Should Lyme disease patients with an impaired immune system get the COVID-19 vaccine?

lyme-disease-immune-system-vaccine

The Centers for Disease Control and Prevention (CDC) posted mRNA COVID-19 vaccination considerations for people who have a weakened immune system. “People with HIV and those with weakened immune systems due to other illnesses or medication might be at increased risk for severe COVID-19.” [1] Individuals with Lyme disease, who may have a weakened immune system, have expressed concern over the vaccine.

 

People can have an impaired immune system from an overactive and underactive immune response. “A strong immune system responds appropriately to the challenge; a weak immune system may over-respond or under-respond,” explains Kostoff and colleagues in the journal International Journal of Molecular Medicine. [2]  Should Lyme patients get the COVID-19 vaccine?

They added, “A weakened immune system appears to be the main determinant of serious/fatal reaction to viral infection (for COVID-19, SARS, and influenza alike).”

Lupus, rheumatoid arthritis, and Hashimoto’s thyroiditis are examples of an over-response of the immune system. Lyme disease is another example of an overactive immune response. [3]

The CDC report touched on the risk to individuals with a weakened immune system in developing a severe COVID-19 infection. [1] It acknowledges that there is limited safety data on the use of the mRNA COVID-19 vaccination in individuals with an impaired immune system. “Information about the safety of mRNA COVID-19 vaccines for people who have weakened immune systems in this group is not yet available.”

The report pointed out that, “People with weakened immune systems should also be aware of the potential for reduced immune responses to the vaccine, as well as the need to continue following all current guidance to protect themselves against COVID-19.”

The CDC guidance report was issued to allow individuals with a weakened immune system to make “an informed decision about receiving the mRNA COVID-19 vaccine.”

The authors point out that there is little information above the vaccine’s impact on individuals with autoimmune conditions. “They should be aware that no data are currently available on the safety of mRNA COVID-19 vaccines for them.” Nevertheless, the authors advised treatment.

Editor’s note: It is clear that COVID-19 can be severe for some individuals. There is a paucity of information on the risks and benefits of the mRNA COVID-19 vaccination for Lyme disease patients. The risk of COVID-19 is far greater than the risks of the mRNA COVID-19 vaccination. I have been advising my patients to take the mRNA COVID-19 vaccination based on a review of the risks and benefits.

References:
  1. Vaccination Considerations for Persons with Underlying Medical Conditions. Centers for Disease Control and Prevention (CDC). https://www.cdc.gov/coronavirus/2019-ncov/vaccines/recommendations/underlying-conditions.html Last accessed 12/31/20.
  2. Kostoff RN, Briggs MB, Porter AL, Aschner M, Spandidos DA, Tsatsakis A. [Editorial] COVID19: Postlockdown guidelines. Int J Mol Med. Aug 2020;46(2):463-466. doi:10.3892/ijmm.2020.4640
  3. Aucott JN, Soloski MJ, Rebman AW, et al. CCL19 as a Chemokine Risk Factor for Posttreatment Lyme Disease Syndrome: a Prospective Clinical Cohort Study. Clin Vaccine Immunol. Sep 2016;23(9):757-66. doi:10.1128/CVI.00071-16
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74 Replies to "Should Lyme disease patients with an impaired immune system get the COVID-19 vaccine?"

  • cheryl meehan
    07/11/2021 (9:11 pm)
    Reply

    I have had the two Moderna shots and now feel like I am riddled with lyme. My joints hurt, I’m stiff and I have neuropathy. I feel 20 years older and I’m 62. Has this happened to anyone else?

  • Isabel
    07/07/2021 (6:43 am)
    Reply

    I had my first case of lyme 15 years ago , at that time Drs were not aware of it, I thought I was on remisión after being very ill for 7 years and got bit again and had a Bartonella, and a Babiesi coinfection this time I went with a lyme specialist and ,lyme has been under control after being very ill another 4 years ago, I have done everything in my power to stay healthy, my protocol is 300 dollars a month, I’ve had 4 surgeries in the last 4 years, I will not put myself at a health risk knowing there is no data on long term effects with the vaccine, my lyme Dr recommends it’s best not to take the vaccine, I am 69 years old and I refuse to put myself at risk of being ill again, my chances of getting Covid are way lower than getting sick or dying with an experimental vaccine.

