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I think most of us with Chronic Lyme already knew this but it is actually relief to hear this information!

i heard its just long haul covid? 😅oh i kid...

I have had vision changes- a few listed above, but also extremely dry eyes

I have explained my vision issues to many Opthamologists and Neurologists. Due to the CDC’s criteria of Lyme they do not understand or can comprehend what some of us experience and often times completely dismiss these symptoms.

Thank you! I have a eye exam on Aug 3rd I will bring this to Dr Kong.

Yes. And I also agree with Doreen Crusoe. I found only one ophthalmologist who "got it" before this study came out and she unfortunately retired. A sad state of affairs.

I lost sight in one Eye for 8 months! The neurologist s from stony brook were calling me to tell me I had MS, but when I started to lose my sight, I was. Taking antibiotics for something else , a d my eye cleared up !

Just had my eyes checked because of this.

👍 tks

Thank you so much for participating.

You can also start the Lyme Disease and COVID-19 Survey using a QR code.

Shared on our FB page

Thank you for doing this!

Thank you Dr. Cameron. This is important research.

Done. I share it in the german disulfiram group too. Grerts from germany

Thank God. And thank you to Foundation and everyone working on Bartonella research.

So very glad to hear this news ! Thank you for your dedicated work.

Awesome News.

Good

I seriously need help i don't know whats going on with me but I have so many symptoms of chronic lymes disease 😔 i tested positive for lymes in 2013 and was treated for 2 weeks with doxycycline and January of this year so many things hit me... so many people are telling me 2 weeks isn't enough to be treated.... I'm so lost and need to get back to myself

I'm so sorry for this man and his family. I was diagnosed at the same time I was diagnosed with Lyme carditis and hospitalized. My doctor (in NH) said the same antibiotic treating the Lyme (Ceftriaxone) would work on babesia. It didn't and I went untreated for a full year. It was horrible, unnecessary and maddening. Thank you for raising awareness.

The last neurologist told me there was no such thing as chronic Lyme or co-infections, and if I thought I had Lyme, he would prescribe ABX. According to him, it was all in my head, I was obese and diabetic. Take more insulin and I would be fine. All this without even putting me up on the exam table, yet, he billed the insurance for a "full exam". I walked out as I was telling him what he could do with himself and his lack of medical knowledge.

Yes, me. When I told my PCP that I had been bitten she ordered a full tick panel. I was treated immediately. I had gone to Urgent Care first and the "doctor" there said that unless the tick was attached for at least 24 hours there was no possibility that I had been infected. I told him that he should not have a license to practice medicine and left. Basically my doctor saved my life. He said, "You live in CT, ground zero for tick borne disease. Test and treat".

Also I wonder if this man still had his spleen. I was told by my doctor if you have your spleen it isn't as dangerous.

Yes, treated with two Months of Mepron. Made a world of difference.

I just dont understand why so many Dr will not acknowledge Lyme or co infections and have no clue as to treatment..why should this disease be different from others

Gosh I wonder if the docs ever looked for anaplasmosis? The liver involvement is more likely with that bacterium.

Yup, my mom had it. Thankfully she was treated in time

Yes i have babesia since my childhood

Japanese knotweed plant is effective against babesia

I was sick for 22 years. Forced antidepressants...created insecurities about my sanity. It took 21 years for my family doctor I had my whole life to test me...his findings I only had 3 reactors and did not have Lyme. Never spoke of it again. Found out a year later I was supposed to be tested again. Guess what old and new reactors. Had 3 rounds of Doxy...and now a year from the doxy and I am almost an invalent...These doctors that insurance covers don't give a flying turd and the best specialist out there cost $400 out of pocket. I guess you could say my outlook on life is basically waiting for it to end.

Yes, I have babesia.

I was diagnosed with PTSD. The overwhelming fear and anxiety of ultimate suffering and begging for help, yet being denied, disbelieved, and told you have depression and nothing more...every time I go to a doctor, I need anxiety medications now and go in prepared to fight a battle. 🥲

Absolutely. Major PTSD.

