Chronic Lyme vs PTLDS: The Debate The debate over chronic Lyme vs PTLDS isn’t just about words—it’s about whether patients feel validated or dismissed. Many patients use chronic Lyme disease to describe ongoing fatigue, pain, and brain fog. Some clinicians prefer post-treatment Lyme disease syndrome (PTLDS), a term that sounds more neutral but often feels […]
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Understanding Persistent Lyme Disease Symptoms Some patients recover quickly after Lyme disease treatment. Others continue to experience fatigue, cognitive slowing, joint pain, dizziness, or sleep disruption long after antibiotics are completed. When symptoms persist, patients are often left wondering: Why am I still sick? Persistent Lyme disease symptoms are often part of a broader clinical
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Immune Dysfunction and Dysregulation in Lyme Disease Immune dysregulation in Lyme disease may help explain why symptoms such as fatigue, pain, and cognitive changes can persist—even when standard tests are normal and initial treatment has been completed. Many patients with Lyme disease experience persistent symptoms that are increasingly understood to involve immune dysregulation, even long
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Palinopsia: Why Afterimages Won’t Go Away Quick Answer: Palinopsia is a neurologic condition where images persist or repeat after the original object is gone. It reflects altered visual processing in the brain and may be linked to migraine, seizures, medications, or other neurologic conditions. When Vision Doesn’t Let Go Some patients notice that an image
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When Medicine Says There’s Nothing More to Do When symptoms persist beyond what medicine can easily explain Author’s note: I wrote this because I often meet patients who have been told there is nothing more to do, even though their symptoms persist. This post explains why that phrase usually reflects the limits of a medical
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When Symptoms Are Blamed on Aging, Look Deeper When Symptoms Are Blamed on Aging Symptoms blamed on aging are often accepted without question. A patient noticed a gradual decline in stamina as routine activities became exhausting, sleep no longer felt restorative, and shortness of breath appeared with simple tasks. He assumed it was just getting
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Can Lyme cause bladder pain or urgency? She came to see me after months of feeling dismissed. She was experiencing Lyme bladder pain — pressure, burning, and urgency that felt exactly like a UTI, yet every test came back normal. She is not the only one. Many women quietly live with bladder pain due to Lyme
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Long COVID or Lyme Disease? When Symptoms Don’t Add Up He wasn’t losing his mind—he was losing time. Each week blurred into the next as fatigue and fog deepened. When he finally came to my office, he’d already accepted a diagnosis that wasn’t quite right. A patient came to me months after recovering from COVID-19.
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How Do I Parent or Work With Lyme Disease? Practical Strategies After 37 years treating Lyme disease, I’ve seen patients struggle with a question they rarely ask directly at first. Instead, they describe the fear underneath it: they worry that they are failing their children, wonder how long an employer will tolerate unpredictability, and grieve
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Fear of a Herxheimer: Why Delaying Treatment Backfires Fear of a Herxheimer reaction is one of the most common reasons patients delay Lyme treatment. The worry can feel bigger than the disease itself. I remember one patient sitting across from me, struggling to find the words before finally admitting: “I’m scared to treat my Lyme
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