Lyme Disease Science Conversations:
Facebook Conversations
Conversations on Facebook with a leading Lyme disease expert, Dr. Daniel Cameron, about the latest discoveries and advancements in Lyme disease and associated illnesses.
The study found that clinicians were best at identifying Lyme disease. But their knowledge regarding the presence of co-infections was poor.
Illinois clinicians less familiar with co-infections - Daniel Cameron, MD, MPH
danielcameronmd.com
A survey of clinicians finds they have an understanding of Lyme disease and testing but are not as knowledgeable about co-infections.The progress has been painfully slow
Dr. Cameron, I see an herbalist exclusively for Lyme and co's now. I was in the hospital for a month on IV antibiotics. Upon my release the entire staff on my floor cheered chanting 'she's cured.' Within a month of my release my symptoms reappeared. I knew there wasn't a cure but why do so many medical professionals not know that? I was first infected in my garden in 1999 when we lived in town. In 2005 we moved to a wooded area where I was reinfected 3 more times between 05 and 08. I really got no better from the IV even after the cured chants! I did however, get out of bed and began my life again after many various herbal treatments through my knowledgeable herbalist. I do believe there is NO one size fits all treatment. I do believe there is no cure. I began seeing my herbalist at my doctors suggestion because according to IDSA and CDC If I’ve had the recommended treatment and I'm still sick, "it must be something else" it wasn't. My doctors brother is my herbalist. He helped me immensely. Please if you can explain why medicine works for some, but not everyone.
Dr. Daniel Cameron
Thanks everyone. I have taken on a more casual look.
DAN, nice photo. i haven't received any posts from you on lyme articles, etc. have you been well? i hope so. here's to a merry christmas and a health/happy new year. bettyg, ames, iowa
Looking good Dr. Dan. I knew you when we both had hair.
hope your well!
Love the Elf ears!💋💋
Great pic
Looking good Dr Cameron !!!
Very nice!
Thank you for all that you do for us in the Lyme community, Dr. Cameron! God bless you
Nice photo!
Thanks for all that you post and share.
Hello! Dr. Thanks You For Sharing.
THE MAN!
Study finds "that the brain is altered by PTLD, involving changes to white matter within the frontal lobe.”
Investigators conduced memory tests on 12 subjects with Post Treatment Lyme disease (PTLD) and 18 healthy controls while undergoing functional MRI.
They aimed to determine, using multimodal neuroimaging methods, how Lyme disease may affect the brain.
How does Lyme disease affect the brain? - Daniel Cameron, MD, MPH
danielcameronmd.com
Marvel and colleagues administered working memory tests to 12 subjects with Post Treatment Lyme disease (PTLD) and 18 healthy controls while undergoing functional MRI (fMRI). Investigators aimed to ...So true. I had the Wechsler Test & Intelligence Scale - IQ Test Prep done years ago 2 x. Short term memory testing is so important.
Just had my mri. Now being referred to neurologist. Its to bad no one wants to review my case within lyme disease studies!
I’m sure most of my brain is dead 💀
Investigators say they have identified 35 distinctive biomarkers that distinguish people with Lyme disease from those without the condition.
They plan to use the biomarkers to develop a diagnostic test that could identify the condition in other patients.
Scientists identify biomarkers that could help diagnose Lyme disease
www.washingtonpost.com
A genetic test would be an improvement on current FDA-approved tests, which identify antibodies that can take weeks to emerge.Great news! I feel as thought the should be able to zero in on Lyme especially since it was discovered in the 1970's in Lyme, CT.
Can’t be soon enough!! What about the research that Neil Spector was doing for testing?
Thank you for always keeping us up to date!
Keep up the good work!
Thank you for encouraging updates.
Thanks for info.
Lynn Rotolo -
Finally
Finally, only took 50 years!! Hope this isn’t just so they can roll out another poison vax.. that failed last time. It’s a bio-weapon so Ft Detrick has the cure, they are just withholding it from the public. They have patented research on the disease and potential cures. This screams vax,$, vax, $ to me… it’s the only reason anyone gives a shit at the moment. #truthhurts
An update on the Iceman. You may recall, scientists reported that the 5,300-year-old male found frozen in a glacier pool in the Italian Alps had Lyme disease.
