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People can have an impaired immune system from an overactive and underactive immune response. “A strong immune system responds appropriately to the challenge; a weak immune system may over-respond or under-respond,” explains Kostoff and colleagues in the journal International Journal of Molecular Medicine. [2] Should Lyme patients get the COVID-19 vaccine?
They added, “A weakened immune system appears to be the main determinant of serious/fatal reaction to viral infection (for COVID-19, SARS, and influenza alike).”
Lupus, rheumatoid arthritis, and Hashimoto’s thyroiditis are examples of an over-response of the immune system. Lyme disease is another example of an overactive immune response. [3]
The CDC report touched on the risk to individuals with a weakened immune system in developing a severe COVID-19 infection. [1] It acknowledges that there is limited safety data on the use of the mRNA COVID-19 vaccination in individuals with an impaired immune system. “Information about the safety of mRNA COVID-19 vaccines for people who have weakened immune systems in this group is not yet available.”
The report pointed out that, “People with weakened immune systems should also be aware of the potential for reduced immune responses to the vaccine, as well as the need to continue following all current guidance to protect themselves against COVID-19.”
The CDC guidance report was issued to allow individuals with a weakened immune system to make “an informed decision about receiving the mRNA COVID-19 vaccine.”
The authors point out that there is little information above the vaccine’s impact on individuals with autoimmune conditions. “They should be aware that no data are currently available on the safety of mRNA COVID-19 vaccines for them.” Nevertheless, the authors advised treatment.
Editor’s note: It is clear that COVID-19 can be severe for some individuals. There is a paucity of information on the risks and benefits of the mRNA COVID-19 vaccination for Lyme disease patients. I have been advising my patients to take the mRNA COVID-19 vaccination based on a review of the risks and benefits. Some doctors have advised against taking the COVID-19 vaccination based on their risk and benefit assessment.
Related Articles:
Are you reluctant to take the COVID-19 vaccine?
Opinion: Low COVID-19 vaccine trust among Lyme disease patients
References:
- Vaccination Considerations for Persons with Underlying Medical Conditions. Centers for Disease Control and Prevention (CDC). https://www.cdc.gov/coronavirus/2019-ncov/vaccines/recommendations/underlying-conditions.html Last accessed 12/31/20.
- Kostoff RN, Briggs MB, Porter AL, Aschner M, Spandidos DA, Tsatsakis A. [Editorial] COVID19: Postlockdown guidelines. Int J Mol Med. Aug 2020;46(2):463-466. doi:10.3892/ijmm.2020.4640
- Aucott JN, Soloski MJ, Rebman AW, et al. CCL19 as a Chemokine Risk Factor for Posttreatment Lyme Disease Syndrome: a Prospective Clinical Cohort Study. Clin Vaccine Immunol. Sep 2016;23(9):757-66. doi:10.1128/CVI.00071-16
Related Posts
Twenty two years ago my Lyme Specialist told me not to do any vaccines and not donate blood.
I share similar views on donation of blood given the problem with Babesia. The risk of a COVID-19 infection is high enough to question your doctor’s advice on the vaccine. I find the risk of COVID-19 is worse that the risk of the COVID-19 vaccine.
I think it’s not a one size fits all, COVID. Everyone reacts differently. I had it and was grateful not to have been hospitalized, but was close. None the less I would not get this vaccine due to my lack of immune system from chronic lyme. My doctor advised me to not get an updated tetanus shot due to my immune system being weak. Unless there are lyme patients willing to be guinea pigs, I think it will be a few decades to see true reaction and effects of this vaccine for everyone regardless of their health issues or lack there of, especially in the lyme community. Thanks for the info and your honest thoughts Dr.
Dr. Carmeron,
I was advised about not getting vaccine by my LLMD when I was first Diagnosed a very long time ago. Two things.
1.
I had Covid19 was like have a really bad case of the flu.
I had a high fever bad cough, congestion, I had to use my oxygen, I had no energy, my Dr did end up writing me a
prescription for cough medicine.
So I am not sure where getting the vaccine is worse than getting Covid19 especially if the vaccine sets off a reaction in your body with your immune system and your Lyme goes crazy. Or worse you get covid from the shot. Please don’t tell that doesn’t happened I have many friends of mine that are ER Doctors, Covid Doctors and Nurse that have gotten the vaccine and got Covid19.
.
The COVID-19 is produced using a messenger RNA. The COVID-19 vaccine is not a virus and therefore cannot cause COVID-19. We do not know if the vaccine can lead to changes in the immune response of individuals with or without COVID-19.
Your ability to respond to such questions while also not getting entangled in the pseudoscience is great. You’re like a Ninja who also knows the Jedi mind trick.
same here my LLMD
Since the beginning of my Lyme journey in 2012, age 55, I have been advised to use my best judgement regarding flu vaccines etc. I believe the 2012 vaccine caused a chain reaction which set off a long dormant Mononucleosis, age 18. I was very sick for 4 weeks, 2-3 of which I was bedridden and unable to walk normally. I believe the flu vaccine caused or contributed to my downfall. I have not has a flu vaccine since then. I am very reluctant to have ANY vaccines right now. I would like to see an article from Lyme patients and what their reactions are to getting a Covid vaccine. I will wait and see. My Lyme is now in remission and I’m walking again.
Thank you for keeping this discussion current. I am of the wait and see crowd. Also I must point out that having been so sick with Lyme and co-infections for decades, the my answers to the standard screening questions for Covid-19 could all be yes.
In other words, it is hard to think of throwing one more thing at my immune system.
What if you have Lupus and Lyme Disease. Do you still recommend getting the COVID vaccination?
I have been following the findings for individuals with autoimmune diseases including Lupus. I have not seen an issue despite their impaired immune system. Individuals with Lupus present with an overactive immune system as in Lyme disease. The CDC advised individuals with autoimmune disease to take the COVID-19 despite the paucity of evidence.
seriousley in all due respect Dr C . The cdc also said postlyme did not exist and we all know that story, I would never listen to them. I suffered too many years of hell and thanks to DR R and llmds like you Im alive.
donna
If we Lyme disease Patients have a choice of Vaccines, which one would you recommend.!.
I am unclear which is the best vaccine. Sorry.
Does a current lyme diagnosis count for an underlying condition with respect to prioritization for the covid vaccine?
I have not seen Lyme disease on the priority list despite their impaired immune system.
Thank you for the information. What are your thoughts for those with lyme and the MTHFR gene mutation (1 or 2 copies)? It is harder to detox with this mutation.
Sorry again. I don’t have an answer.
I’ll be getting the vaccine this week. Will let you know if I have any difficulties.
How did it go Kyle? I’m still on the fence. I have post-lyme syndrome or chronic lyme. Whatever you want to call it these days. Fatigue, inflammation, muscle pain, brain inflammation our my main symtoms. I am testing the waters with the vaccine by seeing how others do with it.
Many chronic lyme patients have a low white blood cell count, and their RA, hashimotos, etc are infection driven. Seems like this makes them harder to fit neatly into these categories. Plus, more than a few have mast activation, which makes adding new things, whether food or vaccines, potentially a problem. Then there is advanced age. They are giving the shot to nursing home people, but it was my understanding that the immune system weakens with age.
It may be hazardous for any doctor to recommend against a vaccine for this population, since people who don’t immediately get vaccines, and doctors who don’t recommend them often are called anti-vaxxers. It is so tiring to have to keep pointing out shades of gray in what too many people consider a black and white world.
well stated
I completely disagree for the following reasons:
1. COVID-19 shows no greater mortality rate than the seasonal flu (which the CDC conveniently quit counting). If you are not over 70 years of age, you have less of a chance of dying from COVID than from influenza.
