I’m glad the article is in Runners World because I think it has a large distribution. I only learned long after I was infected that I had it and I didn’t learn how small the nymphs were until this year. Perhaps more illustrations of that would help.
I can’t run anyway, but as my Lyme disease has worsened, I’ve developed an inability to do much outside, especially walk in grass or under trees.
One correction though, a coating of Permethrin does not last through 70 washings on clothing unless it is pre-treated clothing from Insect Shield or a similar company. One coating or spraying of Permethrin on clothing lasts up to 6 washings. I wouldn't want people to think they were protected when they weren't.
and remember folks, permethrin is toxic to cats
Let me preface this with a caveat, when you have Lyme disease for an extended period of time (many years), your perception of the world changes. Beautiful meadows no longer look romantic. They look like tick heaven. Picturesque hiking trails are no longer inviting. They feel ominous. Walking under tree cover can feel scary. Piles of leaves are no longer for jumping into or on. Finding a tick in your home, on your family or on you can trigger a “panic attack” - basically Lyme PTSD. These are some of my tick prevention strategies in addition to those mentioned in the article: TICK PREVENTION: 1) Treat your yard 2) Keep deer and nice out of your yard. 3) Keep your grass short, shrubs trimmed with no leaf debris. 4) Spray permethrin for clothing including shoes and hats. 5) Light colored clothing 6) Pets - my dog is white with a crew cut meaning I can see immediately anything that may be on him. He is also primarily indoors with supervised jaunts outside for exercise. 7) Pets take Bravecta or an alternative tick prevention. 8)No walking in long grass, grass near water (remember ticks need water, low humidity is their enemy) or under low hanging branches. 9) There are places which you will just not be able to go. (Example: While on vacation, we bicycled on a paved road to a nature preserve. When we arrived, the docent was very informative. She indicated that they had 8 different species of ticks and that she had never walked on the unpaved logging road to the water without returning with at least one tick. Cue anxiety. As we were walking across the short grass, my husband reached down to brush something from his sock. I caught up and inquired as to what was on his sock. Pause...response: a tick. This is when you check yourself, mount your bicycle and fly back down the paved road at a speed impossible under normal conditions. When your spouse catches up with you, you inform him “I will never go there ever again.” Your friends and family who have not had Lyme disease will likely think you are over-reacting because they were not robbed of years of their life by Lyme or the associated co-infections. They did not spend additional years rehabilitating both body and mind to try to get back to being a percentage of your “pre-Lyme” self. Educate them, but accept your new normal. Remember, all experiences, enrich our viewpoint and increase our vision. Lyme robs you of certain things and gifts you with compassion and empathy...that is the nature of difficult life experiences. This post is dedicated to Dr. Cameron, without his help, my ability to write and laugh might have been lost forever.
The CDC reports 4 young children were infected with Lyme disease at a wilderness camp in the south. Ticks collected at the camp, located in North Carolina, had a B. burgdorferi infection prevalence of...
A 46-year-old woman developed blurred vision, including impaired color vision, that worsened over 3 weeks. She also had tingling/numbness of both legs, nausea, weakness, dizziness, and visual hallucinations. Was Lyme disease the cause?
I am 45 and was diagnosed with Lyme, RMSF, Erhlichiosis and anaplasmosis and I had all of that. I still get blurry vision and eye pain and am sick 2 years later.
Absolutely believe this it happened to me twice. The first time I had blurry vision & severe migraines that caused visual disturbances. The second time my vision was just blurry. Once I treated with antibiotics the problems would resolve. I have had 2 separate rashes & the first time I was diagnosed with Lyme was the late 80’s and was treated by a physician who was familiar with Lyme because he not only contracted it but had a home in NH and was smart enough to have me tested back then.
45 years old, been fighting for over 30 years - had/all of these symptoms regularly. Currently add in the ringing in the ears and dark spots in vision to this list - it’s been driving me 🤪.
Was told by ophthalmologist twice , that I had diabetes. Had blood work done twice and no diabetes ,, But over a decade with lyme and vision problems,
Yup, my vision has just cleared enough to thread a darning needle.
My eyes are terribly uncomfortable all the time now. Pain, itchy, watery, crusty (sorry yucky) and stingy.
