers suggest the Lyme disease bacterium (Borrelia burgdorferi) may be one of several infectious pathogens capable of triggering sarcoidosis.
Case report: A 21-year-old man was admitted to the hospital with headaches, a droopy left eyelid, swelling and redness of both legs, a stinging pain behind his sternum, fatigue, weight loss, loss of appetite, thirst and nycturia (excessive urination). ... See MoreSee Less
Sarcoidosis is an inflammatory disease that affects multiple organs in the body, typically the lungs and lymph glands. The exact cause of sarcoidosis is unknown. But some researchers believe it may be...
Yes it does i lot of people i know like myself have what i call a side Diseases meaning you get the lyme but then you get another surprise that you don’t know that you’re going to get and that you don’t want. I know some people have lyme and ms, lyme and Lupus and myself lyme and mast cell.
Before I was diagnosed with neuro Lyme and Bartonella, the neurologist I was seeing thought I had either MS or Sarcoidosis. Later, when I figured out I got my Lyme in Australia, I found a paper by an Australian Lyme aware Dermatologist (since sanctioned by the gov’t health system for daring to diagnose and treat a disease they deny exists there) that described how Australian patients had lots of cranial nerve involvement and most resembled MS or Sarcoidosis.
My husband had "classic" Lyme ( Bells palsy, large swollen knee, migratory joint pain etc.). Around the same time he developed progressive anemia, high inflammatory markers, Hypercalcemia and Kidney failure. He was diagnosed by biopsy with Renal Sarcoidosis. He had had two and a half months treatment for Lyme with an excellent LLMD, but had to stop because of poor kidney function. He was put on high dose steroids to try and avoid dialysis and has done extremely well, with no recurrence of Lyme symptoms, thankfully.
I was diagnosed with sarcoidosis within a year of my bullseye rash appearing but took no treatment for it. I was told after a CAT scan that I had enlarged lymph nodes all throughout torso. They disappeared later on after I treated Lyme.
I was also diagnosed with sarcoidosis and chronic Lyme/bartonella. I believe an ACE that is WNL is under 40 where mine was almost 90. That number has gone down with treatment but remains elevated.
I was diagnosed with Lyme’s Disease in 2006 and Neurosarcoidosis
in 2018. A long rough road!
Thank you !! I went to see Dr Goldberg at Lahey hosp in Burlington, MA and he did look at all your information- very impressed*** I will call your office tomorrow to submit my health insurance info. Tufts Ins.
calling now to set up first appointment.
I believe that Lyme triggers other diseases rather than imitating as is often stated.
I will get there I did not know you were cash only!!!
There was also research published back in 1992 by Hua, Lee and Wang at the Naval General Hospital in Beijing linking Sarcoidosis and Borrelia.
Glad to see this synopsis. Definitely a step in the right direction. But one of the many things that is troublesome for example is the picture of a trail and hiking, this is truly a misnomer to how many people have contracted this horrible disease. I was never hiking, I was actually on the Beach and playing sports on a lawn.
The Medical community truly needs to be schooled extensively about all the factors of these diseases and how they are contracted, that two weeks of antibiotics are not enough, or you may never see a rash and that LD is truly the great imitator.
It is so devastating. No words can describe what it is like to watch someone you love suffer with this. So tired of "see a cardiologist..see a neurologist..see a psychiatrist..oh wait a minute you need to see an oncologist." 💔
After 30 years of chronic Lyme and now 73 years old, the last few years have show high blood pressure on occasion. After taking multiple cocktails my pressure remained around 125-129/80. Never varied. Now I am plagued with erratic
Blood pressure especially while herxing. I have fibromyalgia and muscular/joint pain syndromes.
My b/p is erratic and if in terrific pain, my pressure rises and is concerning. I’m already on amlotopine 50 mg for approx 3 years ; it doesn’t seem to control while in a pain or high herxing period. Is this normal?
We have also endured multiple family and household tragedies which included the loss of our entire apartment by fire. My husband had had multiple almost fatal lung ruptures and also suffers from chronic heart disease which requires constant attention. Am I in serious permanent danger by not showing up at the ER every time my BP rises up to 170s/102. I split the amlotopine in half and took that extra half in addition to an anti anxiety and pain pill. ThIS has been approved by my NY LLMD with the exception of today’s extra half pill of the BP MED.
Why isn't there a vaccine for Lyme???
If multiple companies and countries came up with vaccines for the greatest pandemic in such short time then why not for Lyme?
“I want my kids to grow up riding horses and bikes and enjoying themselves every day and not have to spend every day with us going over them with a magnifying glass to make sure they don’t have any ticks on their body...." (Alec Baldwin) ... See MoreSee Less