2. Speaking influenza, every single Lyme/MSIDS patient I’ve worked with has had a relapse of symptoms after the flu vaccine. This shows you have a 36% greater chance of getting COVID if you get a flu vaccine: https://www.sciencedirect.com/science/article/pii/S0264410X19313647?via%3Dihub
3. There are effective treatments for COVID-19 (HCQ, zinc, Ivermectin, IV vitamin C, among others). Please see: https://jameslyonsweiler.com/2021/01/17/dr-pierre-korys-slides-from-unbreakingscience/. Dr. Kory blows the NIH statement against Ivermectin out of the water with science. It even works prophylactically.
3. There are NO completed clinical trials of this experimental medical device (it isn’t a vaccine at all, it is mRNA packaged in a fat envelope, that is delivered to a cell that does not stop transmission but is a treatment). When you get the jab, you are effectively now a test subject IN their ongoing trials. There is no recourse if you are injured.
4. Moderna has admitted that the mRNA injections are an Operation System, called the “Software of Life”: https://www.modernatx.com/mrna-technology/mrna-platform-enabling-drug-discovery-development
5. Dr. James Lyons Weiler explains there are unsafe epitopes: https://madisonarealymesupportgroup.com/2020/12/04/medical-freedom-press-conference-must-see-video/
6. Coronavirus vaccines have a terrible safety record. Vaccinated animals got more serious disease and many died.
7. Two sources state this “medical device” can potentially cause sterility:two sources are now saying the COVID-19 vaccine can cause sterility: https://madisonarealymesupportgroup.com/2020/08/24/gsk-whistleblower-covid-vaccine-caused-sterility-in-97-of-women/ and https://madisonarealymesupportgroup.com/2020/12/09/uk-government-warns-doctors-about-covid-vaccine-but-not-patients/
8. Our public health ‘authorities’ have severe conflicts of interest and are not to be trusted. They own the patents on the pathogens, the tests, and the vaccines: https://madisonarealymesupportgroup.com/2020/04/26/cdc-playbook-learning-from-lyme/ and https://madisonarealymesupportgroup.com/2020/07/30/how-the-cdc-uses-their-own-guidelines-to-rig-the-system/
9. Lyme/MSIDS patients are in an epic war for their health. The last thing they need to do is partake in a dangerous experiment when there are good treatments and many things they can do to make their bodies tougher targets. Don’t be afraid of a virus.
There are certainly a lot of ideas floating around on the COVID-19 vaccine that are not supported by the evidence.
What are your medical qualifications to make such statements? Your claim, comparing covid mortality to the flu has been routinely refuted and implies an ideological bias. (Here is just one demonstration: https://ourworldindata.org/mortality-risk-covid) You cite only one peer reviewed publication in your comments, and it fails to support your thesis: “Receipt of influenza vaccination was not associated with virus interference among our population.” Your comments appear have the intent of fomenting fear in a group already suffering from lyme and associated diseases. Finally, your slander against public health practitioners is unwarranted and unfounded.
Way to go girl! I completely agree Alicia! I’ve been battling Lyme for 30 years. I got the flu shot once 5 years ago and had to be hospitalized.
Since the outbreak of CoVid-19 I moved from New York City to New Jersey, traveled to Florida and LA. All while testing negative and never had a symptom of CoVid. Why on earth would I subject my body to this vaccine? No thank you, I won’t be a government experiment.
It sounds like that plan will work…until it doesn’t.
“Don’t be afraid of a virus.”
Until you or someone you know dies from it.
It’s one thing to read conspiracy theories on Alex Jones’ website and quite another to see someone you know get hammered by COVID-19. (e.g. a 27 year old with no comorbidities on a ventilator, a single mother in her 30s who died and left behind a child, a woman hospitalized for three months and then required months of therapy.
After battling Lyme for ten years under your care I’ve been symptom free for five years now. Based on the good doctor’s suggestion that the danger from contracting covid 19 seemed to be far greater than any risk there might be from the vaccine, I decided to take it – I had my second shot of the Pfizer vaccine last week, no side effects, no reactions – so far so good
Can you comment on how your feeling since the second vaccine?
Thank you for your comment! Could you update us on how you felt since the second dose and so on?
On Saturday, I just received the Moderna vaccine and so far have had no reaction. I live in a congregate setting. We currently have a severe cluster outbreak of COVID-19 in the very building where I live. Seeing COVID-19 first-hand motivated me to get the vaccine despite the risks. I have also been supplementing with Vitamin C, D3, Zinc, herbals, teas, and am taking antibiotics for Lyme. My chronic Lyme Disease symptoms mimics COVID-19 symptoms. The only way to know is to get tested. The vaccine is not for everyone, but it maybe for some with chronic Lyme Disease. My decision was based on the greater risk of contracting COVID-19 with Lyme Disease vs the risk of receiving a vaccine which could help protect me against COVID-19. Each person needs to decide for him/herself what is best for them.
I’m in the wait and see mode. My coworkers aunt got the vaccine over a month ago and then got Covid-19.She died a few days later
Is it generally safe for someone being treated for co-infections to receive the vaccine? I am scheduled for March 6th and currently on Doxy, Fluconazole and Cefuromine…as well as Samento, Houttuynia and Cryptolepis. My co-infection symptoms are stable and I have shown marked improvement.
My patients are torn with the risk of the vaccine vs risk of COVID-19. My patients have tolerated the vaccine. I have a few readers who write that they have had a flare-up. Most of my patients take the vaccine after weighing the risks and the benefits.
Once again thank you for writing about the important things Dr C! My question relates to cytokine storms. I am now in remission. When I was the sickest with Lyme I had very high CRP and cytokine levels. Since Covid causes cytokine storms I’m nervous about getting the Pfizer vaccine. But I’m getting my first dose tomorrow anyway because I’m way more scared of dying from Covid. Could you write about cytokines and how they relate to Lyme and the vaccine? Thank you
I have found it difficult to find clear information on cytokines with COVID-10 and the COVID-19 vaccine to write about, yet. Let me know how it works out.
Thank you! I’ll let you know how I feel and I’m prepared with my arsenal of herx meds
I have chronic Lyme, fibromyalgia, CFS, and Hashimoto’s (but the only one anyone ever believes is Hashimoto’s, lol). I had Covid 19 last summer for about 6 weeks (high fever the first ten days, low grade after that, general flu-like symptoms). I did not go to the hospital and my Covid test was negative, but after I was better and had bloodwork done, I had antibodies so my doctor said that I did indeed have Covid 19. I got the 1st Moderna vaccine last Thursday 3/11/21. I was very sick beginning the next morning and had a fever for 4 days. The following 5 days have been much better but I get a headache around midday and begin to feel very fatigued. I’ve been off from work this week so I’ve been able to take a nap for about an hour or so when that happens. Sometimes it helps and the headache goes away. Sometimes it doesn’t (like today). That’s where I’m at now. I go back to work Monday so I hope I’m feeling better and headache free. I’m worried about the second dose of the vaccine in April. I cannot afford to be sick another week. I have recently read that people who have had Covid 19 may still have lingering antibodies which cause a stronger reaction to the vaccine and they may not need a second dose. I’m on the fence about getting the next shot in April.
Dr Cameron,
First let me thank you for putting this resource out there. This is a very overwhelming decision for us who have been ill for so long. I have chronic Lyme as well as recently diagnosed bartonella infection. I’m not on any treatment at this time other than anti seizure meds, gaba, pain meds and a few vitamins. I am on limited fluids because I have very low sodium 119 due to a medication im on. I also have hashimotos, Cfs, fibromyalgia, low sodium, Epstein Barr and several other co infections. I not doing any treatment at this time. I am slightly overweight as well. I developed a very painful neuropathy in my feet about 8 months ago and it’s near impossible for me to walk, wear socks, shoes, even slippers. We’ve found nothing that works on my pain and sleeping is nearly impossible. A punch biopsy has been ordered. I need help. First, Ive read that you are recommending patients get the covid vaccine. I have an appt for a moderna and a j&j. Do you recommended one over the other? Also, are you taking new patients. I’m not sure I’ve found the right fit for me and my issues. I may be seeking out a second opinion.