Right on, Dr Cameron!

Or anything else

so funny, coming in behind covid patients now.

Thank you, Dr. Cameron!

the tick was in my leg 18 months at least till I was even aware it was a tick

can you fix me?

I cant take it anymore, I would rather die

I suffer from cronic lyme disease, I think I have ptsd too, so many other problems, heart surgery at age 2 a stroke my ears ring constantlt, my leg is half numb, 2 fucked up vertebrae, l1 and l2

god forbid if I got covid too

It is pretty sad how the CDC has completely dismissed Lyme, in doing so the majority of doctors are uneducated and not doing their due diligence in helping their patients. This man was lucky, he received help by the right doctor at the right time. The Medical community needs to be re-educated on Lyme. I am Amazed at all we hear about Covid, yet Lyme is treated like it is non existent and how could you dare think you have it, though you have 10 or so symptoms describing your illness.

😢😢

After getting my lyme diagnosis and making the big mistake of seeing a IDSA doc: the ISDA dr absolutely refused to test me for this or look into it. Kept trying to blame my symptoms on PTLDS or something else RA related because I was given 10 days of doxy for lyme that I had 25 years or longer. All these coinfections are ignored and shoved under the table just like lyme. I have it.

Babesia duncani, worse than B microti and harder to treat, ignored as usual. Now Wormser is pushing the long transmission time BS for Babesia too. No data backs that up.

this is such irresponsible reporting leaving out the other strains of babesiosis and how if it doesn’t kill you you might wish you were dead from the debilitating life changing symptoms. 10 years after cdc guidelines treatment i am still disabled from babesiosis duncani. come interview me, Washington Post. i’ll tell the much more common living dead story.

I was Diagnosed with this on top on Lymes. It was a hell Of a fight and one I’m not sure ( some days) is over. Anyways, I remember my Lymes doctor told me if you have this, and give blood…you can kill the person. He also said the Red Cross is going to ( or is already, I can’t remember) test every donors blood for Babesiosis. My question is if this is true, can you donate blood after you’re cured? Thank you.

Read this a few weeks ago... Burns me.. Not usually reported because doctors are busy. Hmm Friday night when I fail to give you the correct amount of money that is in your payment ... dont assume it will be the right amount because I was busy. I mean really... And what really burns me is... he was diagnosed for a kidney infection... why wasnt he tested for a tick disease right away? As if it was the patients fault he didnt get treated correctly right away... As long as this disease has been around... doctors should be away of the symtoms by now... especially in the most prevalent areas... Also, deer ticks are NOT the only ticks to carry Babesiosis... but everyone still says it... Surreal

#Oregon is rich in Babesiosis... #traveloregon, come n get it...

I have babésiose divergens

🙂

Or is it finally being tested for ?

Are they discovering this now? Lyme is rarely alone. It comes with Co infections most of the time …

Me too…West Nile, Lyme with Bartonella.

Lyme seems to be like an autoimmune disease, it likes friends (co-infections). I see it over 50% of the time.

🙏🙏🙏

i had 5! not uncommon at all, it the norm.

Dr Cameron, what do you typically suggest as treatment for a tick bite? I know prophylactic antibiotics are not typically recommended anymore.

If a virus can of course Lyme disease can.

I am sure of it !!!

LYME DISEASE is AN AUTOIMMUNE DISEASE!!!

Ya think??? 🤔

Yes it does i lot of people i know like myself have what i call a side Diseases meaning you get the lyme but then you get another surprise that you don’t know that you’re going to get and that you don’t want. I know some people have lyme and ms, lyme and Lupus and myself lyme and mast cell.

Before I was diagnosed with neuro Lyme and Bartonella, the neurologist I was seeing thought I had either MS or Sarcoidosis. Later, when I figured out I got my Lyme in Australia, I found a paper by an Australian Lyme aware Dermatologist (since sanctioned by the gov’t health system for daring to diagnose and treat a disease they deny exists there) that described how Australian patients had lots of cranial nerve involvement and most resembled MS or Sarcoidosis.

