Lyme Disease Science Conversations:
Facebook Conversations
Conversations on Facebook with a leading Lyme disease expert, Dr. Daniel Cameron, about the latest discoveries and advancements in Lyme disease and associated illnesses.
Woman, 68, suffers whole-body rash and 103 F fever after tick bite
Woman, 68, suffers whole-body rash and 103 F fever after tick bite
www.dailymail.co.uk
The woman from Narita, Japan, saw the pinpoint dot-like rash spread from her arms and legs to her trunk, palms and soles of her feet. Testing revealed she had Japanese spotted fever.
In the past 5 years, from 2016 to 2021, Lyme disease diagnoses rose 60% in rural areas and 19% in urban areas.
“Lyme disease remains a growing public health concern,” Robin Gelburd, president of FAIR Health, said in a statement.
FAIR Health is a national, independent nonprofit group that highlights health care information by looking at data from its collection of more than 36 billion private insurance claims records.
Insurance Data Shows Big Rise in Lyme Disease in U.S.
www.webmd.com
Lyme disease diagnoses have increased dramatically in the U.S. during the past 15 years, rising 357% in rural areas and 65% in urban areas, according to new data released by FAIR Health.Too bad insurance doesn’t pay for doctors to treat it 😳
Many years ago when Lyme disease wasnt even heard of my daughter got sick. Couldnt walk just one of the symptoms. Our family Dr was a hunter with several dogs and knew of the disease. Tested and re tested until he figured out it was lyme. He consulted with his veterinarian and they were able to help her. His comment to me was there wouldnt be a solution to this because it wasn't a city boys disease..how true...many many years later there is still not much help...doxycycline for two weeks and you're cured..how sad
The biggest medical coverup in our lifetime. Inaccurate testing, poor CDC treatment guidelines and censuring of progressive doctors who strive to find successful protocols against Lyme and the co-infections. Keep fighting the good fight Dr. Cameron. You are a hero in this man’s eyes.
Just imagine what they haven’t diagnosed would be a lot more than these figures
Nothing to see here. Move along.
Unreal. Upstate NY they are just falling from trees on local streets.
I need to get back In to see ur Dr .
This woman had a delayed onset of Babesia with symptoms appearing 3 weeks after treatment for Lyme disease.
"Near the end of three-week of amoxicillin, she became ill. Her fever rose to 102.9 F0. She complained of myalgias, dizziness, and fatigue."
Could cases like these explain why some Lyme disease patients relapse after initially improving? #insidelyme
A Babesia infection 3 weeks after treatment for Lyme disease. - Podcasts
danielcameronmd.com
A woman with a Babesia infection 3 weeks after treatment for Lyme disease. Could this delay explain why some patients remain ill or relapse?“We need more doctors with skills recognizing Babesia in a patient with Lyme disease.” Yes! Recognizing these or Bartonella at all or even looking for them!!!!
Hello Dr Daniel Cameron, I am Ruth Fenn REDOX Associate. Dedicated scientists developed REDOX a cellular process noted in the international health and medical community to be the medical find of our lifetime. REDOX is a process native to the body renewing the molecules in our cells is necessary for life and health. As we age as soon as puberty REDOX begins to decline. Scientist have studied REDOX for health benefits for years one an atomic scientist Gary Samuelson stabilized the product REDOX outside of the body. Athletes find REDOX increases stamina, lessens recover time and lessens pain. Verdis Norton founded a company ASEA dedicated to providing better health products giving REDOX a cellular product a place in the international health and medical community. (REDOX is not a drug.) For information regarding the product REDOX and the company ASEA contact me ruthetta423@yahoo.com Thank you, Ruth Fenn 😊. [ ASEA makes no claim for any cures . Cures belong to Jehovah God and his son Jesus. Relief is fine . Folks from everywhere on earth are reporting relief after taking REDOX and using Renu 28 the topical gel form of Redox.] In 1983 my husband became I'll , I had lost m first husband previously to an undetermined illness , treated in a presidedious hospital Hanover Hitchcock , left to die given morphine, a former member of the 82nd ARMY AIRBORNE. MY second husband also a member of the Army ( Koresn conflict ) saw local Drs no diagnosed, chose accuputure , with Chinese herbs. In the last days of his life we sought help in a wellness center in Canada , while there one Dr found erhlicia in my husband blood stream. When questioned what it was , the Dr said we find it in folks who worked outside. As a family we all helped cut fire wood on our 46 acre farmstead and frew all our produce, acres of vegetables and fruits . We all got infected, both husbands died; 40 Drs ( alternative, conventional) no diagnoses , $ one million out of pocket inspite of private insurance which paid nothing. Two years ago I found relief with a product REDOX and Renu28. Sincere message , Ruth Fenn REDOX Associate. ■
Shania Twain talks about how Lyme disease stole her voice. The disease, she says, caused damage to her vocal cords in the three weeks between when she was bitten by a tick and when she started treatment for the infection.
