Should Lyme disease patients with an impaired immune system get the COVID-19 vaccine?


The Centers for Disease Control and Prevention (CDC) posted mRNA COVID-19 vaccination considerations for people who have a weakened immune system. “People with HIV and those with weakened immune systems due to other illnesses or medication might be at increased risk for severe COVID-19.” [1] Individuals with Lyme disease, who may have an impaired immune system, have expressed concern over the vaccine.


People can have an impaired immune system from an overactive and underactive immune response. “A strong immune system responds appropriately to the challenge; a weak immune system may over-respond or under-respond,” explains Kostoff and colleagues in the journal International Journal of Molecular Medicine. [2]  Should Lyme patients get the COVID-19 vaccine?

They added, “A weakened immune system appears to be the main determinant of serious/fatal reaction to viral infection (for COVID-19, SARS, and influenza alike).”

Lupus, rheumatoid arthritis, and Hashimoto’s thyroiditis are examples of an over-response of the immune system. Lyme disease is another example of an overactive immune response. [3]

The CDC report touched on the risk to individuals with a weakened immune system in developing a severe COVID-19 infection. [1] It acknowledges that there is limited safety data on the use of the mRNA COVID-19 vaccination in individuals with an impaired immune system. “Information about the safety of mRNA COVID-19 vaccines for people who have weakened immune systems in this group is not yet available.”

The report pointed out that, “People with weakened immune systems should also be aware of the potential for reduced immune responses to the vaccine, as well as the need to continue following all current guidance to protect themselves against COVID-19.”

The CDC guidance report was issued to allow individuals with a weakened immune system to make “an informed decision about receiving the mRNA COVID-19 vaccine.”

The authors point out that there is little information above the vaccine’s impact on individuals with autoimmune conditions. “They should be aware that no data are currently available on the safety of mRNA COVID-19 vaccines for them.” Nevertheless, the authors advised treatment.

Editor’s note: It is clear that COVID-19 can be severe for some individuals. There is a paucity of information on the risks and benefits of the mRNA COVID-19 vaccination for Lyme disease patients. The risk of COVID-19 is far greater than the risks of the mRNA COVID-19 vaccination. I have been advising my patients to take the mRNA COVID-19 vaccination based on a review of the risks and benefits.

  1. Vaccination Considerations for Persons with Underlying Medical Conditions. Centers for Disease Control and Prevention (CDC). Last accessed 12/31/20.
  2. Kostoff RN, Briggs MB, Porter AL, Aschner M, Spandidos DA, Tsatsakis A. [Editorial] COVID19: Postlockdown guidelines. Int J Mol Med. Aug 2020;46(2):463-466. doi:10.3892/ijmm.2020.4640
  3. Aucott JN, Soloski MJ, Rebman AW, et al. CCL19 as a Chemokine Risk Factor for Posttreatment Lyme Disease Syndrome: a Prospective Clinical Cohort Study. Clin Vaccine Immunol. Sep 2016;23(9):757-66. doi:10.1128/CVI.00071-16
Latest From the Lyme Disease Science Blog

122 Replies to "Should Lyme disease patients with an impaired immune system get the COVID-19 vaccine?"

  • G. G. Haughey
    09/28/2021 (1:04 pm)

    Has anyone ever heard of Lyme actually protecting you against covid-19?

  • Honor Murphy
    09/22/2021 (5:57 pm)

    Hi all , this has been really helpful!. I am so glad to have found some people with Lymes , hashimotos, EBV, etc…. I have had Lymes since I was a kid. Didnt realize it until I actually tested CDC positive in 2017. got all my 7 kids tested and all positive in varying degrees ( if you can say that). I didn’t do antibiotics because of terrible candida throughout my life. I Treated with herbs and Ozone hemotherapy. Candida diet , antifungals, etc.. too much to mention. I have been high functioning all along… brain fog for sure along with arm issues ( nerves). I am not sure why I have done pretty well but I am assuming it is because my parents really fed me well and I continued to eat healthy and exercise all of my life not knowing what I know now. I work as a PT but can only handle Part time now but I am 56 years old. I have not been immunized yet. Simply put I am scared of having a terrible reaction. I have been called selfish and uncaring and everything you can think of by my own family ( not my immediate family but brothers and sisters. I have worked hard to decrease my thyroglobulin and thyroidperoxidase numbers from. uncountable to 150-400.. ( not great but better ) I cant afford to go backwards . Reading this forum helps me to not feel so alone in this struggle and helps me to know that others are going through the same thing. Thanks Dr Cameron. Can you tell me ……if the novavax vaccine is released (non MRNA) in the USA… would that be possibly a better choice for those of us who are struggling with Lymes, hashimotos, EBV, heavy metal toxicity?

  • elizabeth davich
    09/21/2021 (5:51 pm)

    I was diagnosed with Lyme and multiple coinfections in 2011. Undiagnosed and misdiagnosed for 13 years. I have already had covid twice. October 2020 and February 2021. I recovered about 90% of previous health in about 3 weeks with the first case and am still very much struggling after the second case. Both cases landed me in the ER a few nights but I was never admitted. I have not received a vaccine yet for fear of a cytokine storm. I feel as though if I’m not properly protected after 2 natural infections why would a vaccine be different.

  • Tracy Minor
    09/18/2021 (3:14 pm)

    Iv had Lyme for over 13 years- (I’m 36) It went untreated for over a year before I knew what it was. I went to a great doc who has since retired – and was on antibiotics for years (on and off). I have moved, had kids- and have basically put my own health on the back burner for so many years- going through cycles for where I feel great, and days weeks or months where I can barely function. I almost ALWAYS have chest wall pain..- especially during the night. Like so many others, I’m searching for what to do… vaccinate or no? I’m so torn. I need to find a good Lyme doctor in my area. A couple of years ago I did try to start the health journey again by starting with a primary- of course her bloodwork said no lyme. Based on my symptoms she sent me to a rheumatologist who spent 4 mins with me and diagnosed me with “post Lyme syndrome” and sent me on my way. Any advice???

    • Dr. Daniel Cameron
      09/18/2021 (8:17 pm)

      Some doctors are diagnosing Post Lyme Syndrome or Post Treatment Lyme Disease Syndrome without a test to rule out a persistent infection.

    • Lorrie quick
      10/14/2021 (3:26 pm)

      I had a horrible reaction with having lyme and my doctor keeps pushing for 2nd shot and I’m a health care worker who is mandated and she won’t sign for medical exception. I was sick n had a flare up for 6 days and she failed to return my call Monday n blindly said without seeing me to do it again.

  • Robin Craig
    09/09/2021 (9:54 am)

    Has anyone treated their Lyme with bee venom therapy? My daughter has been on BVT for a year now and is showing some improvement – not big, but she is better. Any information about the covid vaccine, Lyme and bee venom?

    • Dr. Daniel Cameron
      09/09/2021 (7:47 pm)

      I have not seen any. Perhaps a reader will share some information.

    • Lisa Jones
      09/14/2021 (9:00 pm)

      I don’t see anyone who has commented who has maintained remission for quite some time and vaccine results ? I’m so scared of both covid and the vaccine that it’s starting to cause me a lot of anxiety. My last bloodwork results were perfect. I just do not know what to do ?