Thanks so much for you help.
I have reluctantly supported the vaccine because of the risk of short and long term complications of COVID-19. I walk my patients through the risks and benefits that work for them. I have not seen a difference between the vaccines, yet. I am taking new patients.
I am 73 years old. I was diagnosed with Lyme 5 years ago. Treated at onset for 10 days and had negative test. 10 months later I was in extreme pain and tested positive. Treated for 2 months with doxycycline. 6 weeks after treatment – symptoms returned but at a much lower pain level. The truth is I am very concerned about the vaccine and it triggering a stronger Lyme reaction. I’m being pressured by my family to get the shot. I would like to do a wait and see as I am able to quarantine.
As you can tell from the comments there are Lyme disease patients who describe a flareup of their symptoms. The only reason the COVID-19 vaccine is being discussed is due the severity of the virus from some patients. It might be helpful to weigh the risks and benefits with your doctor.
I met w a new Lyme doctor today and she advised me not to get the vaccine at this time, she would like me to wait a couple weeks to see if any new data comes out regarding Lyme and our immune system. I’m very confused what is the right thing to do. I get a lot of pressure from family and friends that I need to get the vaccine. They say since your immune system is compromised why would you not get it? I said that’s exactly why I should not get it.
Thanks for sharing your concerns. I have Lyme disease patients in my practice who are facing the same tough decision. Normally my patients would wait. Unfortunately, the virus does not always wait. And the virus can affect the immune system.
Same thing happened today with advice from my doctor. He said to wait for the J & J to come back. The Pfizer and Moderna won’t jive with my Chronic lyme. Plus I have hypothyroidism with half of my thyroid deformed and missing, malaria and cat scratch fever was also found on my test for lyme.
I have chronic Lyme disease and have had the moderns vaccine. I’ve had a reverse in my chronic fatigue and have more energy than I have in years. Just hope it continues! I was more afraid of getting covid 19. Just a personal decision
Hi, thanks for sharing your response. I have had chronic Lyme Disease for the past thirty years. Three days ago I had my second vaccine (Moderna). I had the flu for one day, and have felt weak the past two days but am recovering. The weird thing is that my Lyme symptoms are better! I have had minimal or no aches since I got the vaccine, and I had been waking up extremely achy every day before. This may be a temporary side effect of the vaccine, but I’ll take it! As for getting the vaccine, for me there was no contest between strong reaction to vaccine versus getting covid. The last thing I want is another chronic illness. Everyone must decide for him/herself.
Every Lyme patient seems to have a different compilation of symptoms. For that reason, I believe that each of us must decide what is best for our own unique health situation. That includes making an informed decision about the pros and cons of getting the Covid vaccine.
That’s great news, Jennifer. I hope your improvement continues, too.
Like many others, I’ve also been unsure what to do. There’s so many conflicting opinions.
Again, congratulations. Stay well.
Hi Jennifer. Could you tell me how you are doing now after the 2nd dose of Moderna?
I have chronic Lyme, Babesia and Bartonella. I’ve been in remission feeling great for 14 months. I received my 2nd Moderna shot 2 weeks ago and I now have Bart symptoms. AND…the reemergence of an old bullseye. Exactly the same presentation in exactly the same place. Hi Dr. Cameron!!!!!
Amy Fein- the same thing happened to my 27 year old son. Two weeks after his second moderna vaccine his neuropathies flared up and his Bartonella
Symptoms returned.
Did you go back on antibiotics immediately ? He has a call with his LLMD to decide what to do . I would
Appreciate your feedback and interested to know how you are doing now . Thanks
My symptoms flared after the second shot. It’s been a month and I’m still not well. I was feeling 90% better prevaccine. Very discouraging.
Dr. Cameron, do you know of a way to find out what to test for to even a little bit figure out if one is at risk for a vaccine adverse event? Things like PEG/Polysorbate-80 allergies, mast cell disorder, vascular and brain issues, genetic tests, things to do with clotting, existing viruses that could reactivate, vitamin deficiencies, blood pressure, blood sugar, immune system things, other underlying conditions? I don’t know where to start. Of course I realize it would not be the whole answer or even a small part, but getting tests might help me get over my vaccine hesitancy (if nothing is found, that is). Thank you.
I have not run into any information on who is at risk of an adverse event. It would help to reduce vaccine hesitancy.
I was diagnosed with Lyme disease early March 2021 and am taking doxycycline, as well as all sorts of supplements and concoctions from my naturopath. I am scheduled to get the Pfizer vaccine in a few days and am of course very concerned. Like others on this site, I believe my Lyme disease symptoms (numbness in hands, feet and face) were triggered by the flu vaccine in November 2020 (my second flu shot in all of my 62 years). Both my naturopath and family doctor have suggested I not get the Covid 19 vaccine until additional data is available. Since that could take years and since I don’t live in a bubble, I have decided to proceed with getting the vaccine. I wonder if we indicate « Lyme disease » on the vaccine questionnaire whether we would be denied the vaccine? I live in Canada. Good luck to all of us.
I have had Lyme for three years now. Didn’t get diagnosed for months. Took Doxy. I’m going in to get my 2nd Moderna shot now. I’m so scared! I’ve been sobbing and close to vomiting all morning. My reaction to my first shot was bad. I had chills, headache, vomiting, muscle pain and weakness/exhaustion. Very scared my reaction to this 2nd shot will be worse.
Thanks for this valuable site. It has given me information to make a decision on whether to get the vaccine or not. I have had Lyme for 30 years and have severe reactions to a flu shot, so I will be not getting the Vivid vaccine.
Wow your reaction sounds very similar to mine. I hope we both find relief soon.
My comment is meant as a reply to Julianne.
How are you feeling now? I hope you are feeling better.
I had the first Pfizer shot on 3/22. Took my antibiotic on day 5 and 7 after the vaccine. On 3/30 my body created a severe Lyme storm. Burning, pins and needles, chest wall pain and chills all night. Brain inflammation a result and included blurry vision, brain fog, high sensitivity to light and sound, motion sickness and extreme anxiety along with inability to sleep. I was put on bed rest for 2 weeks. Returned to work for 4 days thinking I was good. That weekend, couldn’t get out of bed. Showed up for work on Monday 4/19 and was sent home with weakness and pounding heart. Have been on sick leave ever since. Ended up being in bed for around 8 weeks. LLMD put me on Invermectin which helped at first but eventually had to stop due to increased pain. On June 1st started IV Rocephin.
Started to come out of it. Dr ran bloodwork again for Lyme and co infection testing. Tested positive for Bartonella which was undetected before the vaccine. Now on oral antibiotics for Bartonella. And the kicker- no antibodies or T cell response from the Pfizer vaccine. Now what? I’ve never been so sick in my life and I’m still unprotected from Covid. I need to go back into the classroom in September. What can I do to protect myself?
Why would you take an antibiotic 5 days after a vaccine? What was the purpose? The vaccine builds up your immunity – for a period of 3 weeks (and then you take the 2nd shot) but you wiped out your immunity when you took the antibiotic. It sounds like such bad timing to follow a vaccine with antibiotics. Please explain. ???
I would appreciate it if you could have any evidence to support your concerns. Antibiotics kill natural bacteria in the nose and gut. Antibiotics also can lead to a Herxheimer reaction. And, there is also the concern of leaving a persistent tick-borne infection untreated.
Hi Dorothy,
I continued my antibiotic treatment under the care of my LLMD. I was taking my antibiotic 3 times a week and a second antibiotic every 7 to 10 days. So I had the vaccine and continued with my Lyme treatment.
I hope this makes my post more understandable.