“The genome sequencing of his DNA also identified that he had been infected with the spirochete, Borrelia burgdorferi, the causative pathogen of Lyme disease.”
news.artnet.com
Thirty years on from the discovery of a 5,000 year old mummy in the Italian alps, new research is rewriting the story of how he got there.I cannot take the heat! MRI on C- Spine Nov 30th...I will send you the results after my follow up appointment on Dec 12th Stay Safe!
Cold weather is extra painfull for Lyme patiants.
They can tell what a man died of 5,300 years ago...but today they can't tell if the Lyme test is positive or what they call a negative positive??
Postscript: Ozi killed by Arrows, Cold Weather, and Lyme Disease.
So it s than not lab.-made,,,
Interesting. Friends who live in Italy swear they have never seen a tick
Bekommt da jemand was in die Schuhe geschoben?
I haven't caught up with any new studies, but the first one I read years ago said only 15% of the DNA they found matched B. burgdorferi. Plenty of room for it not being exactly the same. But every year the ice man and his "Lyme " get a new PR release it seems. Chaconas et al, didn't they say that there had been recent evolution of B.b.'s genome by horizontal acquisition of genes? And that it was very unusual, with big blocks of repeated genes in tandem. By recent, I think they mean within 200 years, but I'm not really sure?
Very interesting
Amazing.
I wonder what blood type he was
Avalanche Victim his own arrow stuck him in the turbulence.
And several 'medicinal' tattoos, many at/ near joints. I forget the number. My guess was for the Lyme pain.
Ohhhh, they're admitting how he died now?
perhaps a next gen RNA therapy or combi modified anti phages could help a lot.
Thanks everyone for the support.
Have a wonderful day!
Thank you Dr. Cameron for your tireless efforts to help and educate people on TBD. Happy Thanksgiving!
So thankful for your care of my family so many years ago. Wishing you and your family the best Dr. Daniel Cameron!
Thank you Dr Cameron, may you and yours have a good thanksgiving too, and thank you for caring for my daughter and granddaughter when they were both so ill with Lyme disease 💖
Happy Thanksgiving to you, your staff and your families!
Happy Thanksgiving Dr. Cameron:) Enormous Gratitude for all you do!
Happy Thanksgiving !
Happy Thanksgiving! Really appreciate all that you do!
Happy Thanksgiving Dr.
I hope that your Thanksgiving was wonderful 🧡
Happy Thanksgiving!
Happy Thanksgiving
Happy Thanksgiving
Happy Thanksgiving
Happy Thanksgiving to you and yours!
Have a wonderful day!
Thankful for all the care from you and your staff. Happy Thanksgiving!
Happy Thanksgiving!
dan, happy and safe thanksgiving from ames, iowa.
To you as well!!!
Thank you Dr Cameron.
Take care Danny.
Happy Thanksgiving to you and yours, and your Staff!
READ MORE: What is the Powassan Virus?
danielcameronmd.com/what-is-powassan-virus/
Not sure on the stats...it is probably worse! I will send you a copy of the MRI report on my C spine from Lahey Hospital in Burlington next month. Happy Thanksgiving.
And in PA - "Deer tick virus was present in more than 80% of tick samples taken recently from three sites: Lawrence Township Recreational Park in Clearfield County, Fisherman’s Paradise fishing area in Centre County, and the Iroquois Trail near Tunkhannock on Wyoming County, according to officials from the state’s Department of Environmental Protection" triblive.com/local/regional/pennsylvania-tick-survey-turns-up-concentrations-of-rare-powassan-vir...
another thing in life to be anxious about.
“Our data clearly show that the use of telemedicine for EM diagnosis is helpful as it allows shorter delays in antibiotic therapy and consequently fewer neurological and articular complications.”
3 benefits of telemedicine for Lyme disease - Daniel Cameron, MD, MPH
danielcameronmd.com
Study finds the use of telemedicine during the COVID-19 pandemic had several benefits for treating patients with Lyme disease.Investigators explore the case of a 62-year-old man who contracted the virus through a tick bite he received during the winter months, outside normal tick season. #LDScience
Powassan virus encephalitis contracted during winter months - Daniel Cameron, MD, MPH
danielcameronmd.com
Powassan virus causes encephalitis in a patient, who contracted the virus from a tick bite during the the winter months.With Global warming.....anything is possible. Happy Thanksgiving.