"There were seven years where I could not, for example, yell out for my dog. My voice would just cut out in certain places," said Twain. "And it took another several years to determine what it was. It wasn't anything obvious. Nobody connected the Lyme disease to it.
"... although her voice was permanently impacted, she feels grateful the disease didn't attack another part of her body, like her heart."
Shania Twain opens up about battle with Lyme disease: 'I thought I'd lost my voice forever'
abcnews.go.com
The country music superstar says a tick bite in 2003 led to Lyme disease.Near-complete laryngitis was my first symptom. I was confused about how I could lose my voice so badly when I didn’t even feel sick. The malaise, fever, and misery started the next day. My voice recovered with the week of antibiotics I got, but several years later, when the Lyme and Babesia and Bartonella became chronic and then severe, I lost my voice again. It’s still not normal. Mine cuts out, too, just like she describes. The weird thing is if I concentrate, I can yell a word or two, but I can’t speak normally. (Note: I got my Lyme in Australia - neuroborreliosis, similar to B. Garinii in Western Europe.)
My vocal chords have never been the same again even with voice PT
I have horrible stomach issues with my Lyme. I’m becoming so depressed by it all!
My voice is definitely horrible, no volume and cuts out☹️
Au moins elle a la chance d'avoir les moyens financiers pour se soigner. Ce n'est pas le cas de tout le monde, surtout dans des pays où la maladie n'est pas reconnue!
I also had vocal cord issues.
The CDC may need to update their info about tick borne infections and where they’re located as right here in Western Kentucky, my own mother and another family member contracted Rocky Mountain Spotted fever within the last 6 months. I tested positive for Lymes about 4 or 5 years ago. We had not traveled outside our area when these bacteria were contracted. I’ve heard of many. There were 27 or more cases of RMSF within last 6 months diagnosed at our local hospital.
My stomach issues have never been the same and I lost alot of my hearing
Pfizer Clinical Trials · Learn about a Lyme disease vaccine clinical trial for men and women who work outdoors and are worried about tick bites. Lyme Disease Vaccine Study VALORLYMESTUDY.COM Lyme Disease Vaccine Study The VALOR investigational Lyme disease vaccine study is underway for healthy children and adults who live in or frequently visit areas that may expose them to ticks.
Thank you!
Please figure out PSSD.
The mother showed no evidence of having a tick-borne illness but she unknowingly transmitted Babesia to her twin daughter. Symptoms emerged at 5 weeks old.
More in todays's #lymescience blog.
Congenital transmission of Babesia, diagnosed in twin at 5 weeks old - Daniel Cameron, MD, MPH
danielcameronmd.com
This study describes congenital transmission of Babesia, diagnosed at 5-weeks-old in a twin. The mother had no symptoms of the illness during pregnancy.
At 43 years old “I was declared ‘100 percent unfit for duty’ and was medically retired,” she says. She was utterly debilitated: bedridden, housebound, barely able to stand, walk, or speak. “I thought I was tough, but I was completely broken.”
Were you ever unable to work due to Lyme disease or another tick-borne illness?
Why tick-borne diseases have reached ‘epidemic proportions’
www.msn.com
Infections have more than doubled in the U.S. since 2004, afflicting many patients with long-term memory problems, overwhelming fatigue, and even red-meat allergies.YES I was disabled.
I was housebound for nearly a year. Everytime I stood up, my blood pressure would drop and I would become faint. Finally, I found a doctor who treated me for the Lyme and co- infections and put me on medication to raise as my blood pressure, but my balance was still off. I had to walk holding onto a shopping cart or cane. I had to retire on disability from teaching.
Yes but with 3 years of different antibiotics, rife, acupuncture, chiropractic, CBD oil (continuous), different herbs and tinctures - after 23 years I am back to engineering!
Six months couldn’t walk or get out of bed
I was recently interviewed by iHeartRadio to discuss diagnosing and treating Lyme disease.
Conversations with Joan: Daniel Cameron, MD: Diagnosing and Treating Lyme Disease on Apple Podcasts
podcasts.apple.com
Show Conversations with Joan, Ep Daniel Cameron, MD: Diagnosing and Treating Lyme Disease - Jul 8, 2022
In a recent study published on the preprint server Research Square*, researchers report that individuals with a history of Borrelia infection, otherwise known as Lyme disease, caused by tick bites are at a higher risk of severe coronavirus disease 2019 (COVID-19).
(Note: Research Square is not a peer-reviewed publication.)
COVID-19 risks may be heightened by history of Lyme disease
www.news-medical.net
Individuals with a history of Lyme disease, caused by tick bites are at a higher risk of severe COVID-19.Actually, thanks to Dr. HOrowitz protocol, we have been doing great and using our immune systems just like he said. We use his prevention as well. It's saved our butts and just like he said, kept us out of the hospital. We never had any breathing issues either.