Julianne,
I feel for you. I had to stop teaching many years ago when I collapsed from severe multiple chemical sensitivities.
I also have a Lyme co-infection, bartonella, and two other auto-immune conditions along with low immunity.
I have been helped with any flu symptoms by liquid herbs and supplements called Buried Treasure, made by a co. called ACF.
Maybe some of the herbs that well-known herbalist Stephen Harrod Buhner recommends as anti-virals would protect you from covid. They were tested before covid-19 came along, with SARS patients. Buhner thinks SARS was similar enough to covid-19 for the same herbs to be preventive. I dont know whether he has written anything about the Delta variant and whether the same herbs
work for that. You can find the full list of herbs in one section of his book, Herbal Anti-Virals. They include lomatium, scutellaria baicalensis, houttynia, ginger tincture, licorice tincture (I would take deglycerized licorice–easier on gut), isatis and others. (Some of these are only available online.) I don’t know whether they work on the Delta variant. Maybe glutathione would also help you?
A friend with dysautonomia and other Lyme symtoms was helped by IV Vitamin C and was on antibiotics for a long time. And, while this may sound far-fetched, people have used strong anti-viral herbs— thyme, oregano and eucalyptus— for centuries for plagues. You can make a steam tent with a towel over your head held over a pot of boiling water with thyme and oregano in it and breathe it in. Careful to keep your head high enough to avoid burns. Or, you can use these as essential oils diluted in a pure oil like olive or coconut and put the mix into a diffuser. As long as you breathe them in, it’s fine. Cinammon and lemon or lemon balm EOs have been tested in some study and shown to help reduce viral load. I use them altogether in a diffuser. Just to be clear, all of this is to protect against covid, not to treat the Lyme. I hope some of it is helpful. And I really hope the LD / vax reactions clear up very soon so that you can get back to the classroom.
I’m curious has anyone had covid, then gotten the first Pfizer shot, had a flare of symptoms (still on going 3 weeks later), and then gotten the 2nd shot. If so, how did you do? Thanks!
Diane, the same thing happened to me! I had covid in November then got my first Pfizer shot in March and it flared my Lyme up badly. I still don’t feel like I have recovered and it has been 4 months. I am unsure of what to do about getting the second shot for fear it will make me even worse. What did you find out??
I’m in the same boat. Stressed about it everyday. One dr says not to get it one dr says to get it . I’m so torn and confused . I usually get the bad and rare reactions to everything also so there’s that.
Btw I love dr cameron he was my lyme dr for over 2 years.
I had my first case of lyme 15 years ago , at that time Drs were not aware of it, I thought I was on remisión after being very ill for 7 years and got bit again and had a Bartonella, and a Babiesi coinfection this time I went with a lyme specialist and ,lyme has been under control after being very ill another 4 years ago, I have done everything in my power to stay healthy, my protocol is 300 dollars a month, I’ve had 4 surgeries in the last 4 years, I will not put myself at a health risk knowing there is no data on long term effects with the vaccine, my lyme Dr recommends it’s best not to take the vaccine, I am 69 years old and I refuse to put myself at risk of being ill again, my chances of getting Covid are way lower than getting sick or dying with an experimental vaccine.
I have had the two Moderna shots and now feel like I am riddled with lyme. My joints hurt, I’m stiff and I have neuropathy. I feel 20 years older and I’m 62. Has this happened to anyone else?
I am reading because my disabled son is being tested today for Lyme disease snd we were leaning towards him being vaccinated with moderns in next couple weeks( before we knew about Lyme).
I have been bit by 100’s of ticks in my lifetime, but have never thought I had Lyme disease, but after the Shots I hsve had difficulty with joints and feel 20 years older. In fact, they gave me a hip replacement, but I don’t think my hip was causing the difficulty walking thst I now have agsin. Just read an article saying it does not cause issues with joints and arthritis and sadly thst tells me it does.
Yes, I came to research for that very reason. Since I have been fully vaxd with Moderna since April, I feel like the Lyme beast has awakened within me. Neuro especially.
I had Covid end of April beginning of may this year, had my good, bad and REALLY BAD days. I have had Lyme for about 19 years which feels weird to say because I’m only 26.. I have terrible joint and nerve pain (restless leg syndrome), brain fog, etc. And had open heart surgery when I was 2, among other surgeries. My work is considering mandating the vaccine and I never thought of how it would affect my Lyme until now. Reading your guy’s horror stories is eye opening. I severely doubt I will be getting these shots!
Thanks for sharing your experience with COVID-19. Would you kindly be able to share your experience in my Lyme disease and COVID-19 Survey. You can access the survey on my website by clicking the orange button at https://danielcameronmd.com/lyme-disease-covid-survey/ or use the QR Code. You do not have the COVID-19 vaccine to share your concerns.
I had lyme and anaplasma in 2016 and ended up getting bell’s palsy on the right side of my face. The bell’s palsy cleared up within several weeks but lyme symptoms persisted a few years (numbness and cold/wet sensation on my head and fingers). I still have some things that I wonder if they are symptoms but overall feel like I’m better. I got my first pfizer shot a couple weeks ago and within a few minutes felt tingling in my right hand and right side of my face. It felt like it did when the bell’s palsy started in 2016. It lasted about a day but never progressed. I’m due for the 2nd shot soon and wonder if I shouldn’t get it.
I have favored the vaccine to prevent death and hospitalization. I have also been concerned with flare-ups in some of my patients and individuals reading my blogs. I advise working with a doctor to determine what is right for you. I would appreciate it if you could complete a survey on Lyme disease and COVID-19 to share your experience with others. You will find the link at https://danielcameronmd.com/lyme-disease-covid-survey/
i had lyme, ehrllichiosis, babesiosis and was treated for 12 yrs with massive antibiotics on a daily basis…survived and healed.
Went thru hell. The TBD ate my thyroid gland and left me with diabetes type 2…I have been off antibios for 9 yrs but have to take thyroid meds and diabetes meds of course. I am fearful of any vaccine as I watched my dear friend get the flu shot and was almost killed with GBS. IVIG for a year saved her with two infusions a week…she was near death for a month and faced a long recovery but still left her suffering with neuropathy in her feet for which she takes a med… I fear both covid and the vaccine. I don’t know what to do so am getting ivermectin and Glutathione and NAC and Alpha lipoic acid….and masking up everywhere. It is risky as unvaxed are the ones dying and hospitalized from covid. But being a guinea pig with the CDC pushing it and denying the efficacy of ivermectin and hydroxychloroquin and other efficacious treatments makes me both suspicious and angry. They always say ‘follow the money’ and surely big money is being made by the companies who provide vaccines.
Thank you for sharing your struggles and co cerns. Prayers for you and your friend that you mentioned. I too share your concerns. God bless
Hi, thought I would share my story. I have had Lyme disease for 3 years, which I have been treating with Cowden protocol. I also did a cycle of Hydroxychloroquine (low dose) which was the best I’ve felt in years! After hearing true horror stories from friends and family members about vaccine side effects (multiple heart attacks, paralysis, and blood clots in lungs) I decided to hold off on subjecting myself to the experimental vaccines as I didn’t know how it would react with my meds and Lyme disease. I figure I already have enough probs from lyme without adding anything more to the mix. My husband accidentally brought home Covid (Delta variant) and we both got sick for about 2 weeks. I don’t recommend it, but would compare it to a really weird form of the flu. I had severe fatigue and lost sense of taste and smell which made food taste horrible and felt strange. The worst part was a bad migraine that lasted a few days and kept me in a dark room along with joint pains. I had a bit of a lingering dry cough, but never felt short of breath or anything scary. My husband and I both recovered fully with no issues following Covid. We are both in our mid-30s and healthy other than me having Lyme, so those could be factors in having a mild case. Luckily we got no one else sick and are now immune, at least for a while now. I think everyone should be free to choose to vaccinate or not because we all have separate, unique circumstances that make us biologically diverse. For me, risk of vaccine was greater than risk of the virus and I feel confident I made the best choice for me. But I also respect others who may choose differently due to their own unique circumstances. I wish everyone health and safety during these difficult times. <3
I’ve been struggling with late stage neurological Lyme disease for 30 years. I was finally diagnosed when I had a Bell’s palsy, and white matter on my brain mri, but it was a new disease back then and that was why it went undiagnosed for so long. As bad as it is to have my memory be so bad and my body to be so tired and not sleep since I was 17, I was lucky enough to not really have the joint symptoms. After the second Pfizer dose, I feel as though my joints have been stiff and my body has been sore. I was hesitant before getting the shots, now I decided I am not getting any boosters or anything else. I keep praying for a miracle every night!!