    • Colleen flynn
      09/27/2021 (8:13 am)

      My husband has suffered from recurring Lyme disease for 25 years. He had covid back in March 2020. He received the J and J vaccine in July and has since felt not really right. He recently tested positive for Lyme disease again and feels the vaccine may have triggered a relapse. What are your thoughts on this?

      • Dr. Daniel Cameron
        09/27/2021 (2:56 pm)

        Some of my Lyme disease patients have have described a flareup of their Lyme disease. Others do not. I posted a Lyme disease and COVID-19 survey to determine how often and how severe these relapses are. I would appreciate it if you would complete the survey if you have not already done so. Here is the link.

        • Gia
          09/30/2021 (9:20 am)

          I had the Pfizer shot and I was fine for a couple weeks. I’m not sure what happened, it was either the shot once it was in my body long enough to do it’s thing or, the one time I went in the grass this summer for a wedding (didn’t see a tick on me but it’s possible as we know). Both were around the same time as I got the shot right before the wedding. I’ve had flu symptoms, horrible fatigue, chronic sinus issues for 3 months now. I’ve been tested for covid as I have all the symptoms but negative. I was tested on the Asyra Bio-energetic scan (which I’m a huge believer in) and I have active Babesia, Bartonella, and Borrellia now. These are the same 3 strains I have been fighting for 13 years but I have had them in check except for the Bartonella. I am treating now with Doxycycline and Zith along with the Cowden protocol for 2 months with slight progress but Im constantly fighting a cold or soar throat, fatigue bad my back hurts, I can tell my immune system is shot. I’ m bedridden most days so I’m not putting myself at risk. I don’t know what came first, “the chicken or the egg” but, I either got bit at that wedding, or the Pfizer shot caused a breakdown in my immune system and a flair in all Lyme strains in me. Once I can turn this corner, I don’t think I’m willing to take the risk of getting the second shot. This is pretty awful. 🙁

          • Tim
            10/01/2021 (4:11 am)

            I am so sorry Gia. I am in so much pain already and fatigue from lyme (for last 30 years, I am late 50s now) that I am scared to death of the vaccine. I completely understand your stance and you should NOT feel guilty if you decide to avoid the shot. I will pray for you.

  • Colleen
    08/12/2021 (9:20 pm)

    I’ve been struggling with late stage neurological Lyme disease for 30 years. I was finally diagnosed when I had a Bell’s palsy, and white matter on my brain mri, but it was a new disease back then and that was why it went undiagnosed for so long. As bad as it is to have my memory be so bad and my body to be so tired and not sleep since I was 17, I was lucky enough to not really have the joint symptoms. After the second Pfizer dose, I feel as though my joints have been stiff and my body has been sore. I was hesitant before getting the shots, now I decided I am not getting any boosters or anything else. I keep praying for a miracle every night!!

  • wen wenden
    08/11/2021 (10:49 pm)

    i had lyme, ehrllichiosis, babesiosis and was treated for 12 yrs with massive antibiotics on a daily basis…survived and healed.
    Went thru hell. The TBD ate my thyroid gland and left me with diabetes type 2…I have been off antibios for 9 yrs but have to take thyroid meds and diabetes meds of course. I am fearful of any vaccine as I watched my dear friend get the flu shot and was almost killed with GBS. IVIG for a year saved her with two infusions a week…she was near death for a month and faced a long recovery but still left her suffering with neuropathy in her feet for which she takes a med… I fear both covid and the vaccine. I don’t know what to do so am getting ivermectin and Glutathione and NAC and Alpha lipoic acid….and masking up everywhere. It is risky as unvaxed are the ones dying and hospitalized from covid. But being a guinea pig with the CDC pushing it and denying the efficacy of ivermectin and hydroxychloroquin and other efficacious treatments makes me both suspicious and angry. They always say ‘follow the money’ and surely big money is being made by the companies who provide vaccines.

    • Tamara Flores
      09/01/2021 (11:26 pm)

      Wow. I wish I would have read this before I decided to get the vaccine. I told everyone I wasn’t going to get it and gave them all my reasons. Then my younger brother gets Covid -19 and was admitted to the hospital for a week to get help with his breathing. I was scared and frightened for him and for myself. The day after he was taken to the ER I went in to the nearest Pharmacy and decided to get my vaccine. I wasn’t scared at the very moment, actually I felt safer. I felt I had made the best decision after all. But this did not last. 3 days after, I felt a bit sore from my arm and warm hands and itching at the bottom of my feet . But I kept saying this shall pass as these are just a few side effects from it. A week later I was feeling tired, very tired. The second week I had severe flank pain, chest pain, felt extremely fatigue. I ended up in the ER with severe stomach burning pain and had 7 to 8 episodes of feeling like I was shutting off. I had no control. My husband was scared and said it looked like I was having many seizures. I was at the ER for about 4 hours but I asked to go home as I felt terrified being there with such a full floor of sick people with Covid. Next day, same thing. The rest of the week felt same. As I write this on my 3rd week from getting the vaccine, I am miserable!! I am just tired of feeling like there is something so off and I have no control. I’ve been to ER again. They say I am having panic attacks, but it’s definitely not that. My late stage Lyme has fully returned and with full revenge! I don’t now how much longer I can deal with this. It’s killing me slowly…and I feel absolutely miserable. I don’t remember ever feeling this bad, this sick, but maybe I don’t have the brain power and energy to even think. I wish I would have listened to myself … Please reconsider when planning on getting vaccinated if you have Late Stage Lyme like I do.

      • KC
        09/03/2021 (9:03 am)

        So sorry to hear about your return of Lyme. I’ve had 3 doctors advise me not to take the current vaccines due to Lyme/Babesia and EBV. So I’m choosing the safer route of prevention and protection. Everything that I’m reading on patient blogs for Lyme patients indicates that these vaccines are not a “one size fits all.” We can stay safe from covid with protocols like the FLCCC has been using. No one wants Lyme returned. It’s apparent that Lyme and late Lyme damages the immune system in a way that it’s compromised and is never the same again. So the “data” out now, meaning what Lyme patients are saying about their reactions to these vaccines shows that they should be exempt from these current shots until something safer comes out. Listen to the patients. The majority of Lyme patients are having problems. It’s sad. I’m listening to my immunologist, and I’m glad he was honest with me.It would be horrifying to have Lyme return.

        • Tamara Arauz Arauz Barahona
          09/04/2021 (1:09 am)

          Thank you very much for sharing the protocol information.
          Iv screenshot for easy referense. I am glad you listened to your immunologist. This is so so terrifying. I am still in so much pain. Ive been given medication for IBS…but that is just one of the symptoms from the vaccine.

          I hope you stay safe and well.

        • Jill edwards
          09/09/2021 (3:35 am)

          What protocol are you referring to?