  • Stephanie
    06/30/2021 (9:10 am)
    Reply

    I’m in the same boat. Stressed about it everyday. One dr says not to get it one dr says to get it . I’m so torn and confused . I usually get the bad and rare reactions to everything also so there’s that.
    Btw I love dr cameron he was my lyme dr for over 2 years.

  • Diane Willard
    06/28/2021 (12:15 pm)
    Reply

    I’m curious has anyone had covid, then gotten the first Pfizer shot, had a flare of symptoms (still on going 3 weeks later), and then gotten the 2nd shot. If so, how did you do? Thanks!

    • Elizabeth Dinges
      07/14/2021 (7:53 pm)
      Reply

      Diane, the same thing happened to me! I had covid in November then got my first Pfizer shot in March and it flared my Lyme up badly. I still don’t feel like I have recovered and it has been 4 months. I am unsure of what to do about getting the second shot for fear it will make me even worse. What did you find out??

  • Julianne Philp
    06/26/2021 (11:15 am)
    Reply

    I had the first Pfizer shot on 3/22. Took my antibiotic on day 5 and 7 after the vaccine. On 3/30 my body created a severe Lyme storm. Burning, pins and needles, chest wall pain and chills all night. Brain inflammation a result and included blurry vision, brain fog, high sensitivity to light and sound, motion sickness and extreme anxiety along with inability to sleep. I was put on bed rest for 2 weeks. Returned to work for 4 days thinking I was good. That weekend, couldn’t get out of bed. Showed up for work on Monday 4/19 and was sent home with weakness and pounding heart. Have been on sick leave ever since. Ended up being in bed for around 8 weeks. LLMD put me on Invermectin which helped at first but eventually had to stop due to increased pain. On June 1st started IV Rocephin.
    Started to come out of it. Dr ran bloodwork again for Lyme and co infection testing. Tested positive for Bartonella which was undetected before the vaccine. Now on oral antibiotics for Bartonella. And the kicker- no antibodies or T cell response from the Pfizer vaccine. Now what? I’ve never been so sick in my life and I’m still unprotected from Covid. I need to go back into the classroom in September. What can I do to protect myself?

  • Bonnie
    06/09/2021 (2:31 pm)
    Reply

    Thanks for this valuable site. It has given me information to make a decision on whether to get the vaccine or not. I have had Lyme for 30 years and have severe reactions to a flu shot, so I will be not getting the Vivid vaccine.

    • G Larsen
      06/30/2021 (3:46 pm)
      Reply

      Wow your reaction sounds very similar to mine. I hope we both find relief soon.

    • G Larsen
      06/30/2021 (3:48 pm)
      Reply

      My comment is meant as a reply to Julianne.

      • Julianne Philp
        07/13/2021 (9:33 pm)
        Reply

        How are you feeling now? I hope you are feeling better.

  • Madison Scanlan
    05/11/2021 (10:09 am)
    Reply

    I have had Lyme for three years now. Didn’t get diagnosed for months. Took Doxy. I’m going in to get my 2nd Moderna shot now. I’m so scared! I’ve been sobbing and close to vomiting all morning. My reaction to my first shot was bad. I had chills, headache, vomiting, muscle pain and weakness/exhaustion. Very scared my reaction to this 2nd shot will be worse.

  • RITA WINSLADE
    04/30/2021 (6:35 am)
    Reply

    I was diagnosed with Lyme disease early March 2021 and am taking doxycycline, as well as all sorts of supplements and concoctions from my naturopath. I am scheduled to get the Pfizer vaccine in a few days and am of course very concerned. Like others on this site, I believe my Lyme disease symptoms (numbness in hands, feet and face) were triggered by the flu vaccine in November 2020 (my second flu shot in all of my 62 years). Both my naturopath and family doctor have suggested I not get the Covid 19 vaccine until additional data is available. Since that could take years and since I don’t live in a bubble, I have decided to proceed with getting the vaccine. I wonder if we indicate « Lyme disease » on the vaccine questionnaire whether we would be denied the vaccine? I live in Canada. Good luck to all of us.