Has anyone treated their Lyme with bee venom therapy? My daughter has been on BVT for a year now and is showing some improvement – not big, but she is better. Any information about the covid vaccine, Lyme and bee venom?
I have not seen any. Perhaps a reader will share some information.
I don’t see anyone who has commented who has maintained remission for quite some time and vaccine results ? I’m so scared of both covid and the vaccine that it’s starting to cause me a lot of anxiety. My last bloodwork results were perfect. I just do not know what to do ?
My husband has suffered from recurring Lyme disease for 25 years. He had covid back in March 2020. He received the J and J vaccine in July and has since felt not really right. He recently tested positive for Lyme disease again and feels the vaccine may have triggered a relapse. What are your thoughts on this?
Some of my Lyme disease patients have have described a flareup of their Lyme disease. Others do not. I posted a Lyme disease and COVID-19 survey to determine how often and how severe these relapses are. I would appreciate it if you would complete the survey if you have not already done so. Here is the link. https://danielcameronmd.com/lyme-disease-covid-survey/
I had the Pfizer shot and I was fine for a couple weeks. I’m not sure what happened, it was either the shot once it was in my body long enough to do it’s thing or, the one time I went in the grass this summer for a wedding (didn’t see a tick on me but it’s possible as we know). Both were around the same time as I got the shot right before the wedding. I’ve had flu symptoms, horrible fatigue, chronic sinus issues for 3 months now. I’ve been tested for covid as I have all the symptoms but negative. I was tested on the Asyra Bio-energetic scan (which I’m a huge believer in) and I have active Babesia, Bartonella, and Borrellia now. These are the same 3 strains I have been fighting for 13 years but I have had them in check except for the Bartonella. I am treating now with Doxycycline and Zith along with the Cowden protocol for 2 months with slight progress but Im constantly fighting a cold or soar throat, fatigue bad my back hurts, I can tell my immune system is shot. I’ m bedridden most days so I’m not putting myself at risk. I don’t know what came first, “the chicken or the egg” but, I either got bit at that wedding, or the Pfizer shot caused a breakdown in my immune system and a flair in all Lyme strains in me. Once I can turn this corner, I don’t think I’m willing to take the risk of getting the second shot. This is pretty awful. 🙁
Susan p raboy I am on home page! I’ve had Lyme since 1999! Upstate NY! First the shingles shot caused neuropathy! I didn’t know pharmacist did not tell me! I was on valacyclovir she knew that. That shot set me up for things to come! Ruptured 2 fingers more trouble walking/ standing pain up my rectum!!!! Downhill from there! Found out I had low lgA you don’t fight infections!
Years later trusted my Dr for covid moderns at his office to be safe today is aug 19/2022. 5 days later my bf came home from work finding me unconscious! I had AkI UTI fever RHABDO SEPSIS! Rushed to hospital given iv excessive fluid resucitation 8 days! Hospital 10 days rehab 7 days! Away from home 17 days! Nurses were mean to me! Nite nurse male named Robert nice! Now after being home 6 months my body started to burn Everywhere! Too sick and no help! I have left several comments and this is an update!
I can’t seem to get thru Dr Cameron’s survey! The medical industry is gaslighting me! I am bedridden completely! I did not get timely or proper treatment for neuropathy. Dr Richard bordowitz was mean I told him I was having trouble walking and he said “,WELL YOU WALKED IN HERE dDIDNT YOU!!!???? Who says that? I would like to her from Dr Cameron personally as 20 years of hell is too much to put here!!!!
Iv had Lyme for over 13 years- (I’m 36) It went untreated for over a year before I knew what it was. I went to a great doc who has since retired – and was on antibiotics for years (on and off). I have moved, had kids- and have basically put my own health on the back burner for so many years- going through cycles for where I feel great, and days weeks or months where I can barely function. I almost ALWAYS have chest wall pain..- especially during the night. Like so many others, I’m searching for what to do… vaccinate or no? I’m so torn. I need to find a good Lyme doctor in my area. A couple of years ago I did try to start the health journey again by starting with a primary- of course her bloodwork said no lyme. Based on my symptoms she sent me to a rheumatologist who spent 4 mins with me and diagnosed me with “post Lyme syndrome” and sent me on my way. Any advice???
Some doctors are diagnosing Post Lyme Syndrome or Post Treatment Lyme Disease Syndrome without a test to rule out a persistent infection.
I had a horrible reaction with having lyme and my doctor keeps pushing for 2nd shot and I’m a health care worker who is mandated and she won’t sign for medical exception. I was sick n had a flare up for 6 days and she failed to return my call Monday n blindly said without seeing me to do it again.
Do you still feel the side effects of your 1st Covid Vaccine? If the side effects stopped after 6 days, in the long term, would you consider the protection of the vaccine worth the side effects? We’re trying to help my husband’s son, with lymes, decide whether or not to get Covid vaccine.
I was diagnosed with Lyme and multiple coinfections in 2011. Undiagnosed and misdiagnosed for 13 years. I have already had covid twice. October 2020 and February 2021. I recovered about 90% of previous health in about 3 weeks with the first case and am still very much struggling after the second case. Both cases landed me in the ER a few nights but I was never admitted. I have not received a vaccine yet for fear of a cytokine storm. I feel as though if I’m not properly protected after 2 natural infections why would a vaccine be different.
Could you share your story in the Lyme disease and COVID-19 survey if you have not already done so. The link is https://danielcameronmd.com/lyme-disease-covid-survey/
Hi all , this has been really helpful!. I am so glad to have found some people with Lymes , hashimotos, EBV, etc…. I have had Lymes since I was a kid. Didnt realize it until I actually tested CDC positive in 2017. got all my 7 kids tested and all positive in varying degrees ( if you can say that). I didn’t do antibiotics because of terrible candida throughout my life. I Treated with herbs and Ozone hemotherapy. Candida diet , antifungals, etc.. too much to mention. I have been high functioning all along… brain fog for sure along with arm issues ( nerves). I am not sure why I have done pretty well but I am assuming it is because my parents really fed me well and I continued to eat healthy and exercise all of my life not knowing what I know now. I work as a PT but can only handle Part time now but I am 56 years old. I have not been immunized yet. Simply put I am scared of having a terrible reaction. I have been called selfish and uncaring and everything you can think of by my own family ( not my immediate family but brothers and sisters. I have worked hard to decrease my thyroglobulin and thyroidperoxidase numbers from. uncountable to 150-400.. ( not great but better ) I cant afford to go backwards . Reading this forum helps me to not feel so alone in this struggle and helps me to know that others are going through the same thing. Thanks Dr Cameron. Can you tell me ……if the novavax vaccine is released (non MRNA) in the USA… would that be possibly a better choice for those of us who are struggling with Lymes, hashimotos, EBV, heavy metal toxicity?
I do not know enough about the upcoming vaccines to help you.
Has anyone ever heard of Lyme actually protecting you against covid-19?
No. Why? Did you hear that and where from or was it just a random question?
ABX do not affect viruses, only bacteria.