They should add this via CDC so people can qualify to get additional boosters like diabetics, heart disease, etc. I’ve had 4 doses of Pfizer, no COVID after many exposures and no side effects.
I have chronic Lyme, have only worn a mask when I absolutely had to and didn’t get vaccinated (which only lowers your immune system) and I have not gotten COVID (at least not that I’m aware of…if I did I didn’t have any symptoms).
Indigo Feather I have tickborne illness and have for a long while. I had just started to emerge from a dark place when Covid hit. I had massive Coxsackie B viruses that took me out for over 2 years. Then, the pandemic. I also haven't vaccinated. I wore masks, but not sure how much that really means. I wouldn't vaccinate, because I just can't see it helping. Most of my family did fine, so they say, but my sister told me her face and hands went numb, she had humming in her face/head, and she thought she was going to die. That was after a vaccine. They said it was anxiety. Whatever! Anyway, as much as I wish I could say I'm fine, I'm not. Everything got activated. Everyone is different. Would I vaccinate? No. I had Covid in October of 2020. That's what I think. I never tested positive. Lyme patients have been adversely effected, but not everyone sees bad effects.
I stayed home for two years, afraid of getting this deadly virus. I got Covid in April of this year from my vaccinated husband. Symptoms were similar to a Herxheimer reaction. I was sick, but didn't die! I'm no longer afraid of Covid.
The authors discuss their experiences in treating 11 pregnant women with Lyme disease. More in tonight's #lymescience blog.
Case series: No complications with Lyme disease and pregnancy - Daniel Cameron, MD, MPH
danielcameronmd.com
The first confirmed case of LB [Lyme borreliosis] in a pregnant woman was described in 1985 in a 28-year- old mother who was infected with LB in the first trimester and delivered her baby at 35 we...'It was like my child disappeared': Tick bite triggers rare condition in 7-year-old girl
'It was like my child disappeared': Tick bite triggers rare condition in 7-year-old girl
www.newscentermaine.com
The neuropsychiatric illness, known as PANS, is linked to bacteria transmitted by deer ticks.I hope they stop saying it’s rare. We need more awareness and acceptance with the medical community to recognize this fast even in the absence of a tic bite.
NOT RARE !!!
That's when she said 'Mommy, there is a monster in my head, please get me help,'" Rebecca said, holding back tears. TBD patients know this feeling well, but it is still heartbreaking to read about a child saying it. So good that the child was able to articulate this, that she was taken seriously, and brought to the right place for care. Many are not.
Kim Antanitis-Pauling. Dustin Pauling. If you read the article, the mom talks about her daughters eyes.
What do you recommend for testing after a tick bite?
The neuropsychiatric illness, known as PANS, is linked to bacteria transmitted by deer ticks.
'It was like my child disappeared': Tick bite triggers rare condition in 7-year-old girl
www.newscentermaine.com
The neuropsychiatric illness, known as PANS, is linked to bacteria transmitted by deer ticks.It is so important for people to be aware that a single tick bite can transmit several diseases, as this case report highlights. #LDScience
Single tick bite leads to 3 diseases in elderly woman - Daniel Cameron, MD, MPH
danielcameronmd.com
In their article “Triple Tick Attack,” doctors describe the case of a 74-year-old woman living in Connecticut who developed 3 infectious diseases as the result of a tick bite. While Lyme disease i...Have a good week. Summer will fly by for sure.
It’s hard even getting the test ran. As I lay in bed so sick. 5 years bitten.
Hi Dr. Cameron, so if you’re one of the lucky ones to see the bull’s-eye rash and get on Doxycycline because of a positive Alissa and western blot test, How can you find out early on and before it’s too late if Babesia and Bartonella or any other coinfection’s are present.? And what else can u take to treat that in the first 4 weeks?