My husband had "classic" Lyme ( Bells palsy, large swollen knee, migratory joint pain etc.). Around the same time he developed progressive anemia, high inflammatory markers, Hypercalcemia and Kidney failure. He was diagnosed by biopsy with Renal Sarcoidosis. He had had two and a half months treatment for Lyme with an excellent LLMD, but had to stop because of poor kidney function. He was put on high dose steroids to try and avoid dialysis and has done extremely well, with no recurrence of Lyme symptoms, thankfully.

I was diagnosed with sarcoidosis within a year of my bullseye rash appearing but took no treatment for it. I was told after a CAT scan that I had enlarged lymph nodes all throughout torso. They disappeared later on after I treated Lyme.

I was also diagnosed with sarcoidosis and chronic Lyme/bartonella. I believe an ACE that is WNL is under 40 where mine was almost 90. That number has gone down with treatment but remains elevated.

I was diagnosed with Lyme’s Disease in 2006 and Neurosarcoidosis in 2018. A long rough road!

Thank you !! I went to see Dr Goldberg at Lahey hosp in Burlington, MA and he did look at all your information- very impressed*** I will call your office tomorrow to submit my health insurance info. Tufts Ins.

calling now to set up first appointment.

I believe that Lyme triggers other diseases rather than imitating as is often stated.

Duh hello

I will get there I did not know you were cash only!!!

There was also research published back in 1992 by Hua, Lee and Wang at the Naval General Hospital in Beijing linking Sarcoidosis and Borrelia.

Terry Rew- check this out,

Some interesting stats here and although Canada is not included I doubt the ticks respect the border between our two countries.

www.necn.com/news/local/1st-case-of-powassan-tick-virus-reported-in-maine-this-year/2494886/