I have had Lyme for the past 7 years. I also had covid that did not present symptoms, but has left me with durable antibodies for well over a year now. I can’t in a million years take a vaccine that is supposed to give me a version of what is already working for me with the potentials of more harm coming my way. This is great general advice in the article, but when it gets down to it, everyone’s body is different, it’s possible to know more relevant info about your body, and attempts to control others livelihood based on fear narratives is tyrannical in nature.
I have had Lyme for the past 7 years. I also had covid that did not present symptoms, but has left me with durable antibodies for well over a year now. I can’t in a million years take a vaccine that is supposed to give me a version of what is already working for me with the potentials of more harm coming my way. This is great general advice in the article, but when it gets down to it, everyone’s body is different, it’s possible to know more relevant info about your body, and attempts to control others livelihood based on fear narratives is tyrannical in nature.
Have you seen or heard of Lyme patients getting a booster mRNA vaccine? It has been the proper amount of time from my first two. I know that my Lyme and coinfections have altered my immune system and that I may not have had a full response to my initial vaccines, however I’m not sure that under current guidelines a person with Lyme disease is actually considered immune suppressed and would actually qualify to receive a booster.
I have patients who have taken the booster shot successfully. I have been encouraging everyone to share their experience with boosters through a survey. https://danielcameronmd.com/lyme-disease-covid-survey/ I am hoping to share the results soon.
I have patients who have taken the booster shot successfully. I have been encouraging everyone to share their experience with boosters through a survey. https://danielcameronmd.com/lyme-disease-covid-survey/ I am hoping to share the results soon.
Have you seen or heard of Lyme patients getting a booster mRNA vaccine? It has been the proper amount of time from my first two. I know that my Lyme and coinfections have altered my immune system and that I may not have had a full response to my initial vaccines, however I’m not sure that under current guidelines a person with Lyme disease is actually considered immune suppressed and would actually qualify to receive a booster.
I’ve had Lyme for 23 years, it’s something I would not wish on anyone. I have suffered with so many of the same things all of you have. I have pain everyday, brain fog, vertigo, nausea, allergies to everything! Some days so fatigued I can’t do anything. I also am terrified to have the covid shot. My son is ill right now, so I have an appointment to get it tomorrow. I’m getting it to be safe around him. I’m hoping all goes well. I’m confused.
I’ve had Lyme for 23 years, it’s something I would not wish on anyone. I have suffered with so many of the same things all of you have. I have pain everyday, brain fog, vertigo, nausea, allergies to everything! Some days so fatigued I can’t do anything. I also am terrified to have the covid shot. My son is ill right now, so I have an appointment to get it tomorrow. I’m getting it to be safe around him. I’m hoping all goes well. I’m confused.
Hi Gail,
I’m sorry to hear about your symptoms. Mine seem similar as well as the worries about the shot.
Did you get it and how are you feeling right now?
Love,
Ursula
I was originally infected with Lyme in the mid 1980’s at the age of 12 +/-. I am currently 46 years old. I was knocked down in October of 2017 with Lyme, Babesia, and Bartonella. After 4 years of conventional (ILADS) and herbal (Cowden & Buhner) protocols I was not getting any better. At times I lost my ability to speak, to walk, to care for myself. I stopped all antibiotics at the end of August and now I am on day 68 of the Lyme Laser Center protocol and I am 90% better. I am almost back to my pre-Lyme self. My symptoms (too many to list) are gone. I no longer have air hunger, pain is significantly improved. I felt like if I stayed on the other path I was on, I was destined to live a life of profound disability. I am under no circumstances getting any Covid injection, EVER. I simply do not trust the pharmaceutical industry or big government. The lies are too great and the conflicts of interest for the wealthy disheartening.This virus reminds me of Plum Island and Fort Detrick all over again. It is a dehumanizing disease that far too many highly “educated” healthcare providers simply do not understand. Best of luck to those suffering from this insidious disease.
Stephanie, BSN, RN
I was originally infected with Lyme in the mid 1980’s at the age of 12 +/-. I am currently 46 years old. I was knocked down in October of 2017 with Lyme, Babesia, and Bartonella. After 4 years of conventional (ILADS) and herbal (Cowden & Buhner) protocols I was not getting any better. At times I lost my ability to speak, to walk, to care for myself. I stopped all antibiotics at the end of August and now I am on day 68 of the Lyme Laser Center protocol and I am 90% better. I am almost back to my pre-Lyme self. My symptoms (too many to list) are gone. I no longer have air hunger, pain is significantly improved. I felt like if I stayed on the other path I was on, I was destined to live a life of profound disability. I am under no circumstances getting any Covid injection, EVER. I simply do not trust the pharmaceutical industry or big government. The lies are too great and the conflicts of interest for the wealthy disheartening.This virus reminds me of Plum Island and Fort Detrick all over again. It is a dehumanizing disease that far too many highly “educated” healthcare providers simply do not understand. Best of luck to those suffering from this insidious disease.
Stephanie, BSN, RN
Hi Stephanie. Can you please share with me what the Lyme laser center protocol is and where they are located. I’m desperate. I just recently came out of the hospital after being there for six days because my left leg was temporarily paralyzed. I’m very scared. I’m walking now again but with the support of walker which is still great because I’m getting my strength back. Thank you.
I got Lyme disease approximately 22 years ago
During the worst part which was during the first year after, included dizziness caused by my neck and jaw area swelling. Those symptoms have been greatly reduced until after 20 minutes after I received the J & J vaccine. That single vaccine was approximately 9 months ago. Since that vaccine, I have not felt as good and have had more reoccurring symptoms of the neck and jaw pains which I believe were associated with my original Lyme.
I’m quite uncomfortable about receiving the suggested booster.
I am sorry to hear you have has a tough 9 months. Have you filled out the survey to share you experience. Here is the link https://danielcameronmd.com/lyme-disease-covid-survey/
I received the 2nd Pfizer shot March 30th, 2021. I felt sick. In April I tested positive for Lyme. 8th time in 25 years. 3rd time with no tick. I live in Florida for the past 3 years. I full blown arthritis like pain everywhere. X-rays and blood tests reveal only Lyme. Positive in April, negative in June, positive in October. We’ve tried steroids, antibiotics, antihistamine, Cellebrex, none did a thing. Trying Vitamin D2 50000 IU every 3 days. So now it’s Oxycodone in Pain Management because no one knows what to do. I am not getting the Flu or COVID Booster Vaccine. I am 66
Diagnosed with chronic neurological Lyme in 2007. It’s the nightmare everyone says it is. I felt I needed to get the covid vaccine because I have young grandchildren. The first two shots made me feel terrible. I swore I wouldn’t have the booster, but because of omicron I did. Almost 2 weeks ago. Every single original Lyme symptom I had all those years ago is back. Migraine headache, gut stuff, malaise, body aches. I will NEVER get another booster. I would rather live alone in a yurt somewhere then go through this again. I regret the decision and don’t advise it to Lyme patients.
I have had Lyme Borrelia and other co-infections for 20+ years. Now, at 60+ years I feel the disease has taken the best years of my life. So I am still watching when it comes to the new Covid-19 vaccines. I have had to suffer so much these last 20 years with stiff, knotted neck, chest pains, candida/thrush, blood clots, arthritis, so much pain in my knee joints I am becoming immobile. I have become hypertensive now with low O2. My muscles and tendons have painful knots. My eyesight has been affected. My esophagus has eroded and I get severe stomach pain. My skin (that was once nice) now has blotches of red, scaly itching. When the Lyme is flaring…I get these small red dots all over my arms and torso. I call them petechia….but don’t know for sure. I do know the large itchy, painful, scaly rashes are psoriasis. Sleep is scarce and fitfull. I easily dehydrate and get UTIs. Some days are so painful, I can’t talk to anyone. One Vitamin Dr. told me that I had exhausted adrenals and sold me over $100. of vitamins ! Now I must consider a trial vaccine for Covid-19 that may make all my symptoms worse and maybe kill me. I have to see more data before I can make that decision. Cannot find Lyme Literate Dr. in my area. Sad and self-quarantined for now.