  • Tori
    04/27/2021 (2:30 pm)
    Reply

    Dr. Cameron, do you know of a way to find out what to test for to even a little bit figure out if one is at risk for a vaccine adverse event? Things like PEG/Polysorbate-80 allergies, mast cell disorder, vascular and brain issues, genetic tests, things to do with clotting, existing viruses that could reactivate, vitamin deficiencies, blood pressure, blood sugar, immune system things, other underlying conditions? I don’t know where to start. Of course I realize it would not be the whole answer or even a small part, but getting tests might help me get over my vaccine hesitancy (if nothing is found, that is). Thank you.

    • Dr. Daniel Cameron
      04/29/2021 (7:10 am)
      Reply

      I have not run into any information on who is at risk of an adverse event. It would help to reduce vaccine hesitancy.

  • Amy Fein
    04/22/2021 (1:09 pm)
    Reply

    I have chronic Lyme, Babesia and Bartonella. I’ve been in remission feeling great for 14 months. I received my 2nd Moderna shot 2 weeks ago and I now have Bart symptoms. AND…the reemergence of an old bullseye. Exactly the same presentation in exactly the same place. Hi Dr. Cameron!!!!!

    • Susan Kalowski
      05/04/2021 (6:47 am)
      Reply

      Amy Fein- the same thing happened to my 27 year old son. Two weeks after his second moderna vaccine his neuropathies flared up and his Bartonella
      Symptoms returned.
      Did you go back on antibiotics immediately ? He has a call with his LLMD to decide what to do . I would
      Appreciate your feedback and interested to know how you are doing now . Thanks

      • Marcie
        05/09/2021 (6:31 am)
        Reply

        My symptoms flared after the second shot. It’s been a month and I’m still not well. I was feeling 90% better prevaccine. Very discouraging.

        • Diane
          07/14/2021 (1:41 pm)
          Reply

          Marcie… how are you feeling now since being fully vaccinated? What are your symptoms ? Are you on any treatment?

  • Jennifer harrington
    04/15/2021 (8:01 pm)
    Reply

    I have chronic Lyme disease and have had the moderns vaccine. I’ve had a reverse in my chronic fatigue and have more energy than I have in years. Just hope it continues! I was more afraid of getting covid 19. Just a personal decision

    • Margaret
      04/16/2021 (8:32 am)
      Reply

      Hi, thanks for sharing your response. I have had chronic Lyme Disease for the past thirty years. Three days ago I had my second vaccine (Moderna). I had the flu for one day, and have felt weak the past two days but am recovering. The weird thing is that my Lyme symptoms are better! I have had minimal or no aches since I got the vaccine, and I had been waking up extremely achy every day before. This may be a temporary side effect of the vaccine, but I’ll take it! As for getting the vaccine, for me there was no contest between strong reaction to vaccine versus getting covid. The last thing I want is another chronic illness. Everyone must decide for him/herself.

      • Margaret
        04/16/2021 (9:44 am)
        Reply

        Every Lyme patient seems to have a different compilation of symptoms. For that reason, I believe that each of us must decide what is best for our own unique health situation. That includes making an informed decision about the pros and cons of getting the Covid vaccine.

    • Simon Templar
      04/20/2021 (4:08 am)
      Reply

      That’s great news, Jennifer. I hope your improvement continues, too.

      Like many others, I’ve also been unsure what to do. There’s so many conflicting opinions.

      Again, congratulations. Stay well.

  • Michelle Girod
    04/12/2021 (4:06 pm)
    Reply

    I met w a new Lyme doctor today and she advised me not to get the vaccine at this time, she would like me to wait a couple weeks to see if any new data comes out regarding Lyme and our immune system. I’m very confused what is the right thing to do. I get a lot of pressure from family and friends that I need to get the vaccine. They say since your immune system is compromised why would you not get it? I said that’s exactly why I should not get it.

    • Dr. Daniel Cameron
      04/13/2021 (7:59 am)
      Reply

      Thanks for sharing your concerns. I have Lyme disease patients in my practice who are facing the same tough decision. Normally my patients would wait. Unfortunately, the virus does not always wait. And the virus can affect the immune system.