AFTER A TICK BITE, HOW LONG FOR DISEASE TRANSMISSION? 3/4/2018; UPDATED: June 22, 2021 By Dr. Daniel Cameron tinyurl.com/b4n4nx8 • A single tick bite can transmit several diseases. • • But investigators continue to debate how long a tick must be attached before it can transmit the Lyme disease bacterium. • • While many believe a tick must be attached for at least 36 to 48 hours before transmission can occur, others say it can happen within several hours. • • People often ask: • How long does it take for disease transmission to occur after a tick bite? • • According to investigators, Lyme disease may be transmitted faster if the tick previously fed on another host. • • In a 2014 article entitled • “Lyme borreliosis: a review of data on transmission time after tick attachment,” • Michael J Cook explored the topic. • • “It is frequently stated that the risk of infection is very low if the tick is removed within 24 to 48 hours, with some claims that there is no risk if an attached tick is removed within 24 hours or 48 hours.” • • However, in animal models, Cook found, • “transmission can occur in less than 16 hours. • The minimum attachment time for transmission of infection has never been established.” Have you been bitten by a partially fed tick? • Investigators suggest that transmission time may be shorter if a tick has already fed on a host. • • A study by Shih and colleagues, found that, • “Partially fed nymphal ticks transmit spirochetal infection more rapidly than do ticks that have never been attached to a host.”¹ • • So, how quickly a tick can transmit Lyme disease may depend on whether the tick had been partly fed BEFORE it attached to its second host. • • Shih et al. demonstrated that partially fed nymphal ticks (84%) were capable of transmitting spirochetes to a non-infected mouse within 24 hours. • • The authors discovered it took less time for an infected nymphal deer tick to transmit Lyme spirochetes to a mouse if the tick was partially fed. Ticks spontaneously detach from hosts • Individuals may mistakenly believe that once a tick bites, it will remain attached throughout the entire feeding or until it is removed. • But this isn’t the case. • • In the mouse study, Shih found that ticks can spontaneously detach during the feeding process. • • And this action can profoundly impact the time it takes for spirochetes to infect the host. • • “Virtually all nymphal ticks that previously had fed for 16 hours reattached efficiently.”¹ • • “We found that nymphs do detach spontaneously from free-ranging mice in the laboratory, perhaps as frequently as 15% of the time,” the authors report. • • “Indeed, about [one tenth] of questing nymphs in nature seem to be distended, and reattachment by partially fed sub-adult ticks commonly occurs.” • • In the laboratory, partially fed ticks would reattach to a second host and commence feeding. • • “Virtually all nymphal ticks that previously had fed for 16 hours reattached efficiently.” • What happens in partially fed ticks? • The tick attaches to a host, feeds and the Lyme bacteria multiply rapidly in the tick’s mid-gut. • • Normally, the tick eliminates all of the bacteria, leaving behind only those spirochetes that survive in the mid-gut before they molt into an adult. • • But, in a partially fed tick, spirochetes multiply in the mid-gut and then move to the salivary glands. • If the tick bites again, the spirochetes residing in the salivary glands can be transmitted more quickly. • • “Partially fed nymphs [ticks] are able to reattach to another host. • • Lyme disease spirochetes may be transmitted by partially fed nymphs more rapidly than by nymphs that have not already fed.” • Pet owners: be wary • Their findings are particularly relevant to people who own pets. • • “These partially fed ticks may already have acquired spirochetal infection and avidly seek other hosts,” writes Shih. • • “Pet ownership appears to be a risk factor for human Lyme disease. • • This may reflect contact with ticks that have detached from a cat or dog within the household.” • • If an unfed tick attaches it can take up to 36 hours to transmit the Lyme spirochetes to a mouse, Shih claims. • • “The chain of events that culminates in migration of the spirochetes from the gut of the tick to its salivary apparatus, begins within the first day of attachment. • It requires at least another day for completion.” • • Note: • The study by Shih and colleagues was conducted only with mice. • • It has not been replicated with humans. References: 1. Shih CM, Telford SR, 3rd, Pollack RJ, Spielman A. Rapid dissemination by the agent of Lyme disease in hosts that permit fulminating infection. Infect Immun, 61(6), 2396-2399 (1993). Dr. Daniel Cameron & Associates 344 East Main Street, Suite 104 Mt. Kisco, NY 10549 Tel: 914-666-4665 Fax: 914-666-6271 © Copyright Daniel J. Cameron MD and Associates 2021

Going to see Dr Eric Goldberg at lahey Hosptial in Burlington, MA next Wednesday- I will discuss with him and have sent him your website and Lyme info. I will be in touch afterwards.

i was wondering if you have seen a reduction in your patients lyme symptoms since being vaccinated with the MRNA covid vaccine?

Thank you~~~ tick sprays/organic safe products/essential oil sprays.

Wish he would of spoken up about it years ago !!!!!

3 almost 4 years and counting… 2 co infections in my brain plus Lyme First diagnosed in 1988

No one listens until a “celebrity” says they suffer. When do we get our voices heard

Immune to nobody !!!! Going to see Dr Goldberg next week...finally after 15 month's. !!! I might be headed to your office too...i will inquie with Dr Goldberg.

I didn't know we had lymes till recently

yes, its really held him back

I’m glad more celebrities are speaking out.

Yes, tell me about it...

I'm years into it.

Been since 2006 for me ...cause our drs and 2 ERs would not test or treat me as that requires contacting public health

It is a nice dream.

Knowledge, prevention and more efficient treatment are urgently needed. You can’t be 100% thorough with tick checks alone.

I feel his pain.

