We need to understand the Burden Of Lyme Disease and other tick-borne illnesses (BOLD) on individuals who have been ill with COVID-19, have taken the COVID-19 vaccine, or have been hesitant to take the COVID-19 vaccine. Below is a short video explaining the BOLD survey.

Let us know your experience – Take The Survey

You are invited to share your experience with Lyme disease if you are at least 12 years of age and if:

  • You have had COVID-19
  • You have had the COVID-19 vaccine
  • You have had neither COVID-19 nor the COVID-19 vaccine

Your experience will help others living with Lyme disease in a COVID-19 Pandemic.

Please contact Dr. Daniel Cameron with any questions or concerns at:

Let us know what you think about the Survey

Join the Conversation
(Note: comments are moderated. You will see your comment after it has been reviewed.)


  • Butras G
    09/22/2021 (2:08 pm)

    i have completed the survey – where or when can we see the aggregated results ?

    • Dr. Daniel Cameron
      09/22/2021 (2:42 pm)

      I am preparing to present the initial results at an ILADS professional conference. I am working on a way to share the results.

  • Melinda P
    09/17/2021 (11:25 am)

    I was worried about getting the vaccine, but work in healthcare and my spouse is high risk for severe illness if he gets COVID. I got my first injection in January and second in February and have had ZERO adverse reactions since 2 days after each. The day after both I was tired and my arm was sore, that was it. I was so relieved to not have terrible side effects and it’s interesting to me that other Lyme surveys show patients with Lyme are having FEWER side effects than the general population! Maybe we’re just so used to pain that the mild discomfort after injection isn’t a big deal. 🙂 My anxiety and mood are much better since getting vaccinated, a result of less worry about contracting COVID, I’m sure. We are still extremely careful, no crowds, masking in public spaces, etc.

  • Whitney W, Donhauser
    09/11/2021 (8:57 pm)

    I am curious about Covid break through cases. This survey does not seem to address that issue. Our whole family (4 individuals) have all been diagnosed with Lyme over the last 15 years, several times. We have all been vaccinated against Covid-19 with Pfizer. Recently, our 18 year old daughter had a break through Covid case. Was she at higher risk for Covid because of her Lyme disease, which was diagnosed when she was 3 years old?

  • Anne
    09/10/2021 (6:35 pm)

    I have been mostly symptom free for about 8 yrs. and quite healthy. since summer began some symptoms have recurred, and the big question is will a COVID shot make me feel worse?

  • michelle langdon jenkins
    08/30/2021 (10:19 pm)

    I am extremely terrified to take the vaccine. I have 4 different kinds of lyme and I also have a blood clotting issue. Our school district is mandating that staff get vaccinated or we will have to be tested 3 times a week but I truly don’t think it would be a good idea to get the vaccine. What do you think?

    • Dr. Daniel Cameron
      08/31/2021 (7:52 am)

      The only reason we are having this discussion is the severe complications of COVID-19. This Lyme disease and COVID-19 survey will allow individuals with Lyme disease to share their experience with COVID-19 or the COVID-19 vaccine to help with your decision. I would appreciate it if you and anyone you know, even children over age 12 to complete the survey. The survey requires a consent to protect your privacy and to allow the results to be published.

  • Karen Duffy Tuhacek
    08/29/2021 (4:31 pm)

    3 docs said no to vaccine for me. Besides dxed Lyme/co-infections/ lyme dysautonomia/syncope/mass cell.++++
    My gut says no. But in elevators a lot.
    Try to keep distance unable to wear mask for any length of time. Air hunger. Should people like myself with mass cell not take hope we have natural immunity? Just not sure yet!!

    • Dr. Daniel Cameron
      08/30/2021 (8:00 pm)

      You are not alone. The severity of COVID-19 for some people makes the decision more difficult.

  • Christiane Monte-Dismuke
    08/18/2021 (7:22 pm)

    Dr Cameron,
    I hope you are taking new patients!! Im moving to CT as I am in desperate need of a good Lyme Dr. I thought I was in the clear 12 plus years remission then I got that stupid vaccine and right back to square one!!

    • Dr. Daniel Cameron
      08/19/2021 (3:55 pm)

      I am taking new patients. Call my office at 914 666 4665 to make arrangements.

  • Allen M. Abrahams
    08/17/2021 (12:47 pm)

    Dr. Cameron,
    I chose the J&J (Jansen) vaccine primarily because it uses relatively established technology that has been tested for years with the flu vaccines. On the plus side was the one and done injection, as I anecdotally noted by crunching some CDC numbers, that the mRNA vaccines had increased probability of adverse reaction, with both shots greater than or equal to that of the one J&J. I decided the J&J would be a lower risk, especially as I was not in the demographic that experienced the greatest number of adverse reactions. Additionally, the government eye was on Jansen to correct a manufacturing issue. So I waited.
    I had no injection site pain, no immediate issues at all. A week later, I experienced what I thought was a Herxheimer reaction like I had during Lyme treatment, as my forearms started getting red spots, but with no fever, pain or other symptoms. The spots itched, my skin became very dry, and the red spots crusted up, in raised callus like patches, even with moisturizer. GP said this wasn’t a Herxheimer.
    We are now in the process of trying to figure out what is happening. For the time being, I am treating with a cortisone cream and I have an upcoming dermatological appointment.
    I will mention is that I had a DNA test done for genetic disease, and it came up with markers for psoriasis. The worst skin issue in the past sixty years has been occasional mild dandruff in a dry winter. My concern is the triggering of dormant and non-expressive genes.