    • LoriAnne Sewick
      04/15/2021 (12:24 am)
      Reply

      Same thing happened today with advice from my doctor. He said to wait for the J & J to come back. The Pfizer and Moderna won’t jive with my Chronic lyme. Plus I have hypothyroidism with half of my thyroid deformed and missing, malaria and cat scratch fever was also found on my test for lyme.

    • Julie M.
      05/01/2021 (7:47 am)
      Reply

      Hi there – While I’m very pro-vaccine in general I had an extreme reaction to my first Pfizer shot and landed in the hospital overnight. My immune system basically went into hyper-drive.

      It’s a tough decision. My new LL Dr. recommended me seriously reconsider getting the 2nd vaccine. I broke down in tears, but once I decided not to go through with it I felt an immense wave of relief. Everyone’s body is different. I’ve had undertreated Lyme for a long time now so I suspect my immune system is even more whacked.
      Best thing to do is sit with yourself and the decision. I too felt a lot of pressure from my family and friends who are now all vaccinated.
      They need to understand our medical situation is a determining factor.
      Personally I’m glad I got at least one but the way my body reacted lends me to the belief that a second would be risky. (I had uncontrollable vomiting, fever, chills, worst headache ever (next to Lyme meningitis) along with extremely high BP which is super unusable for me.)
      Good luck. Ultimately it’s your decision.

  • Priscilla
    03/27/2021 (10:26 am)
    Reply

    I am 73 years old. I was diagnosed with Lyme 5 years ago. Treated at onset for 10 days and had negative test. 10 months later I was in extreme pain and tested positive. Treated for 2 months with doxycycline. 6 weeks after treatment – symptoms returned but at a much lower pain level. The truth is I am very concerned about the vaccine and it triggering a stronger Lyme reaction. I’m being pressured by my family to get the shot. I would like to do a wait and see as I am able to quarantine.

    • Dr. Daniel Cameron
      03/28/2021 (9:02 am)
      Reply

      As you can tell from the comments there are Lyme disease patients who describe a flareup of their symptoms. The only reason the COVID-19 vaccine is being discussed is due the severity of the virus from some patients. It might be helpful to weigh the risks and benefits with your doctor.

  • Nancy
    03/24/2021 (5:46 pm)
    Reply

    Dr Cameron,
    First let me thank you for putting this resource out there. This is a very overwhelming decision for us who have been ill for so long. I have chronic Lyme as well as recently diagnosed bartonella infection. I’m not on any treatment at this time other than anti seizure meds, gaba, pain meds and a few vitamins. I am on limited fluids because I have very low sodium 119 due to a medication im on. I also have hashimotos, Cfs, fibromyalgia, low sodium, Epstein Barr and several other co infections. I not doing any treatment at this time. I am slightly overweight as well. I developed a very painful neuropathy in my feet about 8 months ago and it’s near impossible for me to walk, wear socks, shoes, even slippers. We’ve found nothing that works on my pain and sleeping is nearly impossible. A punch biopsy has been ordered. I need help. First, Ive read that you are recommending patients get the covid vaccine. I have an appt for a moderna and a j&j. Do you recommended one over the other? Also, are you taking new patients. I’m not sure I’ve found the right fit for me and my issues. I may be seeking out a second opinion.
    Thanks so much for you help.

    • Dr. Daniel Cameron
      03/25/2021 (8:23 am)
      Reply

      I have reluctantly supported the vaccine because of the risk of short and long term complications of COVID-19. I walk my patients through the risks and benefits that work for them. I have not seen a difference between the vaccines, yet.  I am taking new patients.