I had all of these except the color vision issue
My eyesight changes daily.
Yup this happens to me also
Vision problems were one of my first symptoms. The ophthalmologist saw in my chart that I had been diagnosed with RA just a few months prior. He LATER told me he thought this was suspicious as I was only 40 ( at the time). He sent me to Wills Eye and told that doctor ( but not me) that he suspected MS. That doctor looked for it and didn’t think so. My ophthalmologist only told me this after I returned for a visit a few years later- using a cane. I told him about all the crazy symptoms. That’s when he told me this story.
This is Cooper-- the vision issues scare us the most.
I've had all those symptoms except for the impaired color vision. That's what can happen when Lyme or any of the co-infections get into the brain and nervous system.
Yes! Lyme disrupted my vision. Floaters...blurry...
Lyme disease symptoms may persist long term in some people due to antigenic variation, a process whereby pathogens alter their proteins, camouflaging themselves, to avoid detection by the immune syste...
I was 31 years old and an expert on Dementia and my mother was 55 years old. I am now 66 and an expert in Lyme disease and my mother is 90. She lives in a long-term care facility. Thank God she does not suffer from Dementia and is independent. She is under lockdown in Minnesota. My brothers in Minnesota are looking out for her. I wrote about my concern with COVID-19 for long term care facilities in an Inside Lyme podcast. danielcameronmd.com/covid-19-podcast-34-die-nursing-facility/ NBCNews raised a similar concern. #LymeConversations#COVID-19 #coronavirus... See MoreSee Less
We’ve had outbreaks in nursing homes in AR too. I hope all of nursing home staff are wearing masks to protect residents. Prayers for your mom and all nursing home residents 🙏
I recently helped my son renovate an area in his lower level, a nice little apartment, for my ninety year old mother here in Minnesota. She had been going back and forth from her home in a small town in Nebraska. Her (older) friends in a care facility got the virus. They had to send everyone to different facilities.
Our families weigh heavily on our hearts and minds. Speak Psalm 91 over them. Best wishes to you and staff. 😷🙏😊
If you were me, would you think the risk of getting covid-19 by going to medical clinic for lyme treatments outweighs the need to treat lyme? My CD57 is 25, so I have almost no immunity to fight. I know you can’t give me direct medical advice here, but can you say what you would do if you were in this predicament?
The dementia Lyme thing is hard to watch a parent go thru I was there and pulled out reversed loosing my mind in my 50s .
Kinda OT, but in MA, they were removing regular elderly folks from their nursing home so they could turn the facility into a COVID facility! Can you imagine?
Yes, we have one here n The Woodlands Texas that is now on lock down as it has multiple cases of the virus. Very sad.
Just now am seeking resources/info about caring for someone with dementia. Do you have any suggestions?
I have/had Lyme. (Re treated it over last summer/fall and still deal w breathing issues). I just finished with 10 days of covid19 fever. I did have a few somewhat scary days coughing and painful breathing but my oxygen sat was good and doc reassured me. Thank Gd i am better now.
I have to assume I’m at high risk for severe illness or death. My immune system is sluggish and I have the blood test results to prove it. I get seasonal viruses often and take longer to clear them than anyone else in my house. I’m paranoid about COVID-19 and have been wearing a mask outside since about March 4th.
Any underlying health condition that compromises the immune system poses a risk for the virus. Lyme disease and co-infections certainly fit that description. Lyme patients are at risk for all kinds of illness/infections because of a compromised immune system.
Wondering how many with undiagnosed Lyme Disease are at high risk because of compromised immune function.Wondeting thete are dots to connect if it is true about: 1. Ticks more attracted to people with A type blood 2. Hospitalized Coronavirus patients are statistically higher Type A blood types 3. Plaquenil is prescribed to lessen inflammation in patients with chronic LD and Lupus by down regulating pro-inflammatory cytokines. 4. Pro-inflammatory cytokines being implicated in severe cases of respiratory failure in COVID-19 patients. Particularly, with some young otherwise healthy people succombing to this disease, could they be undiagnosed with LD. And even though COVID-19 incidence maps or immature it is interesting that there is already coincidence with Lyme Endemic regions. More testing may provide a better picture, however I suspect incidence maps of the most serious cases would be revealing to support connections between LD immune dysfunction and COVID-19 if one exists.
i pray that NY residents stop behaving in such a selfish manner and stay home. I lost my stepfather to this horrible virus this morning. He died alone and scared. Hydroxycloroquine is not a cure for this disease. It was given to him but discontinued due to drug induced arrrhthymias . He went into cardiac arrest this morning.