    • Lisa Waller
      09/07/2021 (7:15 pm)

      Thank you for sharing your struggles and co cerns. Prayers for you and your friend that you mentioned. I too share your concerns. God bless

      • Jennifer
        10/20/2021 (1:09 am)

        Hi, thought I would share my story. I have had Lyme disease for 3 years, which I have been treating with Cowden protocol. I also did a cycle of Hydroxychloroquine (low dose) which was the best I’ve felt in years! After hearing true horror stories from friends and family members about vaccine side effects (multiple heart attacks, paralysis, and blood clots in lungs) I decided to hold off on subjecting myself to the experimental vaccines as I didn’t know how it would react with my meds and Lyme disease. I figure I already have enough probs from lyme without adding anything more to the mix. My husband accidentally brought home Covid (Delta variant) and we both got sick for about 2 weeks. I don’t recommend it, but would compare it to a really weird form of the flu. I had severe fatigue and lost sense of taste and smell which made food taste horrible and felt strange. The worst part was a bad migraine that lasted a few days and kept me in a dark room along with joint pains. I had a bit of a lingering dry cough, but never felt short of breath or anything scary. My husband and I both recovered fully with no issues following Covid. We are both in our mid-30s and healthy other than me having Lyme, so those could be factors in having a mild case. Luckily we got no one else sick and are now immune, at least for a while now. I think everyone should be free to choose to vaccinate or not because we all have separate, unique circumstances that make us biologically diverse. For me, risk of vaccine was greater than risk of the virus and I feel confident I made the best choice for me. But I also respect others who may choose differently due to their own unique circumstances. I wish everyone health and safety during these difficult times. <3

  • chris
    08/09/2021 (9:08 pm)

    I had lyme and anaplasma in 2016 and ended up getting bell’s palsy on the right side of my face. The bell’s palsy cleared up within several weeks but lyme symptoms persisted a few years (numbness and cold/wet sensation on my head and fingers). I still have some things that I wonder if they are symptoms but overall feel like I’m better. I got my first pfizer shot a couple weeks ago and within a few minutes felt tingling in my right hand and right side of my face. It felt like it did when the bell’s palsy started in 2016. It lasted about a day but never progressed. I’m due for the 2nd shot soon and wonder if I shouldn’t get it.

    • Dr. Daniel Cameron
      08/10/2021 (9:18 am)

      I have favored the vaccine to prevent death and hospitalization. I have also been concerned with flare-ups in some of my patients and individuals reading my blogs. I advise working with a doctor to determine what is right for you. I would appreciate it if you could complete a survey on Lyme disease and COVID-19 to share your experience with others. You will find the link at

  • Blake
    08/04/2021 (12:53 pm)

    I had Covid end of April beginning of may this year, had my good, bad and REALLY BAD days. I have had Lyme for about 19 years which feels weird to say because I’m only 26.. I have terrible joint and nerve pain (restless leg syndrome), brain fog, etc. And had open heart surgery when I was 2, among other surgeries. My work is considering mandating the vaccine and I never thought of how it would affect my Lyme until now. Reading your guy’s horror stories is eye opening. I severely doubt I will be getting these shots!

    • Dr. Daniel Cameron
      08/04/2021 (1:52 pm)

      Thanks for sharing your experience with COVID-19. Would you kindly be able to share your experience in my Lyme disease and COVID-19 Survey. You can access the survey on my website by clicking the orange button at or use the QR Code. You do not have the COVID-19 vaccine to share your concerns.

      • Debi Long
        08/29/2021 (9:31 am)

        I’m terrified of the vaccine.. first round of COVID I wasn’t afraid of it.. and I was fine although I lost my employment.. this round is hitting home literally, 3 of 5 in my home age 18,18&20 all got it.. my partner and I both 63 did not, but… that was Two weeks ago and now I’m showing symptoms and will be testing Monday… I have untreated, undiagnosed Lyme with multiple co infections and am being treated with rounds of ivermectin…I’veonly been diagnosed for approx 6 months and contacted Lyme min of 8 years ago.. no vaccine for me but I will also be holding up at home this go round.

        • Dr. Daniel Cameron
          08/30/2021 (7:48 pm)

          I have advised my patients with untreated Lyme disease to take an antibiotic if there is evidence of a persistent infection even if they do not take the COVID-19 vaccine.

  • sandra fruechting
    08/02/2021 (2:04 pm)

    Great thread on here, I’ve been suffering/diagnosed with chronic Lyme for over 15 years, got bit by a tick at Tahoe.
    My DR. refused to treat me unless I got the tetanus shot have had no bad reaction however, the Corvid
    vaccine is described by some as something out of space, I read that some of the ingredients might have Morgellons in it?
    Scary, because I had the “delusional” experience in the beginning stages… and can’t imagine why they would use it.
    Thank you so much DR Cameron for all the amazing work you do ,wish your office was near me.

    • Dr. Daniel Cameron
      08/02/2021 (4:12 pm)

      I have not seen evidence for vaccine continue Morgellons.

      • Chris Maier
        08/28/2021 (1:18 pm)

        I had Lyme disease in 1992 for months. Was given a lot of penicillin. Got better. A year ago I took the covid-19 antibody test and was positive (21.3 index). Almost the same antibodies are found in Lyme and covid-19. Am leary of getting the covid vaccine.

        • Dr. Daniel Cameron
          08/30/2021 (7:44 pm)

          Lyme disease and COVID-19 tests use similar procedures. For example, an ELISA or western blot but these test target different proteins.

  • Bettie Theroux
    08/02/2021 (11:01 am)

    Hello All, I have been a Lymes patient for 7 years. I have developed Lymes Carditis and lived through a spontaneous subarachnoid aneurysm in the fall of 18′. I want to live my best life and spend time with my grandchildren without fear Ss, I decided to take the Pfizer Vaccine. I had my first shot 2 weeks ago. I slept soundly for 2 days, getting up to eat and greet my family then back to bed. I have to say that my Lymes symptoms are noticeably reduced. (Brain fog, neuropathies & lethargy) I do anticipate my 2nd dose to be more challenging but I am looking forward to furthering wellness. This begs the question; are these diseases related? Dr. Cameron, you needn’t respond to this query, I wouldn’t do that to you… this is borne from my conspiracy-theory mind and is at best, rhetorical.

    • Jess
      08/25/2021 (12:43 pm)

      Hello Bettie. How are you doing after receiving the second Pfizer dose? I am trying to help my mom make this decision, she has had chronic Lyme for about 30 years. Please let me know how you did with the second dose. It’s refreshing to hear a positive reaction from the vaccine!
      Thank you

  • cheryl meehan
    07/11/2021 (9:11 pm)

    I have had the two Moderna shots and now feel like I am riddled with lyme. My joints hurt, I’m stiff and I have neuropathy. I feel 20 years older and I’m 62. Has this happened to anyone else?

    • Karen Van Dyke
      08/05/2021 (5:48 pm)

      I am reading because my disabled son is being tested today for Lyme disease snd we were leaning towards him being vaccinated with moderns in next couple weeks( before we knew about Lyme).
      I have been bit by 100’s of ticks in my lifetime, but have never thought I had Lyme disease, but after the Shots I hsve had difficulty with joints and feel 20 years older. In fact, they gave me a hip replacement, but I don’t think my hip was causing the difficulty walking thst I now have agsin. Just read an article saying it does not cause issues with joints and arthritis and sadly thst tells me it does.