Hi Paige,
I’m sorry to read about your suffering. Unfortunately I recognise a lot of your ailments. Have you already received a vaccine?
I’m still in doubt.
Hope you’re doing well/better.
Love,
Ursula
I have had Lyme for over a decade and am holding my own at about 75% of functioning with use of herbs, nutritional supplements and alternative therapies. After gathering as much information as I could about the Covid vaccines, I made the decision to get both Pfizer vaccines and the booster because the thought of dying from Covid really frightened me. Other than an initial increase in cytokines for a few days, I have not noticed a decline in my health or worsening of my Lyme related symptoms since being vaccinated. My concern is that I have low Immunoglobulin A subclasses. I am not sure if Lyme disease caused this immune issue or if it is something I was born with. But more importantly, I am not sure that the vaccines were enough to build up my immunity toward Covid 19 due to this deficiency. After being fully vaccinated and boostered months ago, I still test negative for Covid antibodies. I know that there is no real test for Covid immunity, but I wonder if I might need another booster in order to be fully protected against Covid.
I agree that the tests for COVID-19 immunity are not as reliable as we would like.
Too tired and sick to tell all. Got Lyme in 1999. Sent to ER with tick bite rash that developed cellulitis. Given keflex for cellulitis but not referred to infectious diseases doc and explained I would need dioxicycline. Dr kucherov diagnosed neuropathy first visit.did ok for years till neuropathy got worse spread up into my bowels. My gastro Dr told me to wash with water as my bowels were irritated due to baby wipes he said. Now bedridden 5 years with probably cancer. Not wanting to be anti-vaxer got shot at my doc’s office to be safe! Huh! 4 days later my bf home from work had me rushed to hospital. Moderns shot caused UTI/fever/RHABDO/sepsis!!!! Wish I had died!! Now my pain is worse!! I became unconscious! In hospital 17 days!!! Think carefully !!!!!
Dr Cameron,
What is the percentage of patients and people on this blog that have had reoccurrence of Lyme or Lyme returning from the vaccines? From what I’ve been reading on your blogs, it seems the majority are having problems, yet this is not addressed. I know you say “sorry and ask them to fill out survey.”But that’s it. I too filled out your survey last year. Other LLDs are seeing problems and adverse reactions in their Lyme patients too. Many have serious concerns and don’t want to reactivate their Lyme with co-infections, yet some LLD are not addressing this. I was supposed to be in one of the trials for a Covid vaccine, and was disqualified due to a history with Lyme. Interesting…
Susan 2/26/22 I left a comment above and left out I also had AKI so UTI fever rhabdo sepsis this was last aug 24th my birthday next day 25th I was so out of it didn’t even know. Hospital 10 days rehab 7. No one explained what happened to me before during of after.my bc found me unconscious coming home from work luckily it was only ,4 hours not 8.. at first it seems like I was doing better
Then my blood flow started to look in my feet and hurt like hell. My whole body BURNs l can’t eat and have anorexia cachexia pain meds don’t work I remain bedridden. All my Dr can say is he didn’t know this would happen! The nurse says I’ll be fine! I am not fine I am in agony! They did not explain the permanent damage all this could cause. Now I have kidney infection from the AKI pool in feet not look. My boyfriend found me rushed by ambulance. Was told my little body did not fight off the antibodies!!!!
My neurologist doesn’t seem to believe in neuropathy caused by Lyme he always thinks it’s MS! The symptoms are similar I also suffer from REM sleep disorder. I was always healthy and active! HELP! I live upstate NY got Lyme 1999 which was a banner year for Lyme infestation. There was no talk you could get neuropathy only fku like symptoms. The only Lyme Dr around here is Dr horowitz he is One mile away from me but only takes cash now no insurance!!! It’s a cash cow!! I feel like I can’t go on. L
I have had Lyme disease at least twice. I grew up in Old Lyme. In 1984 after several misdiagnoses I was finally diagnosed with Lyme, mononucleosis, and pink eye, while in college in Ohio, where the doctor had never heard of the disease. Before I had been diagnosed with whip lash due to an incredibly stiff neck and pain killers which caused me to hallucinate, this was before college in CT. My blood work finally came back positive for Lyme. I have Lyme again at least once. My question is, I recently got a flue shot, which I have never had, and the Covid booster at the same time, and I feel like I have Lyme again. Is there any correlation between the shots and Lyme?
I have some patients with symptoms but fortunately they resolved in 3 days. I have had a few that have lasted longer. I have my patients return for an evaluation to be sure they do not have a persistent infection.
Most of my Lyme disease patients are nervous about vaccines. Of course, they are also worried about COVID-19. I have had a few patients who have had a flareup but it is always unclear if it is from the vaccine or a regular flereup
I replied on 2/26/2022 I believe my comment is on front page but I left out AKI!!! That is your kidneys shutting down! It was sctually10 days hospital rehab for 7 days. If your system is immunocompromised (diabetes) arthritis low lgA that’s an immunoglobulin that you need (one if 3) to help fight infections. I obviously do not give infections. I am much more sick and this happened end of last August. I also didn’t mention I suffer from cachexia for last 5 years so the RHABDO did a number on muscles.the struggle is real people lol but too much pain to laugh just want people to be aware!
I understand the hesitancy about getting the vaccine when you have Lyme disease. I’m really surprised that Lyme specialist aren’t more concerned about how it will impact the immune system for chronic Lyme patients. People who have and suffer from this disease aren’t going to trust anything experimental. The comments in this article say enough about what the jab has done for those people who were told to get it. However… this is something to look into for anyone who hasn’t done it yet. It’s safer and sounds promising. There’s nothing in it like the other vaccines contain that might be questionable. I’m following the studies. It’s nice to see there’s a safer option coming about. Look up information about Novavax! It’s protein based without mRMA.
Hello Dee,
I am still doubting about Novavax, as I have Lyme’s as well.
Doctors have turned me away twice, with thrombosis, kidney and gallstones, plus heartrythm disorder.
I’m afraid they’ll turn me away when I develop severe symptoms.
Did you take the Novavax and how was your experience?
I hope you’re doing okay.
Love,
Ursula
Hello Dr Cameron. I was a patient of yours several years ago..My question is; After having Lyme three times along with all the co-infections with last one that gave me Anaplasmosis and ehrilichosis that put me in the hospital (three years ago). Today I have what Many Dr’s call chronic Lyme. I have never felt the same since my first diagnosis and treatment of the Lyme and co-infections. The physical feelings have prompted me on several occasions to be tested for MS, fibromyalga and rheumatoid arthritis (RA). The MS diagnosis is waiting for me to take the brain scan.
All of this said…am I a candidate for the second booster shot and if so how do I get it..do I need a Dr prescription for the second booster? Please advise
I am sorry to hear you are still ill. I advise working with your doctor on the vaccine booster decision.
Although it made me sick for several days, I got both doses of the Pfizer mRNA Covid vaccine, along with a booster (close to nine months ago). Thankfully, I have not yet gotten Covid (at least I have not ever tested positive for it or had symptoms). Even though I continue to be very careful to wear a mask in public, I do feel that the vaccine was also helpful in my case — at least for a number of months. I was planning to get a second booster, when it becomes available for those with compromised immune systems. However, I just barely found out (not even two weeks ago) that I have early stage invasive breast cancer (still waiting for further testing to determine the exact stage and diagnosis). As Covid cases are rising again — already up quite a bit here in Utah — I am wondering what you suggest for someone like me. Should I still plan to get the 2nd Covid booster if/when it is available to me? I am 47 years old, and for the first booster I qualified as a person with a compromised immune system – due to the medication I was taking for my autoimmune disease (which is really a result of chronic Lyme and various co-infections, EBV, etc.).