  • Kelly S.
    03/20/2021 (10:51 pm)
    Reply

    I have chronic Lyme, fibromyalgia, CFS, and Hashimoto’s (but the only one anyone ever believes is Hashimoto’s, lol). I had Covid 19 last summer for about 6 weeks (high fever the first ten days, low grade after that, general flu-like symptoms). I did not go to the hospital and my Covid test was negative, but after I was better and had bloodwork done, I had antibodies so my doctor said that I did indeed have Covid 19. I got the 1st Moderna vaccine last Thursday 3/11/21. I was very sick beginning the next morning and had a fever for 4 days. The following 5 days have been much better but I get a headache around midday and begin to feel very fatigued. I’ve been off from work this week so I’ve been able to take a nap for about an hour or so when that happens. Sometimes it helps and the headache goes away. Sometimes it doesn’t (like today). That’s where I’m at now. I go back to work Monday so I hope I’m feeling better and headache free. I’m worried about the second dose of the vaccine in April. I cannot afford to be sick another week. I have recently read that people who have had Covid 19 may still have lingering antibodies which cause a stronger reaction to the vaccine and they may not need a second dose. I’m on the fence about getting the next shot in April.

    • Sarah S
      04/13/2021 (11:36 am)
      Reply

      Hi Kelly, I have chronic lyme, hashimotos, candida, ebv, and other co-infections as well. My symptoms were similar to yours and lasted a solid 8 days. It was absolutely horrible and I am scared of the second shot as well, but I’m also trying to weigh the risk of vaccination vs. contracting covid-19. I am going to review my symptoms to the 1st dose this afternoon with my doctor to get her opinion on the second shot. My symptoms were pretty severe, days 1-4 horrible fatigue, could not get out of bed, body aches, intermittent ear aches and headaches, loss of taste and appetite and on day 5, I had shortness of breath and wheezing just for one day. I almost went to the ER but it subsided late in the afternoon. It was still very scary though because nothing like that has ever happened. I am attributing it to the shot because I don’t know what else could have caused that.

      • Diane
        07/14/2021 (2:22 pm)
        Reply

        Hi Sarah…. Thank you for your 1st vaccine experience… would you be so kind as to share an update of your journey today?

  • Maude Muto
    03/05/2021 (7:31 pm)
    Reply

    Once again thank you for writing about the important things Dr C! My question relates to cytokine storms. I am now in remission. When I was the sickest with Lyme I had very high CRP and cytokine levels. Since Covid causes cytokine storms I’m nervous about getting the Pfizer vaccine. But I’m getting my first dose tomorrow anyway because I’m way more scared of dying from Covid. Could you write about cytokines and how they relate to Lyme and the vaccine? Thank you

    • Dr. Daniel Cameron
      03/06/2021 (7:57 am)
      Reply

      I have found it difficult to find clear information on cytokines with COVID-10 and the COVID-19 vaccine to write about, yet. Let me know how it works out.

      • Maude
        03/06/2021 (8:03 am)
        Reply

        Thank you! I’ll let you know how I feel and I’m prepared with my arsenal of herx meds

  • Whitney A Hakim
    02/15/2021 (8:43 am)
    Reply

    Is it generally safe for someone being treated for co-infections to receive the vaccine? I am scheduled for March 6th and currently on Doxy, Fluconazole and Cefuromine…as well as Samento, Houttuynia and Cryptolepis. My co-infection symptoms are stable and I have shown marked improvement.

    • Dr. Daniel Cameron
      02/15/2021 (2:03 pm)
      Reply

      My patients are torn with the risk of the vaccine vs risk of COVID-19.  My patients have tolerated the vaccine. I have a few readers who write that they have had a flare-up. Most of my patients take the vaccine after weighing the risks and the benefits.

  • John
    01/29/2021 (3:42 pm)
    Reply

    I’m in the wait and see mode. My coworkers aunt got the vaccine over a month ago and then got Covid-19.She died a few days later

  • Anthony
    01/20/2021 (10:36 am)
    Reply

    On Saturday, I just received the Moderna vaccine and so far have had no reaction. I live in a congregate setting. We currently have a severe cluster outbreak of COVID-19 in the very building where I live. Seeing COVID-19 first-hand motivated me to get the vaccine despite the risks. I have also been supplementing with Vitamin C, D3, Zinc, herbals, teas, and am taking antibiotics for Lyme. My chronic Lyme Disease symptoms mimics COVID-19 symptoms. The only way to know is to get tested. The vaccine is not for everyone, but it maybe for some with chronic Lyme Disease. My decision was based on the greater risk of contracting COVID-19 with Lyme Disease vs the risk of receiving a vaccine which could help protect me against COVID-19. Each person needs to decide for him/herself what is best for them.