    • Carrie Morales
      08/30/2021 (12:01 am)

      Yes, I came to research for that very reason. Since I have been fully vaxd with Moderna since April, I feel like the Lyme beast has awakened within me. Neuro especially.

    • Tamara Flores
      09/04/2021 (1:17 am)

      Hi Cheryl, yes, I feel awful. I received my 1st dose 3 weeks ago and I was rushed to the ER two weeks later. Today, I almost went back but managed to take the pain. It’s been awful. My second dose is scheduled for tomorrow. I will be skipping out. It’s such a scary time.

  • Isabel
    07/07/2021 (6:43 am)

    I had my first case of lyme 15 years ago , at that time Drs were not aware of it, I thought I was on remisión after being very ill for 7 years and got bit again and had a Bartonella, and a Babiesi coinfection this time I went with a lyme specialist and ,lyme has been under control after being very ill another 4 years ago, I have done everything in my power to stay healthy, my protocol is 300 dollars a month, I’ve had 4 surgeries in the last 4 years, I will not put myself at a health risk knowing there is no data on long term effects with the vaccine, my lyme Dr recommends it’s best not to take the vaccine, I am 69 years old and I refuse to put myself at risk of being ill again, my chances of getting Covid are way lower than getting sick or dying with an experimental vaccine.

    • Terry Sullivan
      09/21/2021 (3:37 am)

      I have had Lyme disease in the past which was basically dormant. I had been very healthy and active. I am 65. Four days after I received an RNA Covid 19 vaccine, I developed severe knee pain in both knees and neuropathy in one foot, and sciatica. I tried a course of doxycycline and visited a chiropractor and am trying Dr. Buhner’s Lyme protocol. I plan on trying acupuncture also. My sciatica is gone and the neuropathy is better, but the joint pain is still too severe to return to my activity level. The terrible side effects are under reported.

  • Stephanie
    06/30/2021 (9:10 am)

    I’m in the same boat. Stressed about it everyday. One dr says not to get it one dr says to get it . I’m so torn and confused . I usually get the bad and rare reactions to everything also so there’s that.
    Btw I love dr cameron he was my lyme dr for over 2 years.

  • Diane Willard
    06/28/2021 (12:15 pm)

    I’m curious has anyone had covid, then gotten the first Pfizer shot, had a flare of symptoms (still on going 3 weeks later), and then gotten the 2nd shot. If so, how did you do? Thanks!

    • Elizabeth Dinges
      07/14/2021 (7:53 pm)

      Diane, the same thing happened to me! I had covid in November then got my first Pfizer shot in March and it flared my Lyme up badly. I still don’t feel like I have recovered and it has been 4 months. I am unsure of what to do about getting the second shot for fear it will make me even worse. What did you find out??

  • Julianne Philp
    06/26/2021 (11:15 am)

    I had the first Pfizer shot on 3/22. Took my antibiotic on day 5 and 7 after the vaccine. On 3/30 my body created a severe Lyme storm. Burning, pins and needles, chest wall pain and chills all night. Brain inflammation a result and included blurry vision, brain fog, high sensitivity to light and sound, motion sickness and extreme anxiety along with inability to sleep. I was put on bed rest for 2 weeks. Returned to work for 4 days thinking I was good. That weekend, couldn’t get out of bed. Showed up for work on Monday 4/19 and was sent home with weakness and pounding heart. Have been on sick leave ever since. Ended up being in bed for around 8 weeks. LLMD put me on Invermectin which helped at first but eventually had to stop due to increased pain. On June 1st started IV Rocephin.
    Started to come out of it. Dr ran bloodwork again for Lyme and co infection testing. Tested positive for Bartonella which was undetected before the vaccine. Now on oral antibiotics for Bartonella. And the kicker- no antibodies or T cell response from the Pfizer vaccine. Now what? I’ve never been so sick in my life and I’m still unprotected from Covid. I need to go back into the classroom in September. What can I do to protect myself?

    • Dorothy
      08/03/2021 (10:58 pm)

      Why would you take an antibiotic 5 days after a vaccine? What was the purpose? The vaccine builds up your immunity – for a period of 3 weeks (and then you take the 2nd shot) but you wiped out your immunity when you took the antibiotic. It sounds like such bad timing to follow a vaccine with antibiotics. Please explain. ???

      • Dr. Daniel Cameron
        08/04/2021 (7:29 am)

        I would appreciate it if you could have any evidence to support your concerns. Antibiotics kill natural bacteria in the nose and gut. Antibiotics also can lead to a Herxheimer reaction. And, there is also the concern of leaving a persistent tick-borne infection untreated.

      • Julianne Philp
        08/09/2021 (9:56 pm)

        Hi Dorothy,
        I continued my antibiotic treatment under the care of my LLMD. I was taking my antibiotic 3 times a week and a second antibiotic every 7 to 10 days. So I had the vaccine and continued with my Lyme treatment.
        I hope this makes my post more understandable.

      • JOANNA
        10/13/2021 (7:44 pm)

        ABX do not affect viruses, only bacteria.

    • Annie
      08/30/2021 (9:59 pm)


      I feel for you. I had to stop teaching many years ago when I collapsed from severe multiple chemical sensitivities.
      I also have a Lyme co-infection, bartonella, and two other auto-immune conditions along with low immunity.

      I have been helped with any flu symptoms by liquid herbs and supplements called Buried Treasure, made by a co. called ACF.
      Maybe some of the herbs that well-known herbalist Stephen Harrod Buhner recommends as anti-virals would protect you from covid. They were tested before covid-19 came along, with SARS patients. Buhner thinks SARS was similar enough to covid-19 for the same herbs to be preventive. I dont know whether he has written anything about the Delta variant and whether the same herbs
      work for that. You can find the full list of herbs in one section of his book, Herbal Anti-Virals. They include lomatium, scutellaria baicalensis, houttynia, ginger tincture, licorice tincture (I would take deglycerized licorice–easier on gut), isatis and others. (Some of these are only available online.) I don’t know whether they work on the Delta variant. Maybe glutathione would also help you?

      A friend with dysautonomia and other Lyme symtoms was helped by IV Vitamin C and was on antibiotics for a long time. And, while this may sound far-fetched, people have used strong anti-viral herbs— thyme, oregano and eucalyptus— for centuries for plagues. You can make a steam tent with a towel over your head held over a pot of boiling water with thyme and oregano in it and breathe it in. Careful to keep your head high enough to avoid burns. Or, you can use these as essential oils diluted in a pure oil like olive or coconut and put the mix into a diffuser. As long as you breathe them in, it’s fine. Cinammon and lemon or lemon balm EOs have been tested in some study and shown to help reduce viral load. I use them altogether in a diffuser. Just to be clear, all of this is to protect against covid, not to treat the Lyme. I hope some of it is helpful. And I really hope the LD / vax reactions clear up very soon so that you can get back to the classroom.

  • Bonnie
    06/09/2021 (2:31 pm)

    Thanks for this valuable site. It has given me information to make a decision on whether to get the vaccine or not. I have had Lyme for 30 years and have severe reactions to a flu shot, so I will be not getting the Vivid vaccine.