  • Donna
    08/14/2021 (7:02 am)

    Thanks Dr. Cameron! I am going to take the survey and share it with others. I took the Pfizer vaccine doses in March/April. My side effects were relatively mild and my anxiety was greatly reduced after the shots. So far so good. Masks, on the other hand, have caused me illness over and over again, and that worries me much more than the vaccine because every time I have to treat a new sinus infection brought on my wearing the mask for long periods I worry about what it might be doing to my PTLD … in fact, I am pretty sure I am either herxing or in a babesia flare as a result of doxy followed by z-pack. I’m not even sure if that’s possible, but it sure is coincidental. Is it possible? Have you seen this?

    • Dr. Daniel Cameron
      08/14/2021 (7:49 am)

      I am happy you tolerated the vaccine. Your survey will be helpful to our understanding of the vaccines. I still wear a mask to protect my patients. I find them uncomfortable. Any antibiotic can lead to a flareup. So can stress, diet, alcohol and a concussion.

  • Brian S
    08/13/2021 (2:43 pm)

    Got 50% through the survey just now, and the website gave an error: ” CRITICAL ERROR: REDCap server is offline!
    For unknown reasons, REDCap cannot communicate with its database server, which may be offline. Please contact your local REDCap administrator to inform them of this issue immediately. If you are a REDCap administrator, then please see this additional information. We are sorry for any inconvenience. “

    • Dr. Daniel Cameron
      08/14/2021 (7:45 am)

      Thanks for sharing. I understand that Redcap sometimes works on their system on Friday evening on some occasions. I will be watching.

  • Joan Grounds
    08/07/2021 (2:21 am)

    Dr Cameron,
    I wonder if you can help me. I have Lymes Disease with co infections. I live in Australia where Lymes is not recognised by the government. ( Doctors who treat it are deregistered) I work with a naturopath who is very supportive but I do need to do a great deal of research myself then take it to him for evaluation. The Australian government is pushing vaccination particularly because of the Delta variant. I am in the age group that can only get Astra Zeneca and I am very concerned about that particular vaccine as well as the other MrNA vaccines. After reading your blogs, it is clear to me that the risks for Lymes and the other MnRA vaccines is too great. I would like to know if you have any thoughts on the Astra Zeneca? The pressure to vaccinate is very strong here. From what I have read, I would prefer the Novax.I would be very grateful for your opinion and suggestions.
    Thank you.
    Joan Grounds

    • Dr. Daniel Cameron
      08/08/2021 (8:22 am)

      I have walked my patients one on one through the risk and benefits of the vaccine. I have favored the vaccine despite the risks because of my concern with an acute COVID-19 illness or potential for chronic illness. I have seen flare ups. I have readers who have described flare ups. I would appreciate it if you and friends you know complete my Lyme disease and COVID-19 survey so we can better understand the risks from each other. The link to the survey is at Most appreciated. I do not have enough information to answer your question on the best vaccine. Perhaps the Survey will help.

  • Jennifer Burns
    08/01/2021 (8:31 pm)

    Thank you, Dr. Cameron, for your continued dedication to healing people. And for your intensive research work over the decades, including this survey.
    You have helped me and every member of my family immensely.

  • Colleen Nicholson
    08/01/2021 (11:49 am)

    Dr. C,
    Military Lyme’s official stance is that Lyme patients should never get vaccines…especially not the experimental MRNA vaccine.

    • Roberto
      08/11/2021 (4:16 pm)

      If considering getting a vaccine are there additional risks when having MCAS besides Lyme and co-infections? Thank you!

    • Maura
      08/12/2021 (3:20 pm)

      I actually felt better after having the Moderna Vaccine for about 2 mos. I felt bad the day after the shot but then I felt better after that. It was like my immune system focused on something different but after 2 mos I was back to my crappy Lyme symptoms.

  • Tamara
    07/26/2021 (12:32 pm)

    Does anyone think that Lyme disease was an earlier pandemic which was bacterial instead of viral like Covid? I am noticing the Long-Hauler Symptoms are the same/similar for both.

    • Allen M. Abrahams
      08/17/2021 (2:23 pm)

      No, not me. I suspect immune system.

  • Rebecca Day
    07/10/2021 (7:19 pm)

    I got my second Moderna vaccine on April 6, 2021. About 2/3 wks after I started having dizziness/headaches, rapid heart beat, and an unwell feeling in general. It has only progressed from there and now it has become extreme where I do not leave the house most days. I have been to my GP, (he said he had heard of some strange reactions and did not even try to convince me it was not possible) neurologist, ENT (the full battery of testing). Now I am going to a specialty center to help with the dizziness and balance issues.

  • Laurie
    07/02/2021 (7:57 pm)

    Thanks for creating this survey. We Lyme patients need to understand how the vaccine can affect us. I am reluctant to get it… the thought of getting sicker than I already am is a bit overwhelming

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