Dat helpt hier niet om er alert op te zijn, in Nederland geloven ze toch dat ze iedereen beter kunnen maken met een doxy kuurtje van 14 dagen, en dat je alleen maar lyme op kunt lopen van een tekenbeet. En dat het heel erg zeldzaam is. Hier zouden ze je gewoon dood laten gaan als je co-infecties er bij op loopt, en dit zelf niet verder uit laat zoeken en behandelen voor eigen kosten. Zoals er zoveel al zijn overleden die niet serieus genomen werden, met doodsoorzaak onbekend. Of zich zelf iets aandeden door al dat onbegrip. Dat je er nog meer infecties van kunt oplopen gelooft geen hond. Deze co-infecties blijven dan ook onbehandeld hier in ons land. Daar hebben onze reguliere artsen in Nederland nog nooit van gehoord, dat je die ook nog kunt oplopen door een tekenbeet en moet behandelen. En dat doxycycline daar zelfs vaak niets voor doet. Er zijn niet voor niets zoveel mensen doodziek geworden en gebleven in Nederland na een tekenbeet. Ze behandelen of helemaal niet, of te kort of met de verkeerde antibiotica of vaak veel te laat. En omdat de testen ook niet betrouwbaar zijn lopen mensen hier jaren onbehandeld door. En dan heb je heel veel problemen , en vaak heel lang de juiste antibiotica nodig om nog ooit beter te worden. En dat mag ook weer niet. Je mag rustig een jaar aan de doxycycline als je acne hebt. Maar als je hele lichaam op stelten staat door een tekenbeet mag dat niet. Ze hebben zelfs een onderzoek gedaan en de conclusie getrokken dat "langdurige" antibiotica niet werkt. Dat kan in het geval van dat onderzoek ook kloppen. Want dat "landurige" was slechts 3 maand, en dat is veel te kort als je mensen jaren onbehandeld rond laat lopen. Dat helpt zeker niet. Veel langer is nodig en dan red je het vaak ook niet met 1 soort antibiotica want die co- infecties zijn ook lekker door je hele lichaam gegaan al die jaren. Maar mensen hebben er scheit aan hier. Ze worden pas wakker als ze het zelf overkomt. Hoeveel mensen er wel niet rondlopen met onbegrepen pijnen en ellende. Ik zou ze niet graag op tegelijk op de koffie hebben. Maar iedereen die al jaren van kastje naar de muur gestuurd wordt, en meerdere artsen heeft gezien die allemaal alleen op hun eigen eilandje kijken, en nooit iets vonden, zou zich eens af moeten vragen of ze ooit door een teek of daas te pakken zijn genomen. En als je het niet meer weet en met allerlei vreemde klachten maar van kastje naar de muur gestuurd wordt of werd, ook maar eens na laten kijken. Ook mensen met bijv. extreme vermoeidheid al dan niet in combinatie met verspringende pijnen, hoofpijn, nekpijn, migraine achtige pijnen, gewrichtspijnen, verschillende ontstekingen bijv. knieën etc. en bijv. onverklaarbaar krachtsverlies, halfzijdige gezichtsverlamming en mensen die massaal naar solkpoli's gestuurd worden. En bij kinderen vaak ook nog mentale problemen of teruggetrokken gedrag of sociale vaardigheden die veranderen. Allemaal alert op zijn. Je zeker niet laten afschepen dat het geen lyme kan zijn. Want dat is wat er steeds gebeurd. Men heeft geen idee hoe vaak ze er naast zitten. Al die zoönosen als lyme, q koorts, longcovid, zouden eens veel meer serieus genomen moeten worden. En meer kijken naar de ontstekingen die ze veroorzaken in ons lichaam. Maar die moeten wel opgespoord worden met speciale scans, op een gewone mri zijn ze niet te zien. Gelukkig zijn er nu pas onderzoeken bij 2 (long) covid patienten gedaan met speciale scans waarin te zien was dat er lichte ontstekingen door het hele hersengebied zichtbaar waren, die onderzoeken werden uitgevoerd door ziekenhuizen in Utrecht en Amsterdam. Ze vroegen zich alleen nog af of covid de oorzaak was....Nou wat zou je denken.....Dat het zoönosen zijn die dat veroorzaken.....Ooit worden ze wakker. Ook in Belgie is de KU Leuven er mee bezig met het ontstekingen verhaal. De gemiddelde Nederlandse arts geloofd maar weinig van chronische lyme. Ondanks dat de voorzitter van de gezondheidsraad Kullberg hier in Nederland heeft uitgesproken dat deze patienten met chronische klachten van lyme een hele slechte kwaliteit van leven hebben, blijven ze het gewoon ontkennen en de mensen gewoon in de kou laten staan. Een huisarts die ook opgestookt was dat het niet betaat, kreeg het zelf. Ze schreef er een boek over, hoe ziek ze is en dat ze haar baan niet meer kan volhouden. En hoeveel onbegrip en ellende er op haar pad kwam. Echt wel dapper dat ze dat deed, zouden haar collega's haar wel geloven nu ? Het boek heet "komt een dokter bij de dokter" Zeer leerzaam behalve voor artsen ook voor de mensen die de lymepatienten belachelijk maken. Of overbezorgd vinden of op andere wijze de grond in trappen of trapten. Dat schijnt nogal voor te komen. Zelfs in eigen vrienden en fam. kring. Dat moet ook maar eens ophouden. Als iedereen nu blijft strijden voor al dit onrecht komt het goed. Laat je nooit afschepen met de ingestudeerde verhaaltjes van je omgeving, van je moet gewoon positief zijn, gewoon lekker genieten van wat wel kan, en heb ik ook wel eens last van.... en gewoon mee leren leven....Meten is weten. Allemaal onzinnige uitspraken van mensen die geen idee hebben waar ze het over hebben, en die ook nog eens 0 inlevingsvermogen hebben.