    • G Larsen
      06/30/2021 (3:46 pm)

      Wow your reaction sounds very similar to mine. I hope we both find relief soon.

    • G Larsen
      06/30/2021 (3:48 pm)

      My comment is meant as a reply to Julianne.

      • Julianne Philp
        07/13/2021 (9:33 pm)

        How are you feeling now? I hope you are feeling better.

  • Madison Scanlan
    05/11/2021 (10:09 am)

    I have had Lyme for three years now. Didn’t get diagnosed for months. Took Doxy. I’m going in to get my 2nd Moderna shot now. I’m so scared! I’ve been sobbing and close to vomiting all morning. My reaction to my first shot was bad. I had chills, headache, vomiting, muscle pain and weakness/exhaustion. Very scared my reaction to this 2nd shot will be worse.

    04/30/2021 (6:35 am)

    I was diagnosed with Lyme disease early March 2021 and am taking doxycycline, as well as all sorts of supplements and concoctions from my naturopath. I am scheduled to get the Pfizer vaccine in a few days and am of course very concerned. Like others on this site, I believe my Lyme disease symptoms (numbness in hands, feet and face) were triggered by the flu vaccine in November 2020 (my second flu shot in all of my 62 years). Both my naturopath and family doctor have suggested I not get the Covid 19 vaccine until additional data is available. Since that could take years and since I don’t live in a bubble, I have decided to proceed with getting the vaccine. I wonder if we indicate « Lyme disease » on the vaccine questionnaire whether we would be denied the vaccine? I live in Canada. Good luck to all of us.

  • Tori
    04/27/2021 (2:30 pm)

    Dr. Cameron, do you know of a way to find out what to test for to even a little bit figure out if one is at risk for a vaccine adverse event? Things like PEG/Polysorbate-80 allergies, mast cell disorder, vascular and brain issues, genetic tests, things to do with clotting, existing viruses that could reactivate, vitamin deficiencies, blood pressure, blood sugar, immune system things, other underlying conditions? I don’t know where to start. Of course I realize it would not be the whole answer or even a small part, but getting tests might help me get over my vaccine hesitancy (if nothing is found, that is). Thank you.

    • Dr. Daniel Cameron
      04/29/2021 (7:10 am)

      I have not run into any information on who is at risk of an adverse event. It would help to reduce vaccine hesitancy.

  • Amy Fein
    04/22/2021 (1:09 pm)

    I have chronic Lyme, Babesia and Bartonella. I’ve been in remission feeling great for 14 months. I received my 2nd Moderna shot 2 weeks ago and I now have Bart symptoms. AND…the reemergence of an old bullseye. Exactly the same presentation in exactly the same place. Hi Dr. Cameron!!!!!

    • Susan Kalowski
      05/04/2021 (6:47 am)

      Amy Fein- the same thing happened to my 27 year old son. Two weeks after his second moderna vaccine his neuropathies flared up and his Bartonella
      Symptoms returned.
      Did you go back on antibiotics immediately ? He has a call with his LLMD to decide what to do . I would
      Appreciate your feedback and interested to know how you are doing now . Thanks

      • Marcie
        05/09/2021 (6:31 am)

        My symptoms flared after the second shot. It’s been a month and I’m still not well. I was feeling 90% better prevaccine. Very discouraging.

        • Diane
          07/14/2021 (1:41 pm)

          Marcie… how are you feeling now since being fully vaccinated? What are your symptoms ? Are you on any treatment?

  • Jennifer harrington
    04/15/2021 (8:01 pm)

    I have chronic Lyme disease and have had the moderns vaccine. I’ve had a reverse in my chronic fatigue and have more energy than I have in years. Just hope it continues! I was more afraid of getting covid 19. Just a personal decision

    • Margaret
      04/16/2021 (8:32 am)

      Hi, thanks for sharing your response. I have had chronic Lyme Disease for the past thirty years. Three days ago I had my second vaccine (Moderna). I had the flu for one day, and have felt weak the past two days but am recovering. The weird thing is that my Lyme symptoms are better! I have had minimal or no aches since I got the vaccine, and I had been waking up extremely achy every day before. This may be a temporary side effect of the vaccine, but I’ll take it! As for getting the vaccine, for me there was no contest between strong reaction to vaccine versus getting covid. The last thing I want is another chronic illness. Everyone must decide for him/herself.

      • Margaret
        04/16/2021 (9:44 am)

        Every Lyme patient seems to have a different compilation of symptoms. For that reason, I believe that each of us must decide what is best for our own unique health situation. That includes making an informed decision about the pros and cons of getting the Covid vaccine.

    • Simon Templar
      04/20/2021 (4:08 am)

      That’s great news, Jennifer. I hope your improvement continues, too.

      Like many others, I’ve also been unsure what to do. There’s so many conflicting opinions.

      Again, congratulations. Stay well.

    • Jess
      08/25/2021 (12:52 pm)

      Hi Jennifer. Could you tell me how you are doing now after the 2nd dose of Moderna?

  • Michelle Girod
    04/12/2021 (4:06 pm)

    I met w a new Lyme doctor today and she advised me not to get the vaccine at this time, she would like me to wait a couple weeks to see if any new data comes out regarding Lyme and our immune system. I’m very confused what is the right thing to do. I get a lot of pressure from family and friends that I need to get the vaccine. They say since your immune system is compromised why would you not get it? I said that’s exactly why I should not get it.

    • Dr. Daniel Cameron
      04/13/2021 (7:59 am)

      Thanks for sharing your concerns. I have Lyme disease patients in my practice who are facing the same tough decision. Normally my patients would wait. Unfortunately, the virus does not always wait. And the virus can affect the immune system.

    • LoriAnne Sewick
      04/15/2021 (12:24 am)

      Same thing happened today with advice from my doctor. He said to wait for the J & J to come back. The Pfizer and Moderna won’t jive with my Chronic lyme. Plus I have hypothyroidism with half of my thyroid deformed and missing, malaria and cat scratch fever was also found on my test for lyme.

    • Julie M.
      05/01/2021 (7:47 am)

      Hi there – While I’m very pro-vaccine in general I had an extreme reaction to my first Pfizer shot and landed in the hospital overnight. My immune system basically went into hyper-drive.

      It’s a tough decision. My new LL Dr. recommended me seriously reconsider getting the 2nd vaccine. I broke down in tears, but once I decided not to go through with it I felt an immense wave of relief. Everyone’s body is different. I’ve had undertreated Lyme for a long time now so I suspect my immune system is even more whacked.
      Best thing to do is sit with yourself and the decision. I too felt a lot of pressure from my family and friends who are now all vaccinated.
      They need to understand our medical situation is a determining factor.
      Personally I’m glad I got at least one but the way my body reacted lends me to the belief that a second would be risky. (I had uncontrollable vomiting, fever, chills, worst headache ever (next to Lyme meningitis) along with extremely high BP which is super unusable for me.)
      Good luck. Ultimately it’s your decision.