I pray with you Dr Cameron. Heavenly Father hear our prayers. We ask you in your sons name. Amen
Amen. Amen. Amen.
NY now has border restrictions. Essential workers only may cross. Yet today I saw an elusive Cessna over my house in VT.....wonder where that came from?
Yes I agree
Prayers of wisdom, compassion and protection
Msine is being overrun by out of staters. They’re ticks, everywhere, and they won’t self quarantine! Why are people so thoughtless?
We need to come see when this all dies down
My dearest Doctor. Prayers dont work, ask all the children who are daily severely physically, mentally and sexually abused!
I sure wish America starting taking action and planning in early January!
My concerns are the inability to access healthcare indefinitely for non covid reasons. Many many offices are closed or telemedicine only. People are turned away from urgent cares. Treatments are cancelled without a plan in place to deal with the ramifications. Specialist offices are claiming to be open yet diverting everyone to the ER for conditions that they manage. The highest risk patients are being forced into the highest risk areas (ER’s) due to sudden extreme disruption or cessation of healthcare with no plan. Healthcare was deemed an essential service yet all/most outpatient services are not accessible. Meanwhile Walmart’s and Petco remain open as usual. As does takeout ????
1 yr. old Baby diagnosed with Coronavirus died this morning in Illinois. Unsure if death was from CV at this time.
A teenager died in Southern California of corona virus. Age 17 and now a teenager age 16 just died in Paris France.
All I can say is..now some of the population knows a sliver of what us Lyme patients go through. Inadequate testing and treatment. And the flu like symptoms, chest pain, shortness of breath, nausea and like your body is so heavy you can barely get to the bathroom? WE LIVE THAT EVERY DAY FOR YEARS. Plus it doesn't just go away. We can put it into remission but it will still be lurking. Meanwhile you the covid 19 patient had a hellacious 2 to 3 weeks. But at least yours won't come back. Sincerely, a little miffed today
Will there be a second wave of infections once this first one is over? Will a vaccine be safe for Lyme patients to take? How many years does it take for a new disease to become endemic?
I had terrible & severe body aches, chills, fatigue, sore throat, nausea, loss of appetite, out of breath-ness, hot feeling inside my head and on my face but in fact my temperature was between 96F-98F. So, no cough or fever. But since I had come back from Boston right after their first outbreak and spent the weekend with someone who was in the Biogen meeting, I was tested for Covid19 here in Canada. I went into self-isolation. My test took 11 days to come back and it was negative. Yay! It must have been the flu. I kept thinking that since I have Lyme and I usually don’t get any symptoms from cold or flu, maybe this was a good sign that my immune system was fighting a virus for a change. I have no reason not to believe my Covid19 swab result.
I believe I was a false negative. I was sick with shortness of breath , dry cough and wheezing for 14 days. I was not tested until day 12 due to the lack of testing availability. I was given steroids and nebulizer treatments round the clock for days until finally admitted to a NYC hospital for respiratory issues and tested. At this time I had been on zithromax for 3 days and 400 mg of plaquenil per day since I take this drug on a regular basis. I believe delayed testing and possibly the fact that I had been on both hydroxycloroquine and zithromax led me to test negative. My labs at through hospital, according to the docs appeared typical for covid 19. Low lymphocytes(500) very high neutrophils.
After experiencing the unreliability and down right lies of the majority of the medical system, I question the whole mainstream narrative in regards to this virus. So many inconsistencies and contradictions. I feel there is a huge agenda going on worldwide here.
It’s just testing for the virus itself, right, and not antibodies? I’m frequently false negative on antibody tests as my immune system is suppressed. (I even tested negative on a parasite antibody test, even though I KNOW I had them.)