Was she tested for Alph Gal Syndrome ?
This patient had several relapses for Babesia. Interestingly, after a 6-week regimen of tafenoquine, his symptoms resolved. He had been on multiple antibiotic regimens.
However, investigators were not able to determine if the success was from tafenoquine or the weeks of therapy leading up to tafenoquine.
Still, they suggest, "this single drug regimen may be of potential clinical importance, especially for treating highly immunocompromised patients with babesiosis..."
Case report: Treatment for relapsing Babesia - Daniel Cameron, MD, MPH
danielcameronmd.com
A 36-year-old man struggled with several relapses of Babesia but treatment with a 6-week regimen of tafenoquine resolved his symptoms.Making sure my husband reads this! He believes I have recurring Babesia. I sent the article to him to read.
But would authorities move forward with more clinical trials to test the theory.
Would be wonderful if something could help. Seems like a never ending battle 😥
And where can we get treatment in Australia…without the cash cow..selling our home.
Oh wow that’s interesting! Y’know I reached remission finally, for 2.5 years and then got Covid. I kept saying over and over “ This feels just like Lyme/ Bart/Babs” I never had a fever tho. Just drenching like severe sweats mostly at night, it feels like I’m going to die when it happens, then I get chills. I also have thyroid issues that haven’t been addressed yet so I don’t know what to think at this point. Babesia or thyroid? I still have regular cycle so I don’t think it’s menopause but I am 50… Hmmmm.I’m open to any thoughts or suggestions
Dr. Daniel Cameron why don’t you test for Toxoplasmosis? Many were treated for Babesia and were healed when treatment was altered to Toxoplasmosis DRaprim Sulfadiazin Cotrim and after 6 weeks Babesia was gone too. With 40 million infected with Toxoplasmosis in the US it is not so far away. Problem is Serumtest is negativ People need lymphocyte testing. www.retzek.info/toxoplasmosis-might-be-responsible-for-lyme-and-amyotrophic-lateralsclerosis-and-...
Sen Rd
I often wonder if Babesiosis/Bartonella ect ect can go dormant when one has Neuroborreliosis...... In Australia we have no reliable testing for these monster infections. Could it be the reason so many of us are so unwell.....
I have been sick for so long! Initially bit at 18 and diagnosed at 40. I'm currently 58 and still trying to get well. I have Lyme, Babesia, Bartonella, and Ehrlichiosis. My worst symptom of air hunger and shortness of breath is disabling. Walking up a flight of stairs feels like you just ran a marathon. We need a cure for all these tick born diseases. I've been in treatment for 18 years. I'm not holding out much hope for a cure.
Anyone tried Ivermectin?
Nikki Kerecz
dan, would you break up your posts into short paragraphs double-spaced for us neuro cognitive lyme disease / adhd patients who have lost their reading comprehension due to being misdiagnosed for decades. huge thanks 😉 betty gordon, ames, iowa TREATMENT FOR RELAPSING BABESIA By Dr. Daniel Cameron 7.7.22 tinyurl.com/5n8nw8fv • In a case report entitled “Use of tafenoquine to treat a patient with relapsing babesiosis with clinical and molecular evidence of resistance to azithromycin and atovaquone,” • Marcos and colleagues describe an immunocompromised patient with Babesia microti who received treatment with tafenoquine after experiencing several relapses. [1] • A 36-year-old man was hospitalized in 2019 due to unexplained fevers he had been having for two weeks. • He was later diagnosed with Babesia with 8.5% of his blood showing the parasite. • He had been diagnosed with granulomatosis with polyangiitis in 2001 and was considered immunocompromised related to treatment 2 years earlier with rituximab, a monoclonal antibody used for immunotherapy. • The man had also been treated with methotrexate, cyclophosphamide and steroids. • The man’s initial treatment for Babesia included atovaquone and azithromycin for 10 days. • The atovaquone was 750 mg once daily instead of twice daily. • Two months later he relapsed. • His blood smear was again positive. • He was treated with azithromycin plus atovaquone for 12 weeks with clearing of the parasite. • Two months later he had his second relapse. • Atovaquone plus azithromycin were again prescribed for an additional 45 days. • Clindamycin was added for two weeks because of a persistent positive blood smear for Babesia. • Two months later he had a third relapse. • “A blood sample was tested for genetic evidence of drug resistance to either azithromycin or atovaquone. • At least partial resistance to both azithromycin and atovaquone was found, although this was not known until August 2020,” the authors wrote. • • Babesia treatment: 4 drug combination • The doctors then switched treatment to include a four drug combination. • • “Therefore, on 1/29/20 the patient was started on a malarone®-based 4 drug regimen that included: • high dose azithromycin at 1000 mg per day, • plus clindamycin orally at 450 mg three times per day, • plus a 750 mg dose of atovaquone • (in addition to the 1000 mg/day of atovaquone received as part