Mine too....20+++

Join the club. 😩

Alan Kapson

Alec Baldwin Says His Lyme Disease Symptoms Have Lingered for 20 Years • “I got attacked. • It came like someone snapped their fingers and put a spell on me.” • • By Arielle Weg • Jun 19, 2021 www.prevention.com/health/health-conditions/a36685952/alec-baldwin-lyme-disease/?fbclid=IwAR206qp... • Alec Baldwin opened up about experiencing symptoms of Lyme disease for 20 years. • He was bedridden with cold sweats, joint pain, soreness, and exhaustion following multiple tick bites. • He still gets “inexplicable” joint pain today. • An estimated 476,000 people contract Lyme disease every year in the United States. • Alec Baldwin dreams of enjoying a summer outdoors without fearing Lyme disease. • But after getting bit by a tick 20 years ago and enduring long-term symptoms of the condition, he just can’t shake the anxiety. • The 30 Rock star recently opened up about his experience with the illness on the Hypochondriactor podcast hosted by Sean Hayes and Priyanka Wali, M.D.. • But first mentioned his struggle with Lyme in a 2011 interview with The New York Times. • “I think twice that I had it. • I got bit twice and I probably had it four times over five years where it came back at the exact same time,” he explained. • Each time, he says he was bedridden with cold sweats, joint pain, soreness, and exhaustion. • “August of one summer, I was standing on my friend’s porch at night, and it was a cool evening. • It wasn’t a hot steamy evening. • I felt literally this wave go over my back, over my shoulders, and kind of wrap around me like a chill. • I got just attacked. • It came like someone snapped their fingers and put a spell on me,” the actor recalled. • And the symptoms returned in following summers. • “I had the same thing each August,” he said. • “I got bit, and then I had it again the following August. • I got bit again. • I had it the following August. • It just kept coming back.” • He added that even today he occasionally has “inexplicable” joint pain. • Lyme disease, caused by B. burgdorferi bacteria spread through the bite of an infected blacklegged tick, is often signaled by a bulls-eye shaped skin rash at the site of the bite, but not always. • Flu-like symptoms like fatigue, fever, headaches, and body aches, are also common. • According to the Centers for Disease Control and Prevention (CDC), a blood test is usually required to confirm a diagnosis. • In most cases, symptoms clear within three to four weeks with the help of antibiotics. • But in an estimated 10 to 20% of others, they may linger and resurface, known as post-treatment Lyme disease syndrome (PTLDS). • In PTLDS, patients were officially diagnosed with Lyme disease. • Meaning they experienced a tick bite or the bullseye rash. • And treated with antibiotics, but struggle with lasting symptoms. • However, Baldwin believes he suffers from chronic Lyme. • This differs from PTLDS because it can be used to describe cases where a B. burgdorferi infection was never officially diagnosed, according to the National Institute of Allergy and Infectious Disease (NIAID). • Because this definition is so broad, many doctors don’t back chronic Lyme as a diagnosis. • “It’s super controversial whether it actually exists,” Dr. Wali said on the podcast. • “This is the most common tick-borne disease in the United States. • There’s close to 300,000 people that get this every year and then many of those do not recover. • This is a real phenomenon that’s occurring.” • (The CDC recently updated that estimate, which is now closer to 476,000.) • Despite the skepticism and controversy, Alec and his wife, Hilaria, aren’t taking any chances, especially when it comes to their six kids. • The family lives in the Hamptons, New York where Alec says it’s “tick central” every summer. • “When we have a very mild winter out here, the ticks are beyond,” he explained. • “My wife finds one tick on one of my kids and she’s like, ‘That’s it. • Hiking season is over.’ • She just terminates hiking season.” • He wishes things didn’t have to be that way. • “I want my kids to grow up riding horses, bikes, and enjoying themselves every day. • And not have to spend every day with us going over them with a magnifying glass to make sure they don’t have any ticks on their body or their dogs. • But that is part of the lifestyle of where I live,” he admitted. • According to People, the actor works with the Bay Area Lyme Foundation to raise money for disease research in hopes that one day, he can get more answers. • This content is created and maintained by a third party, and imported onto this page to help users provide their email addresses. • You may be able to find more information about this and similar content at piano.io ©2021 Hearst Magazine Media, Inc. All Rights Reserved.