  • Chaya Ish-Shalom
    01/20/2021 (1:34 am)
    Reply

    After battling Lyme for ten years under your care I’ve been symptom free for five years now. Based on the good doctor’s suggestion that the danger from contracting covid 19 seemed to be far greater than any risk there might be from the vaccine, I decided to take it – I had my second shot of the Pfizer vaccine last week, no side effects, no reactions – so far so good

    • Robin
      03/16/2021 (1:55 pm)
      Reply

      Can you comment on how your feeling since the second vaccine?

    • Ashley
      04/05/2021 (1:42 pm)
      Reply

      Thank you for your comment! Could you update us on how you felt since the second dose and so on?

  • Alicia
    01/18/2021 (10:52 pm)
    Reply

    I completely disagree for the following reasons:

    1. COVID-19 shows no greater mortality rate than the seasonal flu (which the CDC conveniently quit counting). If you are not over 70 years of age, you have less of a chance of dying from COVID than from influenza.
    2. Speaking influenza, every single Lyme/MSIDS patient I’ve worked with has had a relapse of symptoms after the flu vaccine. This shows you have a 36% greater chance of getting COVID if you get a flu vaccine: https://www.sciencedirect.com/science/article/pii/S0264410X19313647?via%3Dihub
    3. There are effective treatments for COVID-19 (HCQ, zinc, Ivermectin, IV vitamin C, among others). Please see: https://jameslyonsweiler.com/2021/01/17/dr-pierre-korys-slides-from-unbreakingscience/. Dr. Kory blows the NIH statement against Ivermectin out of the water with science. It even works prophylactically.
    3. There are NO completed clinical trials of this experimental medical device (it isn’t a vaccine at all, it is mRNA packaged in a fat envelope, that is delivered to a cell that does not stop transmission but is a treatment). When you get the jab, you are effectively now a test subject IN their ongoing trials. There is no recourse if you are injured.
    4. Moderna has admitted that the mRNA injections are an Operation System, called the “Software of Life”: https://www.modernatx.com/mrna-technology/mrna-platform-enabling-drug-discovery-development
    5. Dr. James Lyons Weiler explains there are unsafe epitopes: https://madisonarealymesupportgroup.com/2020/12/04/medical-freedom-press-conference-must-see-video/
    6. Coronavirus vaccines have a terrible safety record. Vaccinated animals got more serious disease and many died.
    7. Two sources state this “medical device” can potentially cause sterility:two sources are now saying the COVID-19 vaccine can cause sterility: https://madisonarealymesupportgroup.com/2020/08/24/gsk-whistleblower-covid-vaccine-caused-sterility-in-97-of-women/ and https://madisonarealymesupportgroup.com/2020/12/09/uk-government-warns-doctors-about-covid-vaccine-but-not-patients/
    8. Our public health ‘authorities’ have severe conflicts of interest and are not to be trusted. They own the patents on the pathogens, the tests, and the vaccines: https://madisonarealymesupportgroup.com/2020/04/26/cdc-playbook-learning-from-lyme/ and https://madisonarealymesupportgroup.com/2020/07/30/how-the-cdc-uses-their-own-guidelines-to-rig-the-system/
    9. Lyme/MSIDS patients are in an epic war for their health. The last thing they need to do is partake in a dangerous experiment when there are good treatments and many things they can do to make their bodies tougher targets. Don’t be afraid of a virus.

    • Dr. Daniel Cameron
      01/18/2021 (11:20 pm)
      Reply

      There are certainly a lot of ideas floating around on the COVID-19 vaccine that are not supported by the evidence.

    • James Boulter
      01/21/2021 (11:38 am)
      Reply

      What are your medical qualifications to make such statements? Your claim, comparing covid mortality to the flu has been routinely refuted and implies an ideological bias. (Here is just one demonstration: https://ourworldindata.org/mortality-risk-covid) You cite only one peer reviewed publication in your comments, and it fails to support your thesis: “Receipt of influenza vaccination was not associated with virus interference among our population.” Your comments appear have the intent of fomenting fear in a group already suffering from lyme and associated diseases. Finally, your slander against public health practitioners is unwarranted and unfounded.