  • Priscilla
    03/27/2021 (10:26 am)

    I am 73 years old. I was diagnosed with Lyme 5 years ago. Treated at onset for 10 days and had negative test. 10 months later I was in extreme pain and tested positive. Treated for 2 months with doxycycline. 6 weeks after treatment – symptoms returned but at a much lower pain level. The truth is I am very concerned about the vaccine and it triggering a stronger Lyme reaction. I’m being pressured by my family to get the shot. I would like to do a wait and see as I am able to quarantine.

    • Dr. Daniel Cameron
      03/28/2021 (9:02 am)

      As you can tell from the comments there are Lyme disease patients who describe a flareup of their symptoms. The only reason the COVID-19 vaccine is being discussed is due the severity of the virus from some patients. It might be helpful to weigh the risks and benefits with your doctor.

  • Nancy
    03/24/2021 (5:46 pm)

    Dr Cameron,
    First let me thank you for putting this resource out there. This is a very overwhelming decision for us who have been ill for so long. I have chronic Lyme as well as recently diagnosed bartonella infection. I’m not on any treatment at this time other than anti seizure meds, gaba, pain meds and a few vitamins. I am on limited fluids because I have very low sodium 119 due to a medication im on. I also have hashimotos, Cfs, fibromyalgia, low sodium, Epstein Barr and several other co infections. I not doing any treatment at this time. I am slightly overweight as well. I developed a very painful neuropathy in my feet about 8 months ago and it’s near impossible for me to walk, wear socks, shoes, even slippers. We’ve found nothing that works on my pain and sleeping is nearly impossible. A punch biopsy has been ordered. I need help. First, Ive read that you are recommending patients get the covid vaccine. I have an appt for a moderna and a j&j. Do you recommended one over the other? Also, are you taking new patients. I’m not sure I’ve found the right fit for me and my issues. I may be seeking out a second opinion.
    Thanks so much for you help.

    • Dr. Daniel Cameron
      03/25/2021 (8:23 am)

      I have reluctantly supported the vaccine because of the risk of short and long term complications of COVID-19. I walk my patients through the risks and benefits that work for them. I have not seen a difference between the vaccines, yet.  I am taking new patients.

      • Sheila T
        08/02/2021 (3:04 am)

        I am also undecided about getting the covid vaccine not knowing the long term effects of it. I have chronic Lyme, babesia, bartonella, (since 2008) and hashimoto (hypothyroidism) since 1997. I’m literally on disability due to chronic Lyme disease and new my primary who is not Lyme literate says I should get the vaccine because he did. Ummm that’s messed up cause he’s not me nor suffers from my auto immune diseases. I’m reaching out to you and others suffering from Lyme and co-infections that received the vaccine and their side effects. With this vaccine becoming mandatory I’m really confused and need guidance. Thank you for your time.

        • Dr. Daniel Cameron
          08/02/2021 (12:39 pm)

          I hear the same concerns. I have patients who have had a flare-up following the vaccine. Most of them are doing well. I would encourage you to fill out the surve at to share your experience and concerns even if you never take the vaccine.

          BTW I have encouraged my patients to consider getting the vaccine because of the risk of an acute COVID illness. I have to take them through the risks and benefits. The survey will help with that discussion.

  • Kelly S.
    03/20/2021 (10:51 pm)

    I have chronic Lyme, fibromyalgia, CFS, and Hashimoto’s (but the only one anyone ever believes is Hashimoto’s, lol). I had Covid 19 last summer for about 6 weeks (high fever the first ten days, low grade after that, general flu-like symptoms). I did not go to the hospital and my Covid test was negative, but after I was better and had bloodwork done, I had antibodies so my doctor said that I did indeed have Covid 19. I got the 1st Moderna vaccine last Thursday 3/11/21. I was very sick beginning the next morning and had a fever for 4 days. The following 5 days have been much better but I get a headache around midday and begin to feel very fatigued. I’ve been off from work this week so I’ve been able to take a nap for about an hour or so when that happens. Sometimes it helps and the headache goes away. Sometimes it doesn’t (like today). That’s where I’m at now. I go back to work Monday so I hope I’m feeling better and headache free. I’m worried about the second dose of the vaccine in April. I cannot afford to be sick another week. I have recently read that people who have had Covid 19 may still have lingering antibodies which cause a stronger reaction to the vaccine and they may not need a second dose. I’m on the fence about getting the next shot in April.

    • Sarah S
      04/13/2021 (11:36 am)

      Hi Kelly, I have chronic lyme, hashimotos, candida, ebv, and other co-infections as well. My symptoms were similar to yours and lasted a solid 8 days. It was absolutely horrible and I am scared of the second shot as well, but I’m also trying to weigh the risk of vaccination vs. contracting covid-19. I am going to review my symptoms to the 1st dose this afternoon with my doctor to get her opinion on the second shot. My symptoms were pretty severe, days 1-4 horrible fatigue, could not get out of bed, body aches, intermittent ear aches and headaches, loss of taste and appetite and on day 5, I had shortness of breath and wheezing just for one day. I almost went to the ER but it subsided late in the afternoon. It was still very scary though because nothing like that has ever happened. I am attributing it to the shot because I don’t know what else could have caused that.

      • Diane
        07/14/2021 (2:22 pm)

        Hi Sarah…. Thank you for your 1st vaccine experience… would you be so kind as to share an update of your journey today?

  • Maude Muto
    03/05/2021 (7:31 pm)

    Once again thank you for writing about the important things Dr C! My question relates to cytokine storms. I am now in remission. When I was the sickest with Lyme I had very high CRP and cytokine levels. Since Covid causes cytokine storms I’m nervous about getting the Pfizer vaccine. But I’m getting my first dose tomorrow anyway because I’m way more scared of dying from Covid. Could you write about cytokines and how they relate to Lyme and the vaccine? Thank you

    • Dr. Daniel Cameron
      03/06/2021 (7:57 am)

      I have found it difficult to find clear information on cytokines with COVID-10 and the COVID-19 vaccine to write about, yet. Let me know how it works out.

      • Maude
        03/06/2021 (8:03 am)

        Thank you! I’ll let you know how I feel and I’m prepared with my arsenal of herx meds

  • Whitney A Hakim
    02/15/2021 (8:43 am)

    Is it generally safe for someone being treated for co-infections to receive the vaccine? I am scheduled for March 6th and currently on Doxy, Fluconazole and Cefuromine…as well as Samento, Houttuynia and Cryptolepis. My co-infection symptoms are stable and I have shown marked improvement.

    • Dr. Daniel Cameron
      02/15/2021 (2:03 pm)

      My patients are torn with the risk of the vaccine vs risk of COVID-19.  My patients have tolerated the vaccine. I have a few readers who write that they have had a flare-up. Most of my patients take the vaccine after weighing the risks and the benefits.