The exclusive summary is a thoughtful feature. First time I’ve seen a tool like that
Great, after a bood meal, they can drop off and lay eggs within your home.
“It’s not just an East Coast phenomenon...." Lyme disease went undiagnosed for years because of the misconception that it doesn't exist in California.
Her Lyme disease went undiagnosed because of where she lives: 'Doctors don't believe'
www.today.com
While the outdoorswoman knew about other tick-borne diseases common in the West, she had no idea that Lyme disease was in California and she was at risk.So sad....this is a crime!
I sympathise !💚
Same, I even had bullseye rashes and was told they were viral.
It's everywhere. These drs and the CDC are causing so many pain and misery
Same for CO!
“This case showcases early disseminated Lyme disease with a herpetiform center, a rare cutaneous presentation, as well as an example of Jarisch-Herxheimer reaction in response to initiating treatment of Lyme.”
Can Lyme disease be mistaken for herpes? - Daniel Cameron, MD, MPH
danielcameronmd.com
A woman with Lyme disease exhibits a rare variant of an EM rash, which included a herpetiform center, which resembles herpes lesions.Diane Zeig
Weirdest disease ever!
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Lyme disease is associated with a spinal cord lesion in a 55-year-old patient. The man reported having a Bull's-eye rash 6 months before his symptoms began. He also experienced autonomic dysfunction 2 weeks prior to his illness.
Could Lyme disease have led to a spinal cord lesion? - Daniel Cameron, MD, MPH
danielcameronmd.com
Lyme disease was associated with a spinal cord lesion in a patient who reported having a Bull’s-eye rash 6 months prior to the onset of his symptoms.I am a Facebook friend to Author, Amy Tan- I meet with her years ago in Boston,. MA and she has lesions on her brain from Lyme Disease. She no longer drives a car- her husband drives or she takes a livery service. She was riding an adult tricycle for exercise too- balance is an issue for her. You can Google: AMY TAN Lyme Disease- she even wrote a book on it!
FYI. www.masslive.com/news/2022/11/a-tick-force-field-umass-researchers-develop-way-to-ward-off-ticks....
This is a super interesting topic. My wife was bit by a tick in her adlosecence, at a place and time where Lyme was totally unknown. Some months after back pain started, and after a few years it got so bad she was admitted to hospital, where, without any having any indication from MRI whatsoever, the doctors finally agreed to operate anyway (not without her first saying she could not bear the pain any longer and would probably kill herself if nothing is done). They ended up extracting a disc between L5/L1 "which was totally inflamed for no apparent reason", they really hadn't expected this and "never had seen anything alike". This was in Ukraine where nobody had ever heard about Lyme at the time. That operation stabilzed her but she spent her adolescent lifes with various pains in her limbs, back and elsewhere. Due to very healthy nutrition and life stife, she led a normal life until back pain, this time in the neck, increased to a point where she again ended up in hospital, with a facial parseis after corticosteroid injections into the neck. This time (not without me pushing doctors in the right direction), neuro Lyme was diagnosed (IgG+IgM + spinal tap all positive) and she finally got the right treatment, first in hospital and then by a LLMD in Germany. She is *a lot* better now but the area around L5/S1, including the intestines located next to it, is still a constant trouble maker and even the LLMD's here are unsure whether that is still Lyme, or PLDS, or something else. If you have some scientific interest or other in hearing more or talking to her fell free to drop me a PM.
Lyme disease - There are more cases than HIV and breast cancer combined.
The Quiet Epidemic: The next screening will be in NYC November 12th. The national rollout is set for early 2023.
Wonderful. Education is so important. I mailed information to your office about contacting my old highschool regarding having you speak on Lyme Disease. I go for a MRI of my C spine Nov 30th. I will send you the results FYI.
I actually streamed it this morning. May Neil Spector Rest In Peace and May his memory be a blessing (to those who loved him.)
If you do the math with the unreliable infection statistics basically most all are infected at this point .
We need doctors to treat it and insurance companies to pay these doctors. Patients should not have to pay for these medical services themselves. Why are doctors threatened by insurance companies and the state board for treating Lyme patients? This is a travesty which leaves many patients to suffer and die.