      • Diane
        07/14/2021 (2:31 pm)
        Reply

        Hi Maude… Praying for you and that by now you already pulled through your Covid vaccinations well..and maybe up to sharing on this forum?

    • L
      04/11/2021 (2:18 am)
      Reply

      Way to go girl! I completely agree Alicia! I’ve been battling Lyme for 30 years. I got the flu shot once 5 years ago and had to be hospitalized.
      Since the outbreak of CoVid-19 I moved from New York City to New Jersey, traveled to Florida and LA. All while testing negative and never had a symptom of CoVid. Why on earth would I subject my body to this vaccine? No thank you, I won’t be a government experiment.

      • Simon Templar
        04/20/2021 (4:23 am)
        Reply

        It sounds like that plan will work…until it doesn’t.

    • Simon Templar
      04/20/2021 (4:21 am)
      Reply

      “Don’t be afraid of a virus.”

      Until you or someone you know dies from it.

      It’s one thing to read conspiracy theories on Alex Jones’ website and quite another to see someone you know get hammered by COVID-19. (e.g. a 27 year old with no comorbidities on a ventilator, a single mother in her 30s who died and left behind a child, a woman hospitalized for three months and then required months of therapy.

  • lou
    01/18/2021 (11:12 am)
    Reply

    Many chronic lyme patients have a low white blood cell count, and their RA, hashimotos, etc are infection driven. Seems like this makes them harder to fit neatly into these categories. Plus, more than a few have mast activation, which makes adding new things, whether food or vaccines, potentially a problem. Then there is advanced age. They are giving the shot to nursing home people, but it was my understanding that the immune system weakens with age.

    It may be hazardous for any doctor to recommend against a vaccine for this population, since people who don’t immediately get vaccines, and doctors who don’t recommend them often are called anti-vaxxers. It is so tiring to have to keep pointing out shades of gray in what too many people consider a black and white world.

    • Dr. Daniel Cameron
      01/18/2021 (3:22 pm)
      Reply

      well stated

  • Kyle
    01/17/2021 (7:21 pm)
    Reply

    I’ll be getting the vaccine this week. Will let you know if I have any difficulties.

    • Sonya
      02/09/2021 (10:36 pm)
      Reply

      How did it go Kyle? I’m still on the fence. I have post-lyme syndrome or chronic lyme. Whatever you want to call it these days. Fatigue, inflammation, muscle pain, brain inflammation our my main symtoms. I am testing the waters with the vaccine by seeing how others do with it.

  • Erin
    01/16/2021 (5:09 pm)
    Reply

    Thank you for the information. What are your thoughts for those with lyme and the MTHFR gene mutation (1 or 2 copies)? It is harder to detox with this mutation.

    • Dr. Daniel Cameron
      01/16/2021 (7:38 pm)
      Reply

      Sorry again. I don’t have an answer.

  • Marja
    01/16/2021 (4:54 pm)
    Reply

    Does a current lyme diagnosis count for an underlying condition with respect to prioritization for the covid vaccine?

    • Dr. Daniel Cameron
      01/16/2021 (7:38 pm)
      Reply

      I have not seen Lyme disease on the priority list despite their impaired immune system.

  • Ann Maher
    01/16/2021 (2:48 pm)
    Reply

    If we Lyme disease Patients have a choice of Vaccines, which one would you recommend.!.

    • Dr. Daniel Cameron
      01/16/2021 (7:36 pm)
      Reply

      I am unclear which is the best vaccine. Sorry.

  • Elicia Brand-Leudemann
    01/16/2021 (2:30 pm)
    Reply

    What if you have Lupus and Lyme Disease. Do you still recommend getting the COVID vaccination?

    • Dr. Daniel Cameron
      01/16/2021 (7:36 pm)
      Reply

      I have been following the findings for individuals with autoimmune diseases including Lupus. I have not seen an issue despite their impaired immune system. Individuals with Lupus present with an overactive immune system as in Lyme disease. The CDC advised individuals with autoimmune disease to take the COVID-19 despite the paucity of evidence.