of the malarone® drug therapy) for 41 days,” according to the authors. • • The patient, however, remained ill and was started on a 6-week regimen of tafenoquine alone. • “Tafenoquine is an 8-aminoquinoline primaquine analogue that received US Food and Drug Administration approval in 2018 for two indications: • prophylaxis of malaria for up to 6 months in total duration and prevention of relapse of Plasmodium vivax malaria,” the authors wrote. • • Note: In animal models, tafenoquin was able to rapidly clear Babesia microti parasites. • It was determined that the patient did not have a: • psychiatric history, • a glucose-6-phosphate dehydrogenase deficiency, • or QT interval changes before prescribing tafenoquine. • The patient responded well to the Babesia treatment. • However, investigators were not able to determine if the success was from tafenoquine or the weeks of therapy leading up to tafenoquine. “Experimental data from 3 different studies conducted using hamsters or mice, including highly immunocompromised mice (severe combined immunodeficiency [SCID] mice) have demonstrated that tafenoquine can rapidly clear Babesia microti parasites.”¹ They concluded, “Therefore, this single drug regimen may be of potential clinical importance, especially for treating highly immunocompromised patients with babesiosis, who require a minimum of at least 6 weeks of treatment, often extending into many months.” Editor’s note: The authors did not address the possibility that the patient might have Babesia duncani, which was originally identified on the West Coast of the U.S. but is now found in the East, as well. Babesia duncani has at times been difficult to treat. Related Articles: The case of an untreated Babesia infection Wide range of Babesia symptoms and presentations: 5 cases Geriatric Babesia cases are rising and may require longer treatment References: 1. Marcos LA, Leung A, Kirkman L, Wormser GP. Use of tafenoquine to treat a patient with relapsing babesiosis with clinical and molecular evidence of resistance to azithromycin and atovaquone. IDCases. 2022;27:e01460. doi:10.1016/j.idcr.2022.e01460e Author Dr. Daniel Cameron & Associates 344 East Main Street, Suite 104 Mt. Kisco, NY 10549 Tel: 914-666-4665 Fax: 914-666-6271 © Copyright Daniel J. Cameron MD and Associates 2022
When I was diagnosed clinically with Babesia in 2012, I had horrible shortness of breath, air hunger, fatigue, etc. I was on anti-parasitics for several years. I went through nearly every drug known for Babesia along with some powerful herbals and Boluoke, improving but never hitting remission. (I’m lucky my insurance paid for the tens of thousands worth of obscenely priced drugs I took.) My doc eventually tested me for clotting factors and one was a little high. (I’d been told more than once I had thick blood.) He put me on Lovenox and I immediately had a Babesia herx. Apparently, Babesia hides in the thick blood and thinning it allowed my immune system to get at it. I went into remission for nearly 2 years. It was so nice not to have to think about my breathing. Then I relapsed 3 times in a year. I hate taking Malarone, so my doc and I talked about Krintafel. A year ago, he put me on it for a 2 week regimen, a few days each week. My red blood cells took a mild short term hit (from die-off, I assume), and I haven’t had a relapse since. Even if I do, I wouldn’t mind taking Krintafel for a couple weeks every couple of years to keep it in remission. Years ago I tested negative for B. Microti at IGeneX. Given my Babesia’s treatment resistance and relapses, I figure I have B. Duncani.
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Thank god he has some relief!
Where can I get some
Thanks Dr C!
Powassan virus kills 1 in 10 of the people who develop severe symptoms.
50% of those who survive a serious bout of the illness continue to experience the effects of the disease, such as loss of muscle mass and recurring headaches, for the rest of their lives.
A lethal tick-borne disease is spreading in the US, driven by climate change
www.caryinstitute.org
Blacklegged ticks carrying Powassan kill one in 10 of the people who develop severe symptoms. Half of those who survive a serious bout of the illness continue to experience the effects of the disease,...2yrs after surviving Powassan I was diagnosed with a brain tumor! I believe Powassan caused the tumor however all my Drs, neurologist and other specialist can't give me a solid answer because of the rarity. My oncologist/neurologist says I'm the only one she's aware that has survived both
Dr John Torres covered ticks and Lyme on the Today show this AM. Via Craig Malvin, he gave cursory mention of Powassan referencing its "rarity". No discussion of the long list of other possible tickborne infections and speaking of Lyme as if it were well understood and rash based. Segment was different from the knowledge and confidence Dr Torres displays on other medical topics. Would be great if ILADS reached out to him and the Today show, offering further suppprt and education. youtu.be/-ADcW5HHvKs
FYI. www.liverpoolecho.co.uk/news/uk-world-news/trainee-easyjet-pilot-21-dies-24423249?fbclid=IwAR1chB...