Fantastic documentary hopefully it will get the attention it deserves and things change for all lyme sufferers 👍 RIP Dr. Spector 🌹
I cannot believe after all these years the conversation remains the same. You can’t get people to treat you and if you do it costs a fortune All because you got bit by a tic. I see the same thing over and over again. Pharmacy makes money. Doctors make money lyme literate doctors make money Pt suffer and die Movies are made and the same people show up to view them
Beyond devastating...living the nightmare...
Putting medicine and Dr. groups on Wall Street,, Was Not a Good Idea Mr Obama ! Joint replacements at record highs, and early Alzheimers wards are packed. Good for the Shareholders...Not so good for the Lyme patients. No need to cure a disease when so many people are profiting from it. Always follow the money.
Is it possible to view it here in Australia
Saw it in EH. Wish that Julia got better by the end though. Heartbreaking
Thank you so much for sharing, Dr. Cameron! ✨🙏✨
We don’t need another movie 😫. We need a cure.
Have you experienced cognitive problems due to Lyme disease?
Can Lyme disease cause cognitive dysfunction or dementia? - Daniel Cameron, MD, MPH
danielcameronmd.com
A woman died 15 years after developing Lyme disease symptoms. She was diagnosed with dementia but an autopsy revealed Lyme spirochete in her brain and spinal cord tissue.My issues got worse just as I entered menopause and much worse than woman and men in my age bracket.
Yes! They started when I was 10 years old and have gotten worse over the decades.
Yes unfortunately 😞😟
Yes……………….
This is believed to be the first reported case of isolated femoral neuropathy triggered by Lyme disease. #LDScience
Femoral neuropathy and Lyme disease - Daniel Cameron, MD, MPH
danielcameronmd.com
Lyme disease causes neuropathy, or nerve dysfunction, in the legs of a 61-year-old man. A delay in antibiotic treatment could have led to multifocal neuropathy.I feel bad for so many that are puzzled, stuck from having contracted Lyme Disease. I refer others to your office in Mt. Kisco, NY.
An erythema migrans (EM) rash often DOES NOT present in the form of a bull's eye rash.
"Our findings corroborate other reports stating that EM commonly presents as a homogeneous, uniform lesion that may have central darkness or clearing, but infrequently presents with a bull’s eye, or ring-within-ring, pattern. The lesions tend to be pink-to-red, oval-to-round, with well-demarcated borders and no punctum."
The Spectrum of Erythema Migrans in Early Lyme Disease: Can We Improve Its Recognition?
www.cureus.com
Background and objective Diagnosis of early Lyme disease (LD) often relies on clinical recognition of the skin lesion, erythema migrans (EM), a diagnostic sign of disease when laboratory testing is in...My son got those rashes from Ants
Interesting article
"In a study using specialized imaging techniques, Johns Hopkins Medicine researchers report distinctive changes in the "white matter" and other brain tissue physiology of those with post-treatment Lyme disease..."
The findings could help "validate that memory, and other cognitive difficulties experienced long-term by individuals with post-treatment Lyme disease, are linked to functional and structural changes in the brain."
Researchers report white matter differences in post-treatment Lyme disease patients
www.news-medical.net
In a study using specialized imaging techniques, Johns Hopkins Medicine researchers report distinctive changes in the "white matter" and other brain tissue physiology of those with post-treatment Lyme...This case report describes how undiagnosed Lyme disease with neuroborreliosis could induce sudden sensorineural hearing loss and facial nerve palsy – as long as one year after the infection with Borrelia burgdorferi.
One year after infection, patient shows signs of Lyme meningitis
danielcameronmd.com
One year after a tick bite and infection with Lyme disease, a woman experiences symptoms of Lyme meningitis, including deafness and facial palsy.Dr. Cameron- I mailed to you a CD of my June C Spine X Rays you can see a change in C 5 and C 6. I don't need it back it's just FYI.
What about creating protocols to test all the chronic infections that cause illnesses and test Every person with schizophrenia with the 15 pathogens that cause schizophrenia and so on
Sure, I knowwww about that too! Someday, somehow everybody will realize what has been going on ALL these years...😥💚
Could disulfiram, a drug intended to deter alcohol abuse, be effective in treating Lyme disease?
Use of disulfiram for Lyme disease - Daniel Cameron, MD, MPH
danielcameronmd.com
Several studies examine the effectiveness of disulfiram for the treatment of Lyme disease.