Well, I have a hard time believing something just bc NPR said they talked to four people. And, we aren’t using the same tests and our tests are still evolving. There is too much we don’t know. 🙁
It is truely ashame what CDC has done...or should I say, not done for us Lyme patients. Have lost faith in them also. Extremely, concerned on all levels. Stay positive follow Lyme Warriors and keep that "Vagus Nerve" working. 💚😊💚
Are there any Lyme Patients on here that have tested possitive? Can someone plz reach out to me? Private message if you want
I had a “cold” in January that started with a dry cough(two weeks), then I couldn’t smell. This was long before that symptom became known. Dr. said I had lower lung congestion. I’m good now in Oregon—was in Maine but a lot of other people had that “cold”. Makes me wonder.
Doc. What are your concerns? I’ve been waiting to get tested basically because I’m so used to hearing the “All in your head” thing. But, Seems like too many symptoms to ignore at this point.
My fear is contracting the virus.
welcome to it- i bet symptoms pop up for patients on down the road
I actually don’t believe a word that the CDC says. I can’t help it, they are too untrustworthy.
A new today that will give results in 15 minutes was approved by CDC today. Im glad for our country, and I hope it’s valid and reliable. Too bad after 20 years Lyme test is still 50-50. I guess we can do a lot as a country when we want to. Hopefully, all this attention to viruses and testing will help with Lyme and co- infection testing too.
OMG 😳 I understand these things are ultimately man made, but we rushed to use them because of the number predictions. Now what?
I’m concerned that even with a vaccine, many who are immuno compromised will not have effective responses to have the vaccine function. Because of Lyme and high risk MGUS (hopefully not transitioned—has to postpone week at myeloma institute because of covid), I’ve already been told no immunizations at this point. The tetanus and 2 other bug vaccine I received two years ago has no real immune memory in me. I’m concerned.
There is no test that works correctly once you have lyme. We’ve already been told that we have lupus and mono and everything else and he has none of those things
Yup. The same. I personally don't trust anything they do!
This article is loaded!
People please look at the history of vaccine injuries & who exactly makes money from those patents. Try our friendly CDC & Bill Gates foundation sued by the govt of India for massive vaccine injuries. Please please look at Del Bigtree the Highwire interview with Robert Kenndy Jr. On vaccine safety isses
It’s already been documented these test are 50/50. There’s no accurate testing for covid-19
What’s the difference between Hydrochloroquine and hydroxychloroquine?
A new survey finds that residents in Canada are reluctant to use tick bite prevention measures and have a "low level of knowledge about Lyme disease." More in tonight's #LDScience blog. #Lymeconversations ... See MoreSee Less
Lack of knowledge doesn’t surprise me given the depth and breadth of Lyme denial by Canadian health officials. I’ve read too many stories of people with blatant Lyme symptoms and tick bite history denied testing by doctors because “there’s no Lyme in Canada.”
I will be discussing the cases of 2 women who returned to South Korea after visiting the U.S. and were believed to be suffering from malaria. Instead, they were infected with Babesia. One woman died. More in today's #Lymepodcast#LymeConversations... See MoreSee Less
It has reactivated my Lyme causing my symptoms of ME/CFS & MS to emerge my Lyme is in central nervous system
I have had Lyme for more than 23 years. Somehow I‘m not worry about the new Virus about me. I’m very worry about the others. My body totally reacts differently to the new diseases.
My son and I have both been fighting Lyme, bartonella and babesia for the last 4 years (although we were sick for years longer.) We both have compromised immune systems, so we have been taking precautions ever since we were first diagnosed. We stay away from crowds, especially if there are a lot of little kids present. The one thing we really enjoyed was going to a little restaurant that mainly had a customer base of seniors. Most of the time, there are very few people in the restaurant. Now we aren't even doing that. My son is supposed to go to physical therapy and I have some routine tests I'm supposed to take, but we don't want to go near any clinic or hospital if we can help it. So those things will have to wait. Our LLMD has advised us not to get the annual flu vaccine because our immune systems are so low. I don't know about this new coronavirus, though. I will have to ask our LLMD about the risk factors for that one once they actually come out with a vaccine.
That’s my same question. Was diagnosed 6 months ago with Lyme and Bart...my major concern is because Im a dental profession which is the # risk factor of being exposed and infected. My office is still open and care for patients oral care but I would rather stay away if I can afford to financially. Is my immune system capable of fighting off this virus?
