LYME DISEASE AND COVID-19 SURVEY
We need to understand the Burden Of Lyme Disease and other tick-borne illnesses (BOLD) on individuals who have been ill with COVID-19, have taken the COVID-19 vaccine, or have been hesitant to take the COVID-19 vaccine. Below is a short video explaining the BOLD survey.
You are invited to share your experience with Lyme disease if you are at least 12 years of age and if:
- You have had COVID-19
- You have had the COVID-19 vaccine
- You have had neither COVID-19 nor the COVID-19 vaccine
Your experience will help others living with Lyme disease in a COVID-19 Pandemic.
Please contact Dr. Daniel Cameron with any questions or concerns at: dcameron@danielcameronmd.com
Jennifer Burns
08/01/2021 (8:31 pm)
Thank you, Dr. Cameron, for your continued dedication to healing people. And for your intensive research work over the decades, including this survey.
You have helped me and every member of my family immensely.
Dr. Daniel Cameron
08/02/2021 (12:33 pm)
Thanks for filling out the Survey. Every survey helps.
Colleen Nicholson
08/01/2021 (11:49 am)
Dr. C,
Military Lyme’s official stance is that Lyme patients should never get vaccines…especially not the experimental MRNA vaccine.
Roberto
08/11/2021 (4:16 pm)
If considering getting a vaccine are there additional risks when having MCAS besides Lyme and co-infections? Thank you!
Maura
08/12/2021 (3:20 pm)
I actually felt better after having the Moderna Vaccine for about 2 mos. I felt bad the day after the shot but then I felt better after that. It was like my immune system focused on something different but after 2 mos I was back to my crappy Lyme symptoms.
Tamara
07/26/2021 (12:32 pm)
Does anyone think that Lyme disease was an earlier pandemic which was bacterial instead of viral like Covid? I am noticing the Long-Hauler Symptoms are the same/similar for both.
Allen M. Abrahams
08/17/2021 (2:23 pm)
No, not me. I suspect immune system.
Gina
10/24/2021 (7:58 pm)
I feel the same. . 2019 my mother had symptoms of Bartonella, which I had never heard of at the time. But was diagnosed with influenza A and B. She was sick most of 2019. My dog and I finally contracted whatever she had. Almost killed my dog. It did kill the neighbor’s dog after he spent an hour in mom’s house talking with her. He got sick, then His dog got sick with same symptoms of conjunctivitis that my mother had. End of 2019 I kept fighting it off. Beginning of pandemic I was down with it. But I also had a tick bite, never associating the symptoms with the tick bite. I did associate my symptoms with invisible mites I believe to be bird mites. I could not come near my mothers’s house or go in because my symptoms would flare up again with terrible itchy rashes or biting sensations that hurt! Even after her death, her house seems to have these “bugs” in the air , but they have gotten much smaller. My mother just died of “Covid” but the way they described her chest x-ray, sounds like Bartonella to me. I had the Bartonella stretch marks and continue to have other symptoms of all five coinfections. It has all been a mystery but definitely is an endemic here. I cannot walk on dead leaves without getting bit and reinfested with Lyme+ and the symptoms are amazingly similar to Covid symptoms.
Rebecca Day
07/10/2021 (7:19 pm)
I got my second Moderna vaccine on April 6, 2021. About 2/3 wks after I started having dizziness/headaches, rapid heart beat, and an unwell feeling in general. It has only progressed from there and now it has become extreme where I do not leave the house most days. I have been to my GP, (he said he had heard of some strange reactions and did not even try to convince me it was not possible) neurologist, ENT (the full battery of testing). Now I am going to a specialty center to help with the dizziness and balance issues.
Dr. Daniel Cameron
07/11/2021 (9:13 am)
I am sorry to hear you are having problems following your second Moderna shot here. I would most appreciate it if you could complete the Lyme and COVID survey at https://redcap.northwell.edu/surveys/?s=ERKWM37L4C to share with others. Your survey will remain confidential.
Laurie
07/02/2021 (7:57 pm)
Thanks for creating this survey. We Lyme patients need to understand how the vaccine can affect us. I am reluctant to get it… the thought of getting sicker than I already am is a bit overwhelming
Luciana
10/19/2021 (7:53 pm)
Laurie, I felt the same way and my mom pushed me to get it. I have Lyme, mold, babesiosis and long haul covid. The vaccine had few if any side effects for me but I waited for a “good day” to be vaccinated. The thought of having full blown covid again with how I feel is not something I want to experience. My brother, who lives with me, recently tested positive for covid and I’m so thankful I was vaccinated. My symptoms were mild comparatively….vaccines may not fully prevent the disease, but they give your immune system a fighting chance which overall should be better than not having it. Bottom line, we really can’t control if we get covid or not because people can pass it before they know to isolate. We have to do what we can to protect ourselves including vitamins, healthy behaviors and restorative sleep. I could go on….