I am happy you tolerated the 2 shots and booster and than you have not had COVID-19 to your knowledge. I have have had the same concerns that you expressed. I have to discuss the pros and cons of COVID-19 and the vaccine with each of my patients. There is always uncertainty. I would likely favor the next booster given your new diagnosis of cancer.
Neuropathy from Lyme disease is fairly common in my practice for patients who have been ill for awhile.
I have also had Covid twice, once in the beginning when I was struggling to breathe but there wasn’t really a cure and then a year later, again after traveling, with a horrible sore throat. Different strands but I had been vac-
Hello Dr. Cameron. I have RLTF for roughly 9 years now. It comes and goes with episodes and times of no episodes. My question is 1. : my RLTF has increase since have both Pfizer vaccines and booster. I am concerned the vaccines have affected my already weak autoimmune system. In 2020 I had only 6 episodes for the year however, since receiving my first vaccine in March 2021 to present I have had 28 episodes of RLTF.
2. Are there any studies addressing this issue with the vaccine? (I was required to get the vaccine to keep my employment with the federal government.)
Originally, after much blood testing and rounds and rounds of antibiotics the bacterial spirochete was never identified. I was sent to an infectious disease Dr. about 7 years ago to no avail. Not Lyme, not Rocky Mtn, etc. an unknown bacteria.
I do still have the dead tick in a jar if ever technology becomes available to do DNA on him?
Not knowing when another episode will happen is almost as debilitating as the actual fevers, chills, muscle and joint pain, and, headaches I get with each episode.
3. I wondering if my body’s response is overactive category because of the Covid-19 vaccines?
Please help with any information, Kindly Susan
I had been dx clinically in 2002 of late stage neurological Lyme after a seizure and year of brain fog. I believe infected in 1984 hospitalized for a week followed by severe headaches on and off then dx with primary Sjogren’s Syndrome and treated with prednisone could not tolerate Plaquenil or methotrexate. In 2002 after seizure 6 weeks IV rocephin than to Dr D in Boston with rotating antibiotics from 2003-2010 when he retired. Had no one finally found an id doc specializing in Lyme by this time felt in remission then because she was non reachable I had first 2 Covid vaccine and the booster in August. Then on February 18th I had my second booster at noon was fine but had an mri of cervical at 9 pm I experienced gun shot pains immediately and passed out cold the techs never noticed couldn’t push button my hand was numb left with those pains for days left with extreme histamine like headaches nightly with braccardyia insomnia now vision disturbances memory issues feel like lost my life again and no great doc. My Rheumy wanted to ramp of prednisone to 10 7.5 5 and back to ; that I was on thinking my autoimmune system is overreacting saying it’s all going to go away be patient. Well no better he said if no better by time back to original dose better find a Lyme doc then I need one I had almost 11 years of life watched three grandkids full time for 6 years then Covid hit I only thought of my autoimmune where do I turn is this the neuro Lyme feels like it butter never had this painful nightly head pain pressure do I need Ivs anything you can recommend I am scared this will kill me when I was trying to protect myself and why didn’t the mri team watch me asked when I had my last booster the combo did it I feel so stupid but docs should have talked to patients about possibilities and the ID doc nor none of them ever bought up the vaccine and the neurologist who sent me for cervical mri said checking for ms I was fine then told him I didn’t have MS never even did a neuro exam why did I do it I took my life away so ignorant
I pulled a tick off me in June 2021, developed arthritis, was treated with six weeks of antibiotics and sent on my way (though it took several months to get over the arthritis). Then in May 2022, I pulled another tick off of me, developed arthritis and got antibiotics. It seemed to be working. Then, after taking them just over a week, I got a Covid booster. About 24 hours later, I began twitching, and since then, despite 28 days of antibiotics, the twitching has gotten worse, along with bodily vibrating or buzzing. I now have trembling, tremors, ringing in my ear, and jelly limbs that I’m having trouble controlling. I’m scared to drive. My infectious disease doctor refuses to treat me further and has sent me to a neurologist to be tested for M.S. However, I’ve found a Lyme literate doctor who I hope will treat me soon (in a month). I’m writing this simply to communicate my experience. I don’t know if there was a connection between the Covid booster and the apparent crossing of the blood-brain barrier by the Lyme, but it’s possible. And I hope I don’t end up chronically ill because of it.
There are overlapping immune responses with COVID, the COVID-19 vaccine and Lyme disease. There is so much to learn. I am glad you have planning on a second opinion on Lyme disease as part of your evaluation
Lyme affected my gut to the point that I developed chronic pseudoileus and MCAS and was unable to eat more that 5 things without anaphylactic reactions. It took a long time to get under control and back to eating normally with Cromylin antihistamines prednisone probiotics, enzymes, flagyl physicians elemental diet, gut revive supplements. upon taking the Covid vaccine symptoms retuned immediately, tnf-a and IL-10 levels were very high and the only things found to help the issue was prednisone, digestive enzymes and flagyl. Flagyl has been studied and reduces inflammatory markers in this case. I’m interested in knowing if Monolauran could have a similar affect. I’m still having some issues and can’t have dairy, gluten, eggs, chicken and multiple other foods without getting sick.
It’s an immunologic overactivity to the proteins in the vaccine causing inflammation and allergic like symptoms and should be treated that way. Too many people are suffering and being forced to take the vaccine when they could get euvasheild instead or wear a mask and practice social distancing. There are even some suggestions that antivirals for herpes viruses help stop transmission as the two viruses are synergistic. There needs to be more research and a choice based on health history
There are more questions than answers.
I have commented many times here but could not complete your survey! Started with Lyme and now after moderns vaccine made me unconscious hospital 10 days rehab 7! Now my entire body burns and hanmertoes/arthritis much worse! Also bowel/uro pain. I don’t know why the survey rejected me but I feel like I’m wasting my time. There are no drs who help Lyme because at this point there is no cure and I did not know you are an associate of Dr Horowitz who takes cash only. This is not a concerned Dr but just one that wants to line his pockets at other people’s suffering. I !I’ve one mile from him in Hyde park ny and I can’t afford his protocol and potions supplements. Don’t really know what you’re trying to accomplish. Good day
Just came across this two years after the fact. I’ve been suffering for over a year and a half post 2nd dose of mRNA vax. I had occasional problems in the past with joint pain flare-ups and irritable bowel. Now I have many more bad than good days. I also have extreme tinnitus, extreme fatigue that comes and goes. I may have undiagnosed rheumatoid arthritis or something similar. My shoulders and hip become very painful for no reason for days on end and then it’s gone suddenly. I also tested positive for Lyme’s about a year ago even though I live nowhere near ticks. I must have had it from years ago and didn’t know it. I wish I would have been warned ahead of time and I feel like those who should have been advising caution because of the unknowns were either asleep behind the wheel or worse emotionally or worse yet financially driven by their actions. These jabs were pushed with zero regard to the individuals complicated immune system. I fear the damage is untold and may remain untold because of what’s at stake.
I have had patients in my practice with long covid and others who have symptoms after vaccination. Some of them have benefited by re-treatment for their Lyme disease.
I was not aware that taking COVID vaccines could be detrimental to my health on top of Lyme disease. I have taken 4 vaccines over the last 2 years and have not had any change in the symptoms which I have had for at least 2 years and which I attribute to Lyme disease. Fingers crossed! Thanks Dr. Cameron
I did not find it detrimental to participants with Lyme disease who took the vaccine in a large survey (accepted for publication today). Nevertheless, there are some individuals who reported a flareup of symptoms. We could use more research in this area. I also advise my patients with symptoms after a COVID-19 vaccine to look again at for a persistent tick borne infection.