  • John
    01/29/2021 (3:42 pm)

    I’m in the wait and see mode. My coworkers aunt got the vaccine over a month ago and then got Covid-19.She died a few days later

  • Anthony
    01/20/2021 (10:36 am)

    On Saturday, I just received the Moderna vaccine and so far have had no reaction. I live in a congregate setting. We currently have a severe cluster outbreak of COVID-19 in the very building where I live. Seeing COVID-19 first-hand motivated me to get the vaccine despite the risks. I have also been supplementing with Vitamin C, D3, Zinc, herbals, teas, and am taking antibiotics for Lyme. My chronic Lyme Disease symptoms mimics COVID-19 symptoms. The only way to know is to get tested. The vaccine is not for everyone, but it maybe for some with chronic Lyme Disease. My decision was based on the greater risk of contracting COVID-19 with Lyme Disease vs the risk of receiving a vaccine which could help protect me against COVID-19. Each person needs to decide for him/herself what is best for them.

  • Chaya Ish-Shalom
    01/20/2021 (1:34 am)

    After battling Lyme for ten years under your care I’ve been symptom free for five years now. Based on the good doctor’s suggestion that the danger from contracting covid 19 seemed to be far greater than any risk there might be from the vaccine, I decided to take it – I had my second shot of the Pfizer vaccine last week, no side effects, no reactions – so far so good

    • Robin
      03/16/2021 (1:55 pm)

      Can you comment on how your feeling since the second vaccine?

    • Ashley
      04/05/2021 (1:42 pm)

      Thank you for your comment! Could you update us on how you felt since the second dose and so on?

  • Alicia
    01/18/2021 (10:52 pm)

    I completely disagree for the following reasons:

    1. COVID-19 shows no greater mortality rate than the seasonal flu (which the CDC conveniently quit counting). If you are not over 70 years of age, you have less of a chance of dying from COVID than from influenza.
    2. Speaking influenza, every single Lyme/MSIDS patient I’ve worked with has had a relapse of symptoms after the flu vaccine. This shows you have a 36% greater chance of getting COVID if you get a flu vaccine:
    3. There are effective treatments for COVID-19 (HCQ, zinc, Ivermectin, IV vitamin C, among others). Please see: Dr. Kory blows the NIH statement against Ivermectin out of the water with science. It even works prophylactically.
    3. There are NO completed clinical trials of this experimental medical device (it isn’t a vaccine at all, it is mRNA packaged in a fat envelope, that is delivered to a cell that does not stop transmission but is a treatment). When you get the jab, you are effectively now a test subject IN their ongoing trials. There is no recourse if you are injured.
    4. Moderna has admitted that the mRNA injections are an Operation System, called the “Software of Life”:
    5. Dr. James Lyons Weiler explains there are unsafe epitopes:
    6. Coronavirus vaccines have a terrible safety record. Vaccinated animals got more serious disease and many died.
    7. Two sources state this “medical device” can potentially cause sterility:two sources are now saying the COVID-19 vaccine can cause sterility: and
    8. Our public health ‘authorities’ have severe conflicts of interest and are not to be trusted. They own the patents on the pathogens, the tests, and the vaccines: and
    9. Lyme/MSIDS patients are in an epic war for their health. The last thing they need to do is partake in a dangerous experiment when there are good treatments and many things they can do to make their bodies tougher targets. Don’t be afraid of a virus.

    • Dr. Daniel Cameron
      01/18/2021 (11:20 pm)

      There are certainly a lot of ideas floating around on the COVID-19 vaccine that are not supported by the evidence.

    • James Boulter
      01/21/2021 (11:38 am)

      What are your medical qualifications to make such statements? Your claim, comparing covid mortality to the flu has been routinely refuted and implies an ideological bias. (Here is just one demonstration: You cite only one peer reviewed publication in your comments, and it fails to support your thesis: “Receipt of influenza vaccination was not associated with virus interference among our population.” Your comments appear have the intent of fomenting fear in a group already suffering from lyme and associated diseases. Finally, your slander against public health practitioners is unwarranted and unfounded.

      • Diane
        07/14/2021 (2:31 pm)

        Hi Maude… Praying for you and that by now you already pulled through your Covid vaccinations well..and maybe up to sharing on this forum?

    • L
      04/11/2021 (2:18 am)

      Way to go girl! I completely agree Alicia! I’ve been battling Lyme for 30 years. I got the flu shot once 5 years ago and had to be hospitalized.
      Since the outbreak of CoVid-19 I moved from New York City to New Jersey, traveled to Florida and LA. All while testing negative and never had a symptom of CoVid. Why on earth would I subject my body to this vaccine? No thank you, I won’t be a government experiment.

      • Simon Templar
        04/20/2021 (4:23 am)

        It sounds like that plan will work…until it doesn’t.

    • Simon Templar
      04/20/2021 (4:21 am)

      “Don’t be afraid of a virus.”

      Until you or someone you know dies from it.

      It’s one thing to read conspiracy theories on Alex Jones’ website and quite another to see someone you know get hammered by COVID-19. (e.g. a 27 year old with no comorbidities on a ventilator, a single mother in her 30s who died and left behind a child, a woman hospitalized for three months and then required months of therapy.

  • lou
    01/18/2021 (11:12 am)

    Many chronic lyme patients have a low white blood cell count, and their RA, hashimotos, etc are infection driven. Seems like this makes them harder to fit neatly into these categories. Plus, more than a few have mast activation, which makes adding new things, whether food or vaccines, potentially a problem. Then there is advanced age. They are giving the shot to nursing home people, but it was my understanding that the immune system weakens with age.

    It may be hazardous for any doctor to recommend against a vaccine for this population, since people who don’t immediately get vaccines, and doctors who don’t recommend them often are called anti-vaxxers. It is so tiring to have to keep pointing out shades of gray in what too many people consider a black and white world.

    • Dr. Daniel Cameron
      01/18/2021 (3:22 pm)

      well stated

  • Kyle
    01/17/2021 (7:21 pm)

    I’ll be getting the vaccine this week. Will let you know if I have any difficulties.

    • Sonya
      02/09/2021 (10:36 pm)

      How did it go Kyle? I’m still on the fence. I have post-lyme syndrome or chronic lyme. Whatever you want to call it these days. Fatigue, inflammation, muscle pain, brain inflammation our my main symtoms. I am testing the waters with the vaccine by seeing how others do with it.

  • Erin
    01/16/2021 (5:09 pm)

    Thank you for the information. What are your thoughts for those with lyme and the MTHFR gene mutation (1 or 2 copies)? It is harder to detox with this mutation.

    • Dr. Daniel Cameron
      01/16/2021 (7:38 pm)

      Sorry again. I don’t have an answer.

  • Marja
    01/16/2021 (4:54 pm)

    Does a current lyme diagnosis count for an underlying condition with respect to prioritization for the covid vaccine?

    • Dr. Daniel Cameron
      01/16/2021 (7:38 pm)

      I have not seen Lyme disease on the priority list despite their impaired immune system.

  • Ann Maher
    01/16/2021 (2:48 pm)

    If we Lyme disease Patients have a choice of Vaccines, which one would you recommend.!.

    • Dr. Daniel Cameron
      01/16/2021 (7:36 pm)

      I am unclear which is the best vaccine. Sorry.

  • Elicia Brand-Leudemann
    01/16/2021 (2:30 pm)

    What if you have Lupus and Lyme Disease. Do you still recommend getting the COVID vaccination?