Stop with the climate change
A question.. at the risk of being labeled a tin foiler: when we speak of climate change affecting the invasiveness of these critters, how do we know it isn’t the other way round? We’ve known since 2019 that upon the publication of Bitten by Kris Newby that US congress found that the idea that ticks were biowarfared in labs warranted a thorough investigation which was halted by the Biden Administration last year. Not to mention, the Gates foundation has partnered with Oxford to dump several loads of genetically modified bugs into Florida and California with no concrete purpose. It’s looking more and more like the government are causing “climate change” on purpose to keep people sick.
Depression, anxiety, or other mental symptoms may be among the first signs of infection, as happened with Lorraine Johnson, JD, MBA.
“If you are misdiagnosed with a psychiatric illness, you will be treated with psychotropic medications, and those are not without side effects,” said Johnson, now the chief executive officer of LymeDisease.org, a nonprofit patient research, advocacy, and educational organization. “And they may lead you on a road to nowhere. That’s basically what happened to me for about 5 years.”
At some point, Johnson recognized that she had been misdiagnosed, “because none of the medications were working,” she said. Once her Lyme disease was identified, she completed two years of aggressive medical treatment, including antibiotics, and her symptoms cleared, including her mood.
Unraveling the mystery of Lyme disease
www.apa.org
Research shows the oft-misdiagnosed tick-borne disease can lead to health problems such as fatigue, muscle aches, and memory difficulties that can erode a person’s quality of life and lead to mental...Sadly, when it takes you almost 20 years to find a doctor to consider maybe you, in fact, are not crazy, anxious or imagining your symptoms, Lyme and friends are so far burrowed into your body, no amount of intensive treatment seems to permanently help 😭. I sure wish the medical community would produce healers instead of CDC robots. 🤷🏻♀️
Exactly what happened to my son for almost 4 years. Because I had seen it before, I was able to catch it much earlier in my daughter recently. Her pediatrician actually told her she needed to be disciplined and spanked for her mood swings. We have moved on from that pediatrician and begun treatment. Believing and praying symptoms will clear. Such an awful disease.
Talking Doctors and Lyme Bad .
Omg this is what I needed to hear. Not only Lymes as I have Q Fever and Anaplasmosis which are tick borne too. So many undiagnosed symptoms.
Utilizing psilocybin and a bunch of other things like anti inflammatory diet etc was lifesaving for me and the neurological damage Lyme disease did, especially for the depression. It was like a miracle. I can’t tolerate SSRI/SSNRI’s and they’ve never helped me.. Microdosing is how I did it. Sadly, back to square one since Covid pneumonia.
Colee Marie
I had Lyme disease and doctor took test negatives results.got antibiotics , symptoms gone. Felt like had flu, all joints hurt was tired. Don't be afraid to contradict your doctor.
Educated dr's as so important......Hmmm I went through that route in the begining.
I was pleased to be interviewed in this podcast by Lyme Time with Ali from TheTickChicks.com.
EP 31: ILADS Lyme expert Dr. Daniel Cameron - Lyme Time with Ali from TheTickChicks.com (podcast)
www.listennotes.com
00:52:46 -Studies find patients may experience facial nerve dysfunction after treatment for Lyme disease. More in today's #lymescience blog.
Facial nerve dysfunction after treatment for Lyme disease - Daniel Cameron, MD, MPH
danielcameronmd.com
Lyme disease patients can suffer from facial nerve dysfunction, as long as one year after treatment.I know of two ppl that have Bells Palsy and they had it “BEFORE diagnosis and or treatment of Lyme disease”, 😪and they still have it several years beyond their treatment!!! 😩
What is the out come on the booster study with Lyme people
“Even in the absence of a known tick bite, evaluation and empiric treatment for tickborne infections should be considered for children living in a tick-endemic region, those who have recently received blood products, or those deviating from the typical course of typical fever and neutropenia,” the authors suggest.
More in today's #lymescience blog.
danielcameronmd.com
This case report features a 5-year-old boy with B-cell acute lymphoblastic leukemia, who also contracted Babesia and Anaplasmosis.🙏🙏 My heart goes out to him! I sent to you in yesterdays mail the Rx that I am taking for Sjogren's Syndrome and increased Blood Pressure. I sent the script receipt's to you FYI only., Have a good week !!
Martha, more B cell issues than MGUS or myeloma!
Kim Antanitis-Pauling
😞 Melissa Walsh!