Besides the normal, rest and try to eat right.. my go to is, as always, prayer and faith in the ONE that holds the universe. I hope everyone is well.
Vitamin C, daily multi, Zinc, Garlic. Gargling throat every day. Manuka honey lozenge 1x per day. Arm & Hammer Simply Saline to keep the nostrils clean. Washing my hands at every turn. Social distancing. Working from home. Prayers for everyone here.
I'm in quaratine anyway. Lungs are burning, like needles in it and is if someone sits on my chest. I haven't had this kind of problems since about 8 years (when I got lyme & co, mycoplasma, chl.pneum.). So I guess my son brought the virus home. But Finland doesn't test "heathy" people. Mostly just MD-s and nurses. So there is a little chance I get tested. :/
Dr Cameron there are 46 cases here in Wisconsin, none so far in my hometown. I was just breaking out of my Lyme bubble & now I feel I need to do the same for this emergency. To keep my balance I meditate/pray and do my best at positivity. I am grateful for my training in animal Disaster to keep panic at bay. ☮️🐾
Have had Lyme and coinfections for years undiagnosed. Have Hashimotos and CIRS too. I no longer get fevers and am afraid of what Coronavirus will do to me.
Some of us have more than just “Lyme disease”
I have 10 coinfections, severe RA, Hashi’s, adrenal issues, and other health issues, so I’ve stayed home. I’m dealing with flu right now, even though I’ve stayed home. I don’t plan to take chances.
I’m having a hard time keeping my 19 yr old son home. He just went to hang out w the boys. I told him don’t touch anything when you get home and straight to the shower. No shoes in the house. These kids literally think this is spring break and not taking this serious .
I’m praying that we all stay healthy. It’s terrifying to think this could spiral any one of us into an unthinkable situation.
Scary!! And not only that here but our school well my younger daughters school now has cases of whooping cough! Glad they are closed!
Making fire cider (apple cider vinegar with loads of immune boosting ingredients to soak in it for 2-4 weeks such as horseradish, garlic, ginger, peppercorns, turmeric, onion, lemon, orange, jalapeño, etc), taking high potency Vit C, drinking lots of water. 🤷🏻♀️
I heard that some doctors are trying to use chloroquine to treat Covid19 .....which has been used to treat some Lyme co-infections. What does chloroquine do to the virus to make it useful....and how is it similar to the way it attacks co-infections?
Scared because I've has a mid-line in since Jan 7 and it's scheduled to be removed the 19th. After that I'm nervous.
Taking 4000mg of vit C, 400 mg of magnesium, 2000mg of d3, zinc, elderberry syrup and manuka honey. Hoping the combo helps with both lyme and keeping covid away
I’m taking vitamin c and not going anywhere
I’m in Seattle, in remission from Lyme for 4 years. I’ve been sick on and off for over a month. A blood test in mid-February to address fatigue, getting very hot and very cold and a raspy throat showed low T3. But I started coughing and continued on and off through today. This week had a temp of 99.4-100.1, headaches, and a sore throat with the cough...and telehealth decided to test me. I got my results and I’m negative. The concern I have is I wasn’t tested when I was most sick, so I don’t know if I had it. But right now I’m at home anyway. I have been home since 2/22 with the exception of a few careful grocery trips. We know the Elisa Lyme test isn’t reliable, and the symptom profile for Lyme isn’t the same for everyone, so I’m wondering how the profile and precision/accuracy of the Covid19 test are going to stand up over time.
Taking vitamin c and d along with samento and banderol and staying home!
Does anyone else wonder why Lyme meds seem to be working again COVID? Hmm. What’s the link?
I mask up in public. I do not care what anyone thinks. Im taking vitamins c zinc and d everyday.
On the Cusp. 60 y/o with Lyme/Bart (currently experiencing MCAS) Am I at risk? I’m taking my immune boosting supplements but I’m still worried.
So no one has actually had both yet from what I’m reading........ thats great.