      • donna
        06/02/2021 (10:02 pm)
        Reply

        seriousley in all due respect Dr C . The cdc also said postlyme did not exist and we all know that story, I would never listen to them. I suffered too many years of hell and thanks to DR R and llmds like you Im alive.
        donna

  • Ellen Marshall
    01/16/2021 (10:03 am)
    Reply

    Thank you for keeping this discussion current. I am of the wait and see crowd. Also I must point out that having been so sick with Lyme and co-infections for decades, the my answers to the standard screening questions for Covid-19 could all be yes.

    In other words, it is hard to think of throwing one more thing at my immune system.

    • Dr. Daniel Cameron
      01/16/2021 (10:43 am)
      Reply

      I wrote this blog to capture the uncertainty of making a decision whether to risk the effects of COVID-19 affecting the immune system or the COVID-19 affecting the immune system.

  • Kathleen Meyer
    01/16/2021 (8:45 am)
    Reply

    Since the beginning of my Lyme journey in 2012, age 55, I have been advised to use my best judgement regarding flu vaccines etc. I believe the 2012 vaccine caused a chain reaction which set off a long dormant Mononucleosis, age 18. I was very sick for 4 weeks, 2-3 of which I was bedridden and unable to walk normally. I believe the flu vaccine caused or contributed to my downfall. I have not has a flu vaccine since then. I am very reluctant to have ANY vaccines right now. I would like to see an article from Lyme patients and what their reactions are to getting a Covid vaccine. I will wait and see. My Lyme is now in remission and I’m walking again.

    • Dr. Daniel Cameron
      01/16/2021 (10:34 am)
      Reply

      Great comments. I understand your reluctance. I am also hopeful the Lyme disease can share their experience with COVID-19 or the COVID-19 vaccine to help individuals make an informed decision.

  • Christine DeSimone
    01/16/2021 (7:35 am)
    Reply

    Twenty two years ago my Lyme Specialist told me not to do any vaccines and not donate blood.

    • Dr. Daniel Cameron
      01/16/2021 (10:24 am)
      Reply

      I share similar views on donation of blood given the problem with Babesia. The risk of a COVID-19 infection is high enough to question your doctor’s advice on the vaccine. I find the risk of COVID-19 is worse that the risk of the COVID-19 vaccine.

      • Lauren
        01/17/2021 (10:20 pm)
        Reply

        I think it’s not a one size fits all, COVID. Everyone reacts differently. I had it and was grateful not to have been hospitalized, but was close. None the less I would not get this vaccine due to my lack of immune system from chronic lyme. My doctor advised me to not get an updated tetanus shot due to my immune system being weak. Unless there are lyme patients willing to be guinea pigs, I think it will be a few decades to see true reaction and effects of this vaccine for everyone regardless of their health issues or lack there of, especially in the lyme community. Thanks for the info and your honest thoughts Dr.

      • Dana
        01/22/2021 (5:43 pm)
        Reply

        Dr. Carmeron,
        I was advised about not getting vaccine by my LLMD when I was first Diagnosed a very long time ago. Two things.
        1.
        I had Covid19 was like have a really bad case of the flu.
        I had a high fever bad cough, congestion, I had to use my oxygen, I had no energy, my Dr did end up writing me a
        prescription for cough medicine.
        So I am not sure where getting the vaccine is worse than getting Covid19 especially if the vaccine sets off a reaction in your body with your immune system and your Lyme goes crazy. Or worse you get covid from the shot. Please don’t tell that doesn’t happened I have many friends of mine that are ER Doctors, Covid Doctors and Nurse that have gotten the vaccine and got Covid19.
        .

        • Dr. Daniel Cameron
          01/22/2021 (8:05 pm)
          Reply

          The COVID-19 is produced using a messenger RNA. The COVID-19 vaccine is not a virus and therefore cannot cause COVID-19. We do not know if the vaccine can lead to changes in the immune response of individuals with or without COVID-19.

          • ST
            04/20/2021 (4:36 am)

            Your ability to respond to such questions while also not getting entangled in the pseudoscience is great. You’re like a Ninja who also knows the Jedi mind trick.

    • dawn
      06/02/2021 (10:04 pm)
      Reply

      same here my LLMD


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