BABESIA AND ANAPLASMOSIS IN A CHILD WITH B-CELL ACUTE LYMPHOBLASTIC LEUKEMIA 6.28.2022 By Dr. Daniel Cameron tinyurl.com/3t2yxt57 • Parents have enough to worry about if their child suffers from an underlying disease. • • In this case report “Do Not Forget About the Ticks: An Unusual Cause of Fever, GI Distress, and Cytopenias in a Child With ALL,” Ungar and colleagues describe a 5-year-old boy with B-cell acute lymphoblastic leukemia, who also contracted Babesia and Anaplasmosis. [1] • “A 5-year-old male with National Cancer Institute (NCI) standard risk B-cell acute lymphoblastic leukemia (B-ALL), in remission and receiving standard maintenance chemotherapy, was admitted to another hospital with fever, emesis, diarrhea, headache, and lethargy in July,” wrote Ungar. • The child had been diagnosed 32 months earlier with B-ALL and remained in complete remission following induction therapy. • “Four days before presentation, the patient’s mother discovered an engorged tick in his axilla (armpit), which was later identified as Ixodes species,” wrote Ungar. • He was clinically treated for Anaplasmosis and Babesia due in part to a decrease in all blood cell lines, and rare ring forms were reported preliminarily on blood smears. • The child improved with a combination of atovaquone, azithromycin, and doxycycline. • Within 48 hours of discharge, his PCR for Anaplasmosis and IgG for Babesia were positive. • “He has remained well on follow-up visits, with resolution of all symptoms and cytopenias,” wrote the authors. • “Our case highlights the importance of obtaining a thorough history and maintaining a broad differential diagnosis for a febrile, immunocompromised child,” the authors advise. • “Even in the absence of a known tick bite, evaluation and empiric treatment for tick-borne infections should be: • considered for children living in a tick-endemic region, • those who have recently received blood products, • or those deviating from the typical course of typical fever and neutropenia.” • The authors point out, “Prompt recognition and treatment are key to ensure excellent patient outcomes.” References: 1. Ungar SP, Varkey J, Pierro J, Raetz E, Ratner AJ. Do Not Forget About the Ticks: An Unusual Cause of Fever, GI Distress, and Cytopenias in a Child With ALL. J Pediatr Hematol Oncol. Dec 22 2021;doi:10.1097/MPH.0000000000002369 1 REPLY • Billie case 07/01/2022 (2:17 pm) Lyme for 25 years . SHANDS TEACHING HOSPITAL IN , FLA. CONTAGIOUS DISEASE. Says they “dont believe in long term lyme . © Copyright Daniel J. Cameron MD and Associates 2021
Awww 😢
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Not only children. Adults too. Was poo pooed at and hospitalization a week later finally got them to test me. Three tick borne diseases.
Climate change and other factors have brought several new species of ticks, and frightening new diseases, to New York in recent years.
Tick Hunting: The Prey Are Tiny, and the Bait Is Human
www.nytimes.com
Climate change and other factors have brought several new species of ticks, and frightening new diseases, to New York in recent years.1 in 3 found to have Lyme from a study collecting ticks from Jacksonville NC to Va Beach. A few yes ago ODU in Norfolk VA collected ticks for study and found ,I think, of 50 percent to have more than once infectious disease. Folks, be safe. Something tinier than a pinpoint can change your life in horrible ways or even take your life. 2004 My sister got Babesiosis when she got Lyme from a tick from Great Bridge Ball field in Chesapeake VA. Changes life as she knew it.
The transport of livestock and commercial hay from all over north America plays a huge role in this and once DDT and controlled burning was terminated a old farmer pointed out to me we never had ticks before non existent in CT this was 1973 when he yanked a tick out he was 67 then. .
Interesting that the press managed to stitch together a story among experts at SUNY College of Forestry and SUNY Upstate Medical in Syracuse. Yet, all this knowledge exists in silos especially in Upstate New York where these entities exist bit there is limited late stage and chronic Lyme and Tick-borne literacy among healthcare providers. If you're along the Albany to Buffalo corridor, get down to Westchester for your care.
I watched a few of your videos last night. Loved the one you and your psychiatrist colleague did together. I was Finally able to reach remission (after over a decade ) and as soon as I got Covid pneumonia it felt like it has all come back. So frustrating… Thank You for speaking out Dr Dr. Daniel Cameron!!! 🙏♥️ I saw you when I lived in NY btw, but you were to far from me, but I will always be grateful to you for the time you spent with me and my 32 page report!!!
There everywhere come on
Bioengineered vector
A 10-year-old boy develops bilateral facial palsy due to Lyme disease.
More in today's #lymescience blog.
Lyme disease with bilateral facial palsy, formally known as Bell’s palsy - Daniel Cameron, MD, MPH
danielcameronmd.com
This case describes a young child with bilateral facial palsy due to Lyme disease, which was treated successfully with 4 weeks of IV antibiotics.Why do western med docs ignore this. My son had BP. This was after 3 urgent care visits. First saying fever and rash was dermatitis. Other saying probably scarlet fever. ER visit says herpes/cold sore but he didn’t have one. 6 weeks diagnosed as Lyme. Why are they so hesitant to look down this path even when I brought it up multiple times.
I'm glad at least he was diagnosed.
So sad...painful I had that in March 1990. 🙂
Is this similar to what Justin Beaver has?
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