    • Dr. Daniel Cameron
      01/16/2021 (7:36 pm)

      I have been following the findings for individuals with autoimmune diseases including Lupus. I have not seen an issue despite their impaired immune system. Individuals with Lupus present with an overactive immune system as in Lyme disease. The CDC advised individuals with autoimmune disease to take the COVID-19 despite the paucity of evidence.

      • donna
        06/02/2021 (10:02 pm)

        seriousley in all due respect Dr C . The cdc also said postlyme did not exist and we all know that story, I would never listen to them. I suffered too many years of hell and thanks to DR R and llmds like you Im alive.

  • Ellen Marshall
    01/16/2021 (10:03 am)

    Thank you for keeping this discussion current. I am of the wait and see crowd. Also I must point out that having been so sick with Lyme and co-infections for decades, the my answers to the standard screening questions for Covid-19 could all be yes.

    In other words, it is hard to think of throwing one more thing at my immune system.

    • Dr. Daniel Cameron
      01/16/2021 (10:43 am)

      I wrote this blog to capture the uncertainty of making a decision whether to risk the effects of COVID-19 affecting the immune system or the COVID-19 affecting the immune system.

  • Kathleen Meyer
    01/16/2021 (8:45 am)

    Since the beginning of my Lyme journey in 2012, age 55, I have been advised to use my best judgement regarding flu vaccines etc. I believe the 2012 vaccine caused a chain reaction which set off a long dormant Mononucleosis, age 18. I was very sick for 4 weeks, 2-3 of which I was bedridden and unable to walk normally. I believe the flu vaccine caused or contributed to my downfall. I have not has a flu vaccine since then. I am very reluctant to have ANY vaccines right now. I would like to see an article from Lyme patients and what their reactions are to getting a Covid vaccine. I will wait and see. My Lyme is now in remission and I’m walking again.

    • Dr. Daniel Cameron
      01/16/2021 (10:34 am)

      Great comments. I understand your reluctance. I am also hopeful the Lyme disease can share their experience with COVID-19 or the COVID-19 vaccine to help individuals make an informed decision.

  • Christine DeSimone
    01/16/2021 (7:35 am)

    Twenty two years ago my Lyme Specialist told me not to do any vaccines and not donate blood.

    • Dr. Daniel Cameron
      01/16/2021 (10:24 am)

      I share similar views on donation of blood given the problem with Babesia. The risk of a COVID-19 infection is high enough to question your doctor’s advice on the vaccine. I find the risk of COVID-19 is worse that the risk of the COVID-19 vaccine.

      • Lauren
        01/17/2021 (10:20 pm)

        I think it’s not a one size fits all, COVID. Everyone reacts differently. I had it and was grateful not to have been hospitalized, but was close. None the less I would not get this vaccine due to my lack of immune system from chronic lyme. My doctor advised me to not get an updated tetanus shot due to my immune system being weak. Unless there are lyme patients willing to be guinea pigs, I think it will be a few decades to see true reaction and effects of this vaccine for everyone regardless of their health issues or lack there of, especially in the lyme community. Thanks for the info and your honest thoughts Dr.

      • Dana
        01/22/2021 (5:43 pm)

        Dr. Carmeron,
        I was advised about not getting vaccine by my LLMD when I was first Diagnosed a very long time ago. Two things.
        I had Covid19 was like have a really bad case of the flu.
        I had a high fever bad cough, congestion, I had to use my oxygen, I had no energy, my Dr did end up writing me a
        prescription for cough medicine.
        So I am not sure where getting the vaccine is worse than getting Covid19 especially if the vaccine sets off a reaction in your body with your immune system and your Lyme goes crazy. Or worse you get covid from the shot. Please don’t tell that doesn’t happened I have many friends of mine that are ER Doctors, Covid Doctors and Nurse that have gotten the vaccine and got Covid19.

        • Dr. Daniel Cameron
          01/22/2021 (8:05 pm)

          The COVID-19 is produced using a messenger RNA. The COVID-19 vaccine is not a virus and therefore cannot cause COVID-19. We do not know if the vaccine can lead to changes in the immune response of individuals with or without COVID-19.

          • ST
            04/20/2021 (4:36 am)

            Your ability to respond to such questions while also not getting entangled in the pseudoscience is great. You’re like a Ninja who also knows the Jedi mind trick.

    • dawn
      06/02/2021 (10:04 pm)

      same here my LLMD

      • Susan
        09/11/2021 (1:18 pm)

        Dr. Cameron,
        I was treated for late stage Lyme back in 2002 by LLMD after being undiagnosed for 8 years. Was on high doses of antibiotics, with plaquenil and kept on antibiotic for maintenance for a year or so after my symptoms improved. Although nothing like what I experienced back then, I continue to have pain in my joints, especially my knees, inflammation and chest pain. A vaccine mandate has gone into effect at my work and I was able to get a medical exemption from my doctor for holding off on the vaccine at least for now. I am really struggling with the decision as I know I cant go back to being in bed most of the time, feeling like I cant function and not being able to work again like when my Lyme was at its worst, should I have a bad reaction to the vaccine. I think about how having Lyme for that long without being treated more than likely changed my immune system and its response. I get the flu shot because work requires it and have had symptom flare ups. I remember when I was finally diagnosed with Lyme and treated with high doses of antibiotics, I felt like I was getting so much worse and told my LLMD I didnt know how much longer I could continue treatment and he said that feeling worse in the beginning of treatment was a good sign because my body was fighting the Lyme. I keep thinking if I take the vaccine my body could have the same reaction if not worse since these vaccines are supposed to produce a high inflammatory response. It is such a scary time and trying to decide what to do has been very stressful. I am also concerned for my daughter who is 14 now and was hospitalized for over a week with Lyme two years ago. She was finally treated and her symptoms improved to a point where she could get out of the wheelchair and go back to school. She is now on the soccer team at school and is finally able to get back to living her life again. She still has breathing issues, chest pain and some joint pain as residual effects, but overall is doing better. There has been a stronger push for vaccination in her age group and I hold all of the same concerns for her in trying to decide what is best for her. My husband, who works in healthcare, got Covid 4/2020. He ended up with long hauler, was out of work and in physical therapy since 12/2020. He is just returning back to work on a part time basis now. I’ve seen the impact Covid had on him and on some of our close friends and do not want to get Covid. I am so thankful that I didnt get it and my daughter and son didnt either when he had it. I was surprised being in such close contact with him, I didnt get it and tested negative for antibodies. Everything I hear and read has been a mixed bag of information and nothing seems definitive. I worry about us not being protected, but worry just as much about my daughter and I having a major setback with Lyme. Do you know if they have started any clinical trials on long term Lyme patients with any of the vaccines yet? I havent been able to find information on it. My LLMD is excellent but has now retired. I’m looking for a new LLMD. I’m in MA and was wondering if you know of anyone? I feel like I need more guidance on this from someone who is Lyme literate and understands the reasons Lyme patients are having such a difficult time right now trying to navigate through all of this. I find this blog to be extremely helpful to be able to see what other Lyme patients are experiencing and your responses as well. Thank you!

Join the Lyme Conversation
(Note: comments are moderated. You will see your comment after it has been reviewed.)

Some html is OK