The number of Babesia cases has soared in the upper Hudson Valley region of New York State. In fact, over an 8-year period there was a 16.8-fold increase in the incidence of Babesia cases. More in #LDScience blog. #LymeConversations... See MoreSee Less
I've been taking hydroxychloroquine (Plaquenil) for quite a few months for babesia. I just saw an interview with a pulmonologist who said that hydroxycholoroquine appears to be effective in treating COVID-19, specifically the body's cytokine response to the virus. I feel pretty good about that. My LLMD is nervous about me being on Plaquenil for more than a couple of months, although it's been more than 6 months now. I have asked other doctors about it and they had patients on it (for something other than babesia) for years with no problems. I have been on Plaquenil before and the symptoms come back when I go off it. The symptoms are horrible and excruciatingly painful. Malarone helped for a while, but then it quit working. Plaquenil is the only one that helps me. There is another prescription, but the co-pay is hundreds of dollars per month.
My patients have been asking. Will the cytokine storm described in the COVID-19 virus affect Lyme disease patients? After doing some research, I came across this article.
Cytokines are proteins that mediate and regulate immunity and inflammation.
Researchers in China described a cytokine storm in patients with the COVID-19 in a recent paper in the journal Intensive Care Medicine. “The results obtained from this study also suggest that COVID-19 mortality might be due to virus-activated “cytokine storm syndrome” or fulminant myocarditis.” writes the authors. This begs the question. Will the cytokine storm described in the COVID-19 virus affect Lyme disease patients?
Dr. Weaver and colleagues write, “The most common trigger of cytokine storm is infection.” He adds, “Alternatively, Macrophage Activation Syndrome (MAS) arises in the context of uncontrolled disease activity and/or infection in patients with rheumatic diseases including systemic juvenile idiopathic arthritis (SJIA), adult onset Still’s disease, systemic lupus erythematosus, and Kawasaki disease most commonly.”
Dr. Bransfield wrote, “persisting immune activation causes the cytokine storm in chronic Lyme.” in the Open Neurology Journal in 2009.
Aucott and colleagues described high chemokine CCL19 levels in Post Treatment Lyme disease Syndrome (PTLDS).
They also described several other cytokines and chemokines immune mediators.
I have been asked by my patients as too whether the COVID-19 virus will adversely affect Lyme disease patients. We don’t know. Has anyone you known with Lyme disease been infected with COVID-19. #LymeConversations
Ruan Q, Yang K, Wang W, Jiang L, Song J. Clinical predictors of mortality due to COVID-19 based on an analysis of data of 150 patients from Wuhan, China. Intensive Care Med. 2020 Mar 3.
Weaver LK, Behrens EM. Weathering the storm: Improving therapeutic interventions for cytokine storm syndromes by targeting disease pathogenesis. Curr Treatm Opt Rheumatol. 2017 Mar;3(1):33-48.
Bransfield RC. The psychoimmunology of lyme/tick-borne diseases and its association with neuropsychiatric symptoms. Open Neurol J. 2012;6:88-93.
Aucott JN, Soloski MJ, Rebman AW, Crowder LA, Lahey LJ, Wagner CA, Robinson WH, Bechtold KT. CCL19 as a Chemokine Risk Factor for Posttreatment Lyme Disease Syndrome: a Prospective Clinical Cohort Study. Clin Vaccine Immunol. 2016 Sep 6;23(9):757-66. ... See MoreSee Less
Letter Published: 03 March 2020 Clinical predictors of mortality due to COVID-19 based on an analysis of data of 150 patients from Wuhan, China Qiurong Ruan ORCID: orcid.org/0000-0002-7015-76661,2 na1...
Thank you for writing about this. Buhner has issued an herbal Corona protocol that helps modulate the cytokine storm. Looks very logical but I dont know anyone who has tried it. Do the HIV antivirals or RA drugs that they used in China for Corona help modulate the cytokine storm?
Very concerned in Wisconsin. I will not travel @ this time to New York for my appointment with my LLMD. 😏☮️🐾
I'm not sure, but I feel like crap. Elevated temp, bronchial cough, achy, runny nose, congestion. Called PCP to get THAT referral and he was going to give me a Z Pak. Too funny. I'm taking tetracycline for Lyme from my LLMD. Didn't get my referral. I want to get tested but our hospital requires a referral from our PCP.
Interesting, thank you for looking it up.
My Mom had Late Stage Lyme, now has RA, I have MS and am quite concerned as well.
We are home!! Sam isnt going anywhere! School is closed here